Hey all!

Just went for a follow up with my neurologist today and he gave me the two injections for emgality to take home.  I have not taken it, and I do not plan to quite yet because I have not read promising things when it comes to emgality and clusters.  I feel like it is one of those imitrex situations.  Makes next cycles longer, more painful, etc.  Anyone on here care to share their experiences with it?

Kat

Kat,  if you scroll down the Medications Board you'll find another couple of threads below this one on just this subject.

Every little bit of extra info can only be good.

Hi Kat,

I have suffered with CH for 25 years (I'm 45 now)- and have been treating with Steroids for temporary relief + Verapamil + Imitrex + O2 - all at varying degrees throughout the years. D3, too, though didn't have as much luck as others.

Last July/August I was in a cycle that did not seem like it was going to end.

I got the Cluster dose of Emgality. After I took the first month's dose - for the next few days, I definitely recall the same number of hits, if not maybe more (?) - but following that, they tapered off. One every few days. After the second month of Emgality - they stopped.

I did not use Emgality for a 3rd month, and I actually tapered off my Verapamil, too. I have been pain free since about last September.

Could it be the Emgality? Could it be the cycle ended? I don't know, but I went from 4-6 CH a day to 1 to 0, right after I started Emgality.

That's my experience.

PS - other than a little pain from the auto injector, I had no noticeable side effects.