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IT REALLY WORKS (Read 15750 times)
clusterhell
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IT REALLY WORKS
May 26th, 2008 at 12:54pm
 
I've suffered from these evil cluster headaches for over 7 years now.  I've been to the doctor many times and because I'm a truck driver I cannot take some of the medication that would help.  So basicly I've had to use bottles and bottles of ibuprofin for my headaches.  The problem though is that I get reoccuring ulcers and ibuprofin when taken for days stops being effective.  enough of my story.  I saw a talk show where the guy that created "sinus buster" told his story of having clusters.  this stuff is made from Capsicum which is the main ingredient in hot peppers.  I ordered a bottle from his website and got it 2 days ago.  It actually works and does so within 5 minutes.  It's a nasal spray and it does burn but not as bad as you would think. A small price to pay when you feel like your eye is going to pop out of your head.  you guys know what i'm talkin about.  My headaches occur above my right eye so I sniff it up my right nostril.  I burns moderately for about 30 seconds.  Once the initial burns subsides I sniff another dose as far back as I can which is not far because of the burn.  But immediatley after the second sniff the burning begins go away I guess because of the Eucalyptol, peppermint numbs the area a bit.  Within 2 minutes after taking the first does my nasal passage opens up and I'd say 50-60 percent of the headache pain goes away.  I take one more dose up my nostril and this time you are able sniff much farther back because it doesn't burn very much at all and your nasal cavity is opened up more.  Within 30 seconds my headache is completely gone and stays gone for at least 3 hours.  I get chronic cluster headaches that last all day sometimes so for you luckier people 3 sniffs from this stuff would last all day or until your next one.  The stuff is called Sinus Buster "headache formula."  It really does work and now I don't wait 45 agonizing minutes for my Ibuprofin to kick in.
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Redd
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Re: IT REALLY WORKS
Reply #1 - May 26th, 2008 at 1:02pm
 
Here we go again...
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clusterhell
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Re: IT REALLY WORKS
Reply #2 - May 26th, 2008 at 1:05pm
 
Redd wrote on May 26th, 2008 at 1:02pm:
Here we go again...


I'm being serious
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DennisM1045
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Re: IT REALLY WORKS
Reply #3 - May 26th, 2008 at 1:23pm
 
Hi Clusterhell,

I'm glad to hear SinusBuster works for your pain.  However no one around here has found relief for their cluster attacks from it.  Many have tried.

Search around.  The threads are easy enough to find.

-Dennis-
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Where there is Oxygen, you must use proper caution.
So be safe, don't smoke while using O2. Kill the pain and not yourself.
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clusterhell
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Re: IT REALLY WORKS
Reply #4 - May 26th, 2008 at 1:28pm
 
DennisM1045 wrote on May 26th, 2008 at 1:23pm:
Hi Clusterhell,

I'm glad to hear SinusBuster works for your pain.  However no one around here has found relief for their cluster attacks from it.  Many have tried.

Search around.  The threads are easy enough to find.

-Dennis-


thats what I did after the first post stated "here we go again" and I found nothing about sinus buster or the ingredients.  thats quite amazing to here because my headaches are extremely painful.  So I would think it would have to work for some.  I'm in utter amazment how well it works so maybe it's really God helping my pain.  It could be the way people are doing it.  I wait a bit before sniff additional doses because when i first tried it by sniffing 3 doses at once it burned too much for me to get it all the way up my nose.
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BMoneeTheMoneeMan
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Re: IT REALLY WORKS
Reply #5 - May 26th, 2008 at 1:29pm
 
I hear ya.  Waiting 45 minutes for the advil to kick in SUCKS!!!!!!

U think eating a taco with hot sauce on it would help too?
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clusterhell
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Re: IT REALLY WORKS
Reply #6 - May 26th, 2008 at 1:33pm
 
BMoneeTheMoneeMan wrote on May 26th, 2008 at 1:29pm:
I hear ya.  Waiting 45 minutes for the advil to kick in SUCKS!!!!!!

U think eating a taco with hot sauce on it would help too?


I put frozen water bottles on my eye in hopes that my eye ball will freeze and thus my pain might go away.  maybe next time i'll try snorting a habanero pepper
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nani
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Re: IT REALLY WORKS
Reply #7 - May 26th, 2008 at 1:36pm
 
I think you'd have even better luck with proven CH treatments, like oxygen, or triptans.
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Re: IT REALLY WORKS
Reply #8 - May 26th, 2008 at 1:46pm
 
Oleocapsium is showing a lot of promise as a pain reliever. There are ongoing studies trying to  figure out exactly how it interacts with the brains chemicals to block pain. They are doing knee surgeries without any pain killers, after the anesthesia wears off, by packing the knee joint with one of the extracts of oleocapsium.

That being said, we haven't seen much success with the sinus buster treatment. When someone comes to the board, and their first post upon meeting us all is a testimonial to sinusbuster, our first thought is another salesperson. We get a lot of those here offering berries from the congo, mangosteen juice from who knows where, all offering instant relief to our CH pain. We are mean to them and we chase them away.

If you are truly a CH sufferer, and have found relief using sinusbuster, stick with it. I'm one of those who believes that in the future, this pepper spray will prove to be something beneficial, just not in it's current form! Do stay around and let us know whether or not it's effective long term. Wishing you luck and some pain free time.

Guiseppi
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DennisM1045
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Re: IT REALLY WORKS
Reply #9 - May 26th, 2008 at 1:54pm
 
clusterhell wrote on May 26th, 2008 at 1:28pm:
DennisM1045 wrote on May 26th, 2008 at 1:23pm:
Hi Clusterhell,

I'm glad to hear SinusBuster works for your pain.  However no one around here has found relief for their cluster attacks from it.  Many have tried.

Search around.  The threads are easy enough to find.

-Dennis-


thats what I did after the first post stated "here we go again" and I found nothing about sinus buster or the ingredients.  

Here is a pretty typical example.

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-Dennis-
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Where there is life, there is hope.
Where there is Oxygen, you must use proper caution.
So be safe, don't smoke while using O2. Kill the pain and not yourself.
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LeLimey
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Re: IT REALLY WORKS
Reply #10 - May 26th, 2008 at 2:07pm
 
What actual medical remedies have you tried? And what can't you use owing to your profession? I can't think of a single prescribable cluster med that I've tried which has prevented me driving. Hopefully we can give you some help here!
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Re: IT REALLY WORKS
Reply #11 - May 26th, 2008 at 2:08pm
 
Help from God and Sinus Buster. This really sounds familiar.
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clusterhell
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Re: IT REALLY WORKS
Reply #12 - May 26th, 2008 at 2:17pm
 
Quote:
What actual medical remedies have you tried? And what can't you use owing to your profession? I can't think of a single prescribable cluster med that I've tried which has prevented me driving. Hopefully we can give you some help here!


deprakote, lithium and such are not DOT aproved for driving commercial motor vehicles.  For right right now Sinus Buster is working despite all the odds.
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clusterhell
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Re: IT REALLY WORKS
Reply #13 - May 26th, 2008 at 2:22pm
 
DennisM1045 wrote on May 26th, 2008 at 1:54pm:
clusterhell wrote on May 26th, 2008 at 1:28pm:
[quote author=725358585F457B07060203360 link=1211820885/0#3 date=1211822611]Hi Clusterhell,

I'm glad to hear SinusBuster works for your pain.  However no one around here has found relief for their cluster attacks from it.  Many have tried.

Search around.  The threads are easy enough to find.

-Dennis-


thats what I did after the first post stated "here we go again" and I found nothing about sinus buster or the ingredients.  

Here is a pretty typical example.

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

-Dennis-
[/quote

doesn't sound so bad
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clusterhell
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Re: IT REALLY WORKS
Reply #14 - May 26th, 2008 at 2:26pm
 
Guiseppi wrote on May 26th, 2008 at 1:46pm:
Oleocapsium is showing a lot of promise as a pain reliever. There are ongoing studies trying to  figure out exactly how it interacts with the brains chemicals to block pain. They are doing knee surgeries without any pain killers, after the anesthesia wears off, by packing the knee joint with one of the extracts of oleocapsium.

That being said, we haven't seen much success with the sinus buster treatment. When someone comes to the board, and their first post upon meeting us all is a testimonial to sinusbuster, our first thought is another salesperson. We get a lot of those here offering berries from the congo, mangosteen juice from who knows where, all offering instant relief to our CH pain. We are mean to them and we chase them away.

If you are truly a CH sufferer, and have found relief using sinusbuster, stick with it. I'm one of those who believes that in the future, this pepper spray will prove to be something beneficial, just not in it's current form! Do stay around and let us know whether or not it's effective long term. Wishing you luck and some pain free time.

Guiseppi

didn't mean to sound like a sales pitch, i'm just happy right now that something is working
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LeLimey
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Re: IT REALLY WORKS
Reply #15 - May 26th, 2008 at 2:30pm
 
Depakote and Lithium are both not first choices.

The normal first line preventative is verapamil and I see no mention of abortives. Sinus buster will NOT prevent attacks, at most it could be termed an abortive, acting on a hit and not the cycle (although I have to be honest and say no one I know of here, bar new posters, have ever had "success" with it)

Abortives are medications such as triptans or O2 for example. What if any of those have you tried? All are prefectly safe for driving.

We have many people here who drive daily, we have many who drive for a living. It is possible with proper meds and I have to add as well that if you think ibuprofen is rotting your stomach, what do you think the sinus buster will do to the parts it can reach?!!

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clusterhell
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Re: IT REALLY WORKS
Reply #16 - May 26th, 2008 at 2:34pm
 
Quote:
Depakote and Lithium are both not first choices.

The normal first line preventative is verapamil and I see no mention of abortives. Sinus buster will NOT prevent attacks, at most it could be termed an abortive, acting on a hit and not the cycle (although I have to be honest and say no one I know of here, bar new posters, have ever had "success" with it)

Abortives are medications such as triptans or O2 for example. What if any of those have you tried? All are prefectly safe for driving.

We have many people here who drive daily, we have many who drive for a living. It is possible with proper meds and I have to add as well that if you think ibuprofen is rotting your stomach, what do you think the sinus buster will do to the parts it can reach?!!



are you suggesting that sinus buster is going to bust more than my headaches? do you need a prescription for verapamil?
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LeLimey
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Re: IT REALLY WORKS
Reply #17 - May 26th, 2008 at 2:43pm
 
LOL I meant it will be corrosive thats all! Yes you do need a prescription for verapamil but it's a very ceap drug, it's not one of the hugely expensive ones.

Let's go back to basics though first and start again because I want to ask some more basic questions if thats okay with you? It will help with the advice we can give.

Also, please bear with us, the board has changed format today and we're all adjusting to the new functions so bear with is!

Right where was I?

I saw you have suffered for seven years. Atre you chronic or episodic? Are you aware of the difference? Please don't be offended at my questions, I'm not patronising you, I want to help as best I can.

If you are episodic how long do your cycles last?
How may attacks a day/week do you have on average?
How long do they last?
Do you have them more during the day or at night?

I know it seems like I am a nosey old bat (that's cos I am!) but it all influences the things that are the best options for you.

Hang in there!

Helen
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clusterhell
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Re: IT REALLY WORKS
Reply #18 - May 26th, 2008 at 2:49pm
 
well I believe i'm more chronic than episodic because I rarely go a week or two between cluster periods.  the cluster periods last typically two to three weeks and during these periods my headaches can last all day and night ranging in severity.  literally two weeks on and one to two weeks off.  not much of a break but technically episodic.  during the periods I get them every day at the same time.  sometimes the clusters occur at night at bedtime and additionally when I wake.  in between cluster periods they still occur but not every day.
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« Last Edit: May 26th, 2008 at 2:56pm by clusterhell »  
 
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LeLimey
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Re: IT REALLY WORKS
Reply #19 - May 26th, 2008 at 3:01pm
 
okay I'm getting allsorts of warning bells here now.

From what you have said, it sounds more like hemicrania continua than cluster headaches.

Did you get diagnosed by a headache specialist neuroogist? The reason I ask is that there are over 600 headache types with many, many over-lapping symptoms. It really does take an expert to diagnose and not a family GP or a neuro who's speciality is anything other than HA's.

I am NO specialist and I'm not presuming to diagnose. Merely to hopefully help with info you can discuss with your doctor.

Hemicrania Continua is a constant headache (bad) with spikes of greater intensity which closely resemble cluster headaches in description.

CH tends to be an attack which lasts usually, up to two hours without treatment. We can have what we call "shadows" but we don't describe them as an all day attack, hence my thoughts re Hemicrania Continua. You're ticking alot of boxes for that one.

One thing about hemicrania continua which is good is that it's very responsive to a drug called Indomethacin which is an nsaid. Although it's prescribable and not OTC it's very cheap. You should take it with something to protect your stomach though.

It's worth a try, at worst, you dont have HC and it won't help. At best, you have found your magic bullet.

The best bit is, within a couple of weeks it should be blocking the vast majority, if not all of your attacks so hopefully, it's worth a try!

Let us know how you get on regardless or also, any other symptoms or concerns you have.

We WILL try to help!!

Helen
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clusterhell
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Re: IT REALLY WORKS
Reply #20 - May 26th, 2008 at 3:11pm
 
well from what I understand one of the tell tale signs of cluster headaches has to do with these on/off time periods and also that they reoccur at the same time daily/nightly for the cluster period.  It was a doctor that first diagnosed me but also my own research.  what is odd to me is that the frequency and severity of my headaches is ever changing.  When I first started getting these headaches they did seem to be triggered by Spring/Fall and not so much during the Summer/Winter.  But there has been a progression into a much more frequent headache.  I think I started episodic and with a shift toward chronic.
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LeLimey
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Re: IT REALLY WORKS
Reply #21 - May 26th, 2008 at 3:20pm
 
I'm not saying I'm right, you're wrong or anything else - just trying to help with other suggestions. These are all types of headaches from a group called TACS, Trigeminal Autonomic Cephalalgias. Symptoms do cross as they are all so similar and one of the most insidious things is how they do morph.

However, we CAN use this to our advantage in that while meds that previously worked now don't the reverse can also be true. Never be afraid or too cynical to re try a med. Your receptiveness could just have changed along with your pattern. We are all learning all the time, us patients right the way up to the "experts"

Only fools think they know it all!

My advice is to read, read, read and read some more.

Join OUCH, there is a wealth of info there too.

Read all the old threads (not in one go!) on here and ask questions as often as you want. The golden rule applies, if you want to know something, chances are that someone who WON'T ask will too!

Wishing you pain free time

Helen


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« Last Edit: May 26th, 2008 at 3:21pm by N/A »  
 
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Re: IT REALLY WORKS
Reply #22 - May 26th, 2008 at 3:28pm
 
I drove commercially for several years while using Verap and Lithium in combination.  DOT does not proscribe Lithium.

Sinus Buster works on the principle that the brain cannot recognize two overarching pains at one time, hence the pepper burn will overshadow the CH until the brain does not recognize it.  At least, that is my laymen's understanding of what I believe to be a worthless product developed to take advantage of our desperation.

Jerry
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Re: IT REALLY WORKS
Reply #23 - May 26th, 2008 at 4:01pm
 
Callico wrote on May 26th, 2008 at 3:28pm:
I drove commercially for several years while using Verap and Lithium in combination.  DOT does not proscribe Lithium.

Sinus Buster works on the principle that the brain cannot recognize two overarching pains at one time, hence the pepper burn will overshadow the CH until the brain does not recognize it.  At least, that is my laymen's understanding of what I believe to be a worthless product developed to take advantage of our desperation.

Jerry

well i'm definitley gonna look into verapamil.  as far as the pepper tricking my brain thing I would agree with that except that for what ever reason when the pepper burns wears off my headache stays gone.  Am I the only one that this stuff is working for?
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Re: IT REALLY WORKS
Reply #24 - May 29th, 2008 at 7:52am
 
So inducing pain to myself I'll get relief from my CH? As I said in one of my first posts, I was in so much pain from my beast, that I got myself to breaking a finger, which didn't do much, but to silence the headache for 6 seconds.

Also, someone said something about a kneecap surgery. They do not stand a chance against the CH pain. I've been shot, didn't hurt that much. I had a doctor pull out a nail from my shoulder (it was deep inside the bone itself) with no anastethic whatsoever - doesn't hurt that much.

I don't think that sniffing peppers will make me feel good. I love my triptans, my Red Bulls and a strong, black coffee in the morning. Soon I'll love my O2 NRB set.
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