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Any Fellow Cluster Sufferers in NYC? (Read 7950 times)
JohnMcCloy
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Any Fellow Cluster Sufferers in NYC?
Jul 18th, 2007 at 10:26pm
 
Interested in getting together for a drink and chatting over experiences with someone who understand they are not Migraines lol
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mrjjmac222  
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birdman
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #1 - Jul 23rd, 2007 at 1:37pm
 
Would like to finally meet a real live fellow CH'er.  I am in Staten Island but work in Brooklyn.
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birdman
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #2 - Jul 30th, 2007 at 11:52am
 
Cricket, cricket....
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E-Double
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #3 - Aug 16th, 2007 at 8:44pm
 
I don't know how I missed this!

There are several of us
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I can't believe that I have to bang my Head against this wall again. But the blows they have just a little more Space in-between them. Gonna take a breath and try again.
Edoubleitk Edoubleitk1  
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queenofdemons
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #4 - Sep 10th, 2007 at 12:18pm
 
I live in NYC and I am a suffer... also new to this thingy. Smiley Tongue
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njakob
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #5 - Apr 5th, 2008 at 2:37am
 
I live in Manhattan and was diagnosed with chronic cluster headaches three years ago. I would love to meet for coffee with other suffers.
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debOUCH
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #6 - Apr 7th, 2008 at 8:19pm
 
i live on long island...............but love nyc!!! problem could be with people and work hours.....................let me know if anything comes of this....................deb
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Deb Piscitelli Powers winelova50  
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beachmusic
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #7 - Apr 7th, 2008 at 8:26pm
 
aww, I am in VA and I am jealous Cry Cry
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debOUCH
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #8 - Apr 11th, 2008 at 7:30pm
 
don't b jealous gf!!!! u can take a quick trip down!!! i"ll supply the vino!!!!! ;Grin
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Deb Piscitelli Powers winelova50  
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beachmusic
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #9 - Apr 11th, 2008 at 9:41pm
 
hey sweetie that is UP, but I will try  Wink Wink
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debOUCH
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #10 - Apr 11th, 2008 at 10:00pm
 
WTF is UP?????????????? LMAO
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Deb Piscitelli Powers winelova50  
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habanero
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #11 - May 18th, 2008 at 10:48am
 
hello folks

i am a colleague from europe.
had 2 attacks per day for 2 weeks now.
had it since -94
anyway, i'm coming to nyc on the 11th of july and will be flying for the first time during active headacheperiod.

any experiences on that?
i'm taking sumatriptan nasally when needed.
not that it helps a lot.

a beer or 4 with fellow sufferers would be cool too.
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chefjohn
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #12 - May 21st, 2008 at 1:09am
 
I live in new haven ct and can get into the city prety easily.  i work nights/weekends so during the weekdays is good for me.  don't know about any beers but some strong coffee would be nice.  looking forward to seeing some more posts.  could also meet in ct for any other chers up here   John

ps:  Pm me if interested
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johnfheine  
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LeLimey
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #13 - Jul 18th, 2008 at 11:17am
 
Watch this space!!

We're hoping to arrange a get together on August the 9th in NYC if people can make it

I'll post a new thread as soon as our dates are confirmed

Helen
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el-ny
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #14 - Oct 13th, 2008 at 11:40am
 
I know this post is old but Im another NYC cluster head. Brooklyn actually. If people meet up again in the future please contact me. Ill be up for it.
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debOUCH
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #15 - Nov 11th, 2008 at 10:30pm
 
i'm on long island, but i am there!!!!!!!!!!!!!!!!1 keep me informed if anything happens!
deb
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Deb Piscitelli Powers winelova50  
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Deborah C
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #16 - Feb 19th, 2009 at 2:18pm
 
Hi. I've been waiting for someone from N.Y. to chat with online or the phone. I live in Congers N.Y., right next to the Tappan Zee bridge.
I can get to NYC in 20 min. If anyone would like to get together, IM IN !!!!!
Im going to open my Email so if anyone would like to chat, please email me w/ph #, or e address.  I'll call you back if need be. I can call all over America, Etc. No charge.

Although this is a wonderful forum and I would B lost without it, there's something about talking on the phone that just makes it so much easier to communicate.

Deb, in New York  Smiley
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Terrence134
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #17 - Jun 8th, 2009 at 1:36pm
 
Queens, NY CH sufferer here, is anybody out there?  Cry
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Terrence134
 
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LeLimey
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #18 - Jun 8th, 2009 at 7:46pm
 
H Terrance it's nice to meet you. There are a lot of New Yorkers on the boards and I even get to NY occasionally! I've stayed in Bellerose each time but have gone through Jamiaca on the LI trains so know where you are! Come and post on the general board or on the Getting to know you board and chat a while, hopefully we can arrange a get together this summer maybe.

Hang in there, you are so NOT alone with this
Helen
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E-Double
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #19 - Jun 8th, 2009 at 10:41pm
 
Right on....who needs a pick me up?
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I can't believe that I have to bang my Head against this wall again. But the blows they have just a little more Space in-between them. Gonna take a breath and try again.
Edoubleitk Edoubleitk1  
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marlinsfan
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #20 - Jun 10th, 2009 at 1:13pm
 
I work in downtown (next to the WTC) and live in NJ. Been here one and a half years, it's about time I met some of you!
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anthony g
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #21 - Dec 28th, 2009 at 7:04am
 
hey man
i live in manhattan and suffer from ch! would be cool to hear from u and share man
anthony
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thumpandbabe
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #22 - Oct 19th, 2010 at 7:57pm
 
My husband is a chronic every sufferer for the last year or so.  Living and working in Manhattan.  I would love him to get together with a fellow sufferer to discuss.  He is at his wits end!
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #23 - Oct 19th, 2010 at 8:00pm
 
My husband is a chronic every day sufferer for the last year or so.  Living and working in Manhattan.  I would love for him to get together with a fellow sufferer to discuss.  He is at his wits end!
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Shuli
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Re: Any Fellow Cluster Sufferers in NYC?
Reply #24 - Oct 30th, 2010 at 9:13pm
 
I'm new to the site and live in NYC - would love to get together with fellow warriors and talk (and laugh about our collective suffering!)

Let's get a meeting going!
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