Click this link to read a post I like on the clusterheadaches.com message board...

Ade Ex Member	Re: Letter to Employers & Colleagues Reply #75 - Nov 26^th, 2008 at 7:07pm Fantastic! I'm printing this off tomorrow. I could have done with this 4 years ago, it would have saved me from losing at least one job. Hang in there people! Ade.
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mstfr CH.com Newbie Offline I Love CH.com! Posts: 2	Re: Letter to Employers & Colleagues Reply #76 - Feb 3^rd, 2009 at 10:30pm I am new to this site, and your letter is a true blessing at this time!! Thank You!! Misty
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Rangermark

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I love good sleep

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Louisiana
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Re: Letter to Employers & Colleagues
Reply #77 - Apr 21^st, 2009 at 1:43am

I have never spoken to anyone with CH before today, and i want to let you know that it is a relief to hear someone else say the things you have said in this letter. I am awake now. awaiting another fight with the demon tonight, I will at least know that you understand what i am going through. I hope you realize how much it helps me to know this.

thank you very much

Mark

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gizmo CH.com Hall of Famer Offline Posts: 522 Germany Gender:	Re: Letter to Employers & Colleagues Reply #78 - Jun 3^rd, 2009 at 10:43am A German version is available at Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Oliver
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Joni

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Knowledge is Power

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Re: Letter to Employers & Colleagues
Reply #79 - Aug 16^th, 2009 at 3:48am

It is a comforting letter for me to read, however, I would be very cautious about giving it to an employer, co-worker, or even casual friends due to the negative connotations associated with CH. Only the people closest to you that you trust need to know the full range of possible dysfunctions. I would give the letter to those closest to me and revise it for the others. I will send it to my family members since there are 10 of us clusterheads spanning 5 generations.

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Experience: That most brutal of teachers. But you learn, my God do you learn. -C. S. Lewis

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Larry Stroud CH.com Newbie Offline I Love CH.com! Posts: 2	Re: Letter to Employers & Colleagues Reply #80 - Feb 17^th, 2010 at 5:36pm I think this is a great letter. I especially liked the part at the end of things to avoid saying. That got me to laughing and we all need a little laughter. Thanks for this valuable asset.
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rascleo

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Sa Diego, Ca.
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Re: Letter to Employers & Colleagues
Reply #81 - Mar 13^th, 2010 at 5:50am

This is an excellent letter. I've felt so very frustrated trying to explain what I'm going through to my principal and colleagues.I will most certainly use the letter. I'm in such a bad state, I'm not working, however this can't go on for long, as I have to pay $110.00/day for my sub. I am now going through 5 procedures of injecting blockers into the nerves in my brain. I am so anxious for something to help, I don't know how much longer I can go on like this.

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Richard in San Diego

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Simon

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Hunstanton, Norfolk, UK
Gender: male

Re: Letter to Employers & Colleagues
Reply #82 - Apr 11^th, 2011 at 9:45pm

Good God! Amazing to see that this is still doing the rounds. Ashamed to say I haven't been here for a few years, but what do I see popping up before me?!

Glad this is still having some use for people - certainly didn't think when I wrote it in 2001 or so that people would still be using it ten years later.

Sitting here at 2.30am UK time just winding down from an attack - yes, I'm still getting them - been chronic since 1995 or thereabouts. Suddenly thought, I wonder how ch.com is doing and called into visit.

Hi to any old timers out there - to any who have no idea who I am, suffice it to say that I posted message number 55 here, so been around for a while! Wrote this letter when I was setting up clusterheadaches.co.uk, the precursor to ouch(UK).

I have given this letter (or the original UK English version of it!!) to my employer for the first time in the last year, and was gratified that it made a difference - my boss has been very understanding.

As I've said before, I'm thrilled if people want to use it, and feel free to edit out bits that you're uncomfortable with - all I ask is that you keep my name on it somewhere - just a little conceit on my part to make me feel that I have made a difference!

Simon (aka Dolly!)

Baa

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rustystp

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Re: Letter to Employers & Colleagues
Reply #83 - Sep 20^th, 2012 at 9:13pm

What a great letter. My wife just read. She has seen a full attach of mine and has cant believe sometimes how I make it to work every day. I have 3-4 attcks a day two of which I am at work for. And I just got proper meds as dr thought it was a sinus infection. But MRI and Catscan ruled that out. Thank god for Nero

I am learning alot from this site. Soo glad I found it.. Thank you all

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Sledge007 CH.com Newbie Offline @RknRollaAyatola Posts: 18 Calgary Alberta Gender:	Re: Letter to Employers & Colleagues Reply #84 - Mar 21^st, 2013 at 11:40am Thank you Simon for writing this letter. I have a hard time explaining myself to others and this, very bluntly, puts it out there in black and white.
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