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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Daily Chat >> General Posts >> crickets http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1686405998 Message started by CCHInRemission on Jun 10^th, 2023 at 10:06am

Title: crickets
Post by CCHInRemission on Jun 10^th, 2023 at 10:06am

Its a ghost town here. Crickets what have you.

I assume its because there is alot of information now to treat these bastards. D3, Shrooms, Stem Cell, O2, Triptans etc.

Im glad its quiet. Means more are informed, less are suffering.

I posted how I was the 1st in the world to be in remission from stem cell.....crickets.

Pain Free Wishes to ANYONE surviving. Even in remission I never forgot where I came from. Some have

Title: Re: crickets
Post by Racer1_NC on Jun 10^th, 2023 at 4:45pm

It means that Face Book managed to kill many of the once popular one topic oriented message boards.

Shame too....

Title: Re: crickets
Post by MDR on Jun 10^th, 2023 at 5:47pm

I'm on here every night I work love this place this place saved my life.

Mark.

Title: Re: crickets
Post by pattik on Jun 12^th, 2023 at 10:00pm

I visit a couple of times a week. Occasionally someone will post a question I might help with. You never know when something you contribute can make a difference.

Title: Re: crickets
Post by CCHInRemission on Jun 14^th, 2023 at 6:43am

So I post about me being in remission 4 years. A new form of treatment.....barely nothing...I post about crickets and more replies.....SMH

Title: Re: crickets
Post by Eroc on Jun 14^th, 2023 at 10:42pm

Just started my 5th cycle with a typical 3 year remission, however this last remission was 4.5 years so back fighting the beast. It has been different this time with a slow start. Preparing for battle once again though. Tried the D3 method last time with no success and that cycle went on for like 5 months, longest ever. This time I am working to get Emgality and give that a whirl. What is this stem cell you speak of? Met with Neuro this morning (headache specialist PHD Dr. Michael Sethna with Noran) and we have tried alot over the years. Running out of options. Was thinking of trying the D3 again with the Full Monty, however the links at Vitamin D Wiki arent working. I did DM Batch however havent hear back yet.

To add, information is now scattered all over the place, it was nice to have this location that consolidated things for sure.

E