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Cluster Headache Help and Support >> Getting to Know Ya >> Looks like I'm back
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Message started by Tim1975 on Dec 27th, 2021 at 3:15pm

Title: Looks like I'm back
Post by Tim1975 on Dec 27th, 2021 at 3:15pm
I'm not new. Had been coming here for about the past 9 years. I choose to not come while I'm PF. I feel that it's cruel to tell everyone I'm pf while they suffer. The past 5 years though, my cycles were very short and my attacks were not very intense at all. In fact, they were so mild that I didn't think I was even having cycles.

However, this past week, they reminded me that they arent done with me. 4 years ago I saw a Neurologist and was officially diagnosed with episodic cluster headaches and was given Vamparil and Sumatripitan (spelling on both), but since the, because of covid, lost my insurance. I am in desperate need of Medicade or something so I can atleast get the Sumatriptitan back. Has anyone else un the US or Texas has to do this?

In the meantime, I read here about melatonin. Have alot of you has positive results with this? Ice pack, water and BC powders only provide minimal relief. Please someone help! :'(

Title: Re: Looks like I'm back
Post by AussieBrian on Dec 27th, 2021 at 6:08pm
Mate, real sorry you had to come look us up again but at least there's a little good news for you.

In case you missed it earlier, for the hit you know is coming try chugging down a Red Bull or similar as quickly as you can. Tastes awful, I know, but has been known to help.

Also have a look around the boards regarding Vitamin D therapy which was developed here just for us CHeads and many people are getting great results.

No need for insurance as it's all available over the counter and costs pennies.

Good luck and let us know how you get on,

Brian down under.

Title: Re: Looks like I'm back
Post by MDR on Dec 27th, 2021 at 7:39pm
Tim1975,

At first sign a hot cup of coffee as fast as you can
or stand in front of a air conditioner and breath in the cold air.
it would help me plus I do vitamin D.

Mark. 

Title: Re: Looks like I'm back
Post by Hoppy on Dec 28th, 2021 at 10:09pm
Hi Tim, your best bet to abort the beast is to get some oxygen, but seeing you have no insurance, you can get a tank from a welders supply, but don't say it's for CH's, say its for a fish tank, and you can get the demand valve that goes to 15lpm on line from Amazon, and the non-rebreather mask from the store to your left, good luck.

Hoppy

Title: Re: Looks like I'm back
Post by Ant on Jan 27th, 2022 at 10:36pm
I’m so sorry to here this. I had been symptom free for 3 years until recently. I still live by red bull and O2. Herbal remedies if you can find. Even when your ready, you really aren’t. Good luck.  :(

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