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Cluster Headache Help and Support >> Cluster Headache Specific >> So 2.5 years PF and... I'm back. http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1625763045 Message started by Pfunk on Jul 8th, 2021 at 12:50pm |
Title: So 2.5 years PF and... I'm back. Post by Pfunk on Jul 8th, 2021 at 12:50pm
Hello again. I see so many familiar names and faces an regretfully, so many new ones as well.
Roughly 2.5 years ago i did a sleep study and was diagnosed with obstructed sleep apnea and to my amazement, my attacks went from 4-5 a day to zero! i continued with the D3 regimen as it has always been quite effective. Sadly, the Devil jumped on my back again about two weeks ago and we've been dancing 1-2 times a day since. the severity seems not to be quite as bad and I did get a couple days with no attacks. Could this be because I have O2 attached to my CPAP? I will say, to all the newbies or fairly new, you are most definitely in the right places. Through the years, my AWESOME CH family has gotten me through many a Dark time and i am forever grateful to have them. Pay attention and as hard asit sounds, be patient, we'll get through this together. |
Title: Re: So 2.5 years PF and... I'm back. Post by pattik on Jul 12th, 2021 at 1:05pm
Hi again! [smiley=wave.gif]
I remember reading many reports here regarding a strong connection between sleep apnea and CH nighttime attacks. That makes a lot of sense now that we know how oxygen works to abort attacks. Fixing the blood oxygen problem stops the brain from overreacting. While I haven't been formally diagnosed with apnea, I DO wear a fitbit which supposedly tracks my blood/ox levels through the night. Some nights, the graph can be quite erratic, and a mild headache upon waking can be associated with it. They are pretty mild due to my D3 regimen. If you are adding O2 to your CPAP, sounds like a winning approach to me. Take care, Patti |
Title: Re: So 2.5 years PF and... I'm back. Post by Traveller on Jul 13th, 2021 at 9:51pm
PF sorry to hear of your regression. My story is similar to yours; since my Apnea diagnosis and treatment (Bipap) I have been CH free for 5 years now. Do you track your AHI on your machine? Apnea can worsen as we age or gain weight and sometimes a pressure adjustment is in order. My Neuro has ratcheted me up twice when my AHI started to rise, and my events are again less than 1/hour. I do not use oxygen, just the BIPAP.
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