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Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Emaglity http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1603826031 Message started by wsnurse on Oct 27th, 2020 at 3:13pm |
Title: Emaglity Post by wsnurse on Oct 27th, 2020 at 3:13pm
Been almost cluster free since I started Emaglity. I was a test subject at STANFORD UNIVERSITY. SO I started 3 years ago. Still on D3 10,000 a Day. Multi vitamin, magnesium
Verapamil 360mg. But I had a big CH it was a kip 10. 3 HOURS... Over all its been great! Aftee being chronic 12 years. Question After I take the Emaglity The next day i have severe muscle and joint aches feel like i got ran over by a truck. Anyone feel the same? |
Title: Re: Emaglity Post by AussieBrian on Oct 27th, 2020 at 9:18pm |
Title: Re: Emaglity Post by Hoppy on Oct 29th, 2020 at 12:34am
Emgality has now been approved for use here down under, but it's not listed on the PBS as of yet.
Cheers, Hoppy |
Title: Re: Emaglity Post by Joshua on Nov 2nd, 2020 at 9:17am
*EMGALITY UPDATE*
I took Emgality in 2 monthly doses last September & October. Almost 1 year to the day from taking the second Emgality monthly dose, and getting totally pain free for a year, I got a cluster headache last week. I happened to have my Emgality prescription in the fridge from last year (unexpired) and took it early last week. Since then I've gotten 1 additional CH, and some shadows, but it hasn't taken hold yet like it usually does at the beginning of the cycle, which is usually hits 3 - 6X a day. More to come. |
Title: Re: Emaglity Post by Joshua on Nov 10th, 2020 at 12:48pm
Update 1 week post Emgality - no additional headaches.
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Title: Re: Emaglity Post by dtruett on Dec 18th, 2020 at 7:36pm
Can I ask how much people are paying for this. I have a Medicare quote of $566/mo. Worth it if it aborts a cycle, but a lot of money for this retiree.
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Title: Re: Emaglity Post by Joshua on Jan 11th, 2021 at 11:18am
Mine was covered under insurance, so my copay was very low, definitely less than $60.
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Title: Re: Emaglity Post by General_Cluster on Aug 20th, 2021 at 12:53am
I am on Emgality 300 mg subQ per month. I then went 1.5 years without a cluster. Now after missing one month the headaches are back but not as severe. I take verapamil 240 mg three times a day during cluster phase and use sumatriptan 6 mg subQ with each headache at 5:45 am, 6:15 pm, 10:30 pm, and 2:40 am. Prior to the Emgality I had 2 cluster phases per year that lasted about 8 weeks. I no longer contemplate suicide since I started the Emgality. I also take magnesium and vitamin D3. I like wine but i CANNOT touch it during a cluster phase. Emgality at 300 mg per month is FDA approved for Cluster headache indication. No other migraine medication has this indication.
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