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Cluster Headache Help and Support >> Cluster Headache Specific >> The kip scale should be updated
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Message started by BoomBoomBap on Jan 21st, 2020 at 5:18am

Title: The kip scale should be updated
Post by BoomBoomBap on Jan 21st, 2020 at 5:18am
I found this other pain scale that is pretty good. I think the kip scale should be updated to add more details. .

Level 5, a "pacer" is undefined

Level 6, "dancing" is undefined.

Level 9, The "Why me" syndrome is undefined. It probably starts to set in for most people at about level 7.

Level 10, depression probably starts at about level 7. Suicidal thoughts probably start at level 8 or 9.

Kip scale was probably great for many years, but it should be updated I think to add more details to people who are newly diagnosed or who are looking for answers to their questions. People shouldn't have to dig through old forum posts for definitions.
w4uy8c02ip841.jpg (216 KB | 11 )

Title: Re: The kip scale should be updated
Post by pattik on Jan 21st, 2020 at 10:44am
Hey BoomBoom!

Thanks for posting the pain scale. This subject seems to be perennial around here. I used to post about the subjective nature of Bob Kipple's observations on CH pain. Pain is very relative with CH, and even CH pain vs other types of pain--or even male/female responses. Even your scale stops applying to me after PL-2. So it's almost an intellectual exercise to come up with a standard. "Kip" was an early member of this forum, and his scale (and permanent link on the side list) is an artifact of decades ago. Still, it's a start for newcomers.  I personally just use "PL" and a number between 1-10 for pain level if I need to describe it in a post. Hopefully most people will get the general idea.

Take care,
Patti

Title: Re: The kip scale should be updated
Post by AussieBrian on Jan 21st, 2020 at 7:22pm
Our Kip scale was only ever intended as a guideline, as mentioned in the intro, rather than as a set of rules.

The only known truth around Cluster Headaches is that no two ClusterHeads are the same so the Kip scale serves us well.


Title: Re: The kip scale should be updated
Post by Bob P on Jan 22nd, 2020 at 7:27am
Yeah.  Kip was in on the first ch meeting in Drummer's garage.  In fact, his wife died and was revived at that meeting.  I think we kept his "Kip Scale" more to honor him than anything else.
For me, my ch were either a 0 or a 10.  No in-between.

Title: Re: The kip scale should be updated
Post by Hoppy on Jan 23rd, 2020 at 10:43pm
Mine were always on a pain scale of 10+ if there is such a thing, within minutes of the first sign of the beast paying me visit.

Cheers Hoppy

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