Click this link to read a post I like on the clusterheadaches.com message board...

artonio7

Ex Member

Re: Pulling for Tony
May 26^th, 2008 at 1:16pm

BREW:
So, Tony - Is this little device making life easier? A little more enjoyable? We need news.

End quote.

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Thanks for asking Bill...

I noticed a difference almost immediately. The experience was not at all traumatic nor painful. I don't know if it's a matter of pain tolerance but when asked if I wanted anything for pain in the hospital... I really saw no point in it. The nurses seemed a little amused and perplexed. I mean really... I've had KIP 3's that were more painful than this. I also hate taking any type of medication.

Preparation for surgery was actually more painful.... my prep nurse (god love her) needs to go back to school for retraining. If you've ever met me in person and noticed my arms you would have seen that I have freakishly HUGE veins. For some reason this poor nurse just couldn't seem to grab one with the IV needle. She blew out 4 veins on two arms. Finally she gave up trying (Thank God) and had another nurse come in to do it, two, painless successful attempts.

The day after arriving home I felt better than I have in years. So, taking care not to use my left arm, I did laundry, vacuumed, washed the floors, cleaned some windows and cooked dinner for Ben and myself, then my niece and nephew stopped by to pick up a wedding video I edited for their business.

The next day... I worked out in the yard, weeding a bit and I mowed the grass. Well, that was pushing it a bit, I eventually felt like I was hit by a freight train, the rest of the day I had to lay around.

I do notice that I don't get winded like I used to. My energy level and endurance is greatly improved and I haven't nearly fainted yet. The wound is beginning to heal nicely, I gauge this by the amount of itching... It is a bit of a pain not to be able to sleep on my left side and I do notice a pain in my shoulder... but I was kind of expecting that.

with warm regards,
Tony

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« Last Edit: May 26^th, 2008 at 1:18pm by N/A »

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BMoneeTheMoneeMan CH.com Alumnus Offline In remembrance of KingCazman. RIP Posts: 2674 Portland, OR	Re: Pulling for Tony Reply #1 - May 26^th, 2008 at 1:25pm Thats great Tony. Glad to hear it went well.
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LeLimey Ex Member	Re: Pulling for Tony Reply #2 - May 26^th, 2008 at 1:40pm I'm glad to hear it's all going so well Tony!
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Pulling for Tony Reply #3 - May 26^th, 2008 at 1:50pm Thank for the update Tony, you'll remain in our families prayer chain! Guiseppi
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DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: Pulling for Tony Reply #4 - May 26^th, 2008 at 1:58pm Great news Tony! Thanks for taking the time to let us know. -Dennis-
Back to top	Where there is life, there is hope. Where there is Oxygen, you must use proper caution. So be safe, don't smoke while using O2. Kill the pain and not yourself. IP Logged

mummymac CH.com Alumnus Offline Kissed Donny Osmond and proud of it Posts: 943 Jersey\|United_Kingdom\|europe Gender:	Re: Pulling for Tony Reply #5 - May 26^th, 2008 at 2:24pm Tony that is really good news. remember not to push it to hard, any surgery needs time to recover from
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Jonny Ex Member	Re: Pulling for Tony Reply #6 - May 26^th, 2008 at 6:38pm Thats great news, brother!!!
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alchemy CH.com Alumnus Offline get out of my head Posts: 1661 x1\|Phoenix\|USA\|usa\|122\|228\|AZ,Arizona Gender:	Re: Pulling for Tony Reply #7 - May 26^th, 2008 at 6:55pm glad to hear eveything is working otu well
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Grandma_Sweet_Boy CH.com Alumnus Offline What Goes Around Comes Around! Posts: 4496 Georgetown,Ontario Gender:	Re: Pulling for Tony Reply #8 - May 26^th, 2008 at 7:00pm That's great news, Tony - but don't be overdoing it - leave a little somethin' for Ben to do. Hugs Carol
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Brew Ex Member	Re: Pulling for Tony Reply #9 - May 26^th, 2008 at 7:44pm Glad to hear it, Tony! Rock on!
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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: Pulling for Tony Reply #10 - May 26^th, 2008 at 7:47pm Good News, Sweetie.......Just remember, it hasn't been that long so take it a little easy for the next few days....OK Much Love, Jackie
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DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: Pulling for Tony Reply #11 - May 26^th, 2008 at 7:54pm Ok, I gotta get this off my chest. When Chuck first posted a thread "Pulling for Tony" I was almost afraid to open it. There... Now I feel better. -Dennis-
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andrewjb CH.com Hall of Famer Offline when the love of power becomes the power of love ! Posts: 1612 x1\|london\|England\|europe\|185\|238\| Gender:	Re: Pulling for Tony Reply #12 - May 26^th, 2008 at 7:58pm , good news tony, light excercise has got to be the way to go. andrew.
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Brew Ex Member	Re: Pulling for Tony Reply #13 - May 26^th, 2008 at 8:01pm DennisM1045 wrote on May 26^th, 2008 at 7:54pm: Ok, I gotta get this off my chest. When Chuck first posted a thread "Pulling for Tony" I was almost afraid to open it. There... Now I feel better. -Dennis- I think I just threw up in my mouth a little.
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bluenz CH.com Junior Offline Do what you love, Love what you do... Posts: 25 x0\|auckland\|New_Zealand\|\|0\|0\| Gender:	Re: Pulling for Tony Reply #14 - May 26^th, 2008 at 8:13pm all good thoughts your way.
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Peppermint CH.com Alumnus Offline Work it out baby! Posts: 2908 New York\|USA Gender:	Re: Pulling for Tony Reply #15 - May 26^th, 2008 at 8:56pm DennisM1045 wrote on May 26^th, 2008 at 7:54pm: Ok, I gotta get this off my chest. When Chuck first posted a thread "Pulling for Tony" I was almost afraid to open it. There... Now I feel better. -Dennis- See.. at least you ADMITTED you were having those thoughts. Glad you're doing so well Tony, just great! Pepp
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Batch CH.com Alumnus Offline Control The Beast With O2 & D3 You Must Posts: 3704 Bremerton, WA Gender:	Re: Pulling for Tony Reply #16 - May 26^th, 2008 at 9:29pm Tony, Thanks for the update... Now that you have dial-a-beat rate, how do you change the pace, or is this one of the ultra fancy units that adjusts automatically? How do it work? Take care Bro, V/R, Batch
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DennisM1045

CH.com Alumnus

Offline

One wave at a time!

Posts: 3437
Haverhill, Massachusetts, USA
Gender: male

Re: Pulling for Tony
Reply #17 - May 26^th, 2008 at 9:37pm

Peppermint wrote on May 26^th, 2008 at 8:56pm:

DennisM1045 wrote on May 26^th, 2008 at 7:54pm:

Ok, I gotta get this off my chest.

When Chuck first posted a thread "Pulling for Tony" I was almost afraid to open it.

There... Now I feel better. Smiley

-Dennis-

See.. at least you ADMITTED you were having those thoughts.
Smiley

Glad you're doing so well Tony, just great!

Pepp

Just wary after opening one of Chucks Friday posts early on as a newbie. Shocked

-Dennis-

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Where there is life, there is hope.
Where there is Oxygen, you must use proper caution.
So be safe, don't smoke while using O2. Kill the pain and not yourself.

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artonio7

Ex Member

Re: Pulling for Tony
Reply #18 - May 26^th, 2008 at 10:53pm

Batch wrote on May 26^th, 2008 at 9:29pm:

Tony,

Thanks for the update... Now that you have dial-a-beat rate, how do you change the pace, or is this one of the ultra fancy units that adjusts automatically?

How do it work?

Take care Bro,

V/R, Batch

I was implanted with The St. Jude Zephyr XL DR Model 5826

Dual-chamber, rate-responsive pacemaker

44 x 52 x 6 mm, 23.5 g, 11 cc

It has a estimated life expectancy of 13 years.

Here's a brochure if you're interested. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

As I was telling Chuck on the phone earlier today... "Run, don't walk to your nearest cardiologist and "DEMAND" a pacemaker.... LOL I've forgotten what it feels like to not be so tired all the time... a few friends stopped by to visit the other day and said that I actually appear to look healthier.

So far it seems to be working fairly well... I go in for my first check-up on June 5th... They'll do a routine pacer and incision check.

I'm almost afraid to say anything for fear of jinxing myself but... I've not even had a shadow since the day after my surgery. I'm kind of hoping that by some bizarre twist that this has somehow affected my chronic status.

....again... all of you... thank you so very much for all of your prayers and good wishes... I'm sure they had much to do with the good outcome.

with warm regards,
Tony

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« Last Edit: May 26^th, 2008 at 10:54pm by N/A »

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Jimi CH.com Moderator CH.com Alumnus Offline Don't feed the moderators Posts: 4925 Madisonville, KY Gender:	Re: Pulling for Tony Reply #19 - May 26^th, 2008 at 11:43pm Boy, wouldn't that be great if it stopped the clusters as well as making you feel better already. Good news Tony!
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BarbaraD CH.com Alumnus Offline Hugs to ya Posts: 8333 Douglasville, TX Gender:	Re: Pulling for Tony Reply #20 - May 27^th, 2008 at 4:09pm tony,' this is great news.... fingers are crossed that this will END your CH... then you can just be a supporter (and you're great at that). Hugs BD
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artonio7

Ex Member

Re: Pulling for Tony
Reply #21 - May 27^th, 2008 at 7:57pm

LOL Barb...oops... looks like I jinxed myself... LOL... I got nailed today at 1:30... Oh well, we can hope can't we?

Today I was feeling some unusual pressure in the middle of my chest so I called my surgeon and he wants to see me tomorrow at 8 AM... It isn't the type of pain that makes me double over in pain... and it's not at the location of the pacemaker... this is a dull tightening/throbbing pain that shows up for no rhyme or reason in the middle of my chest.

Since I've never felt that before and since I've never experienced getting a pacemaker before... I figured better safe than sorry...

I'll let you know what the doc says tomorrow.

with warm regards,
Tony

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« Last Edit: May 27^th, 2008 at 7:58pm by N/A »

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LeLimey Ex Member	Re: Pulling for Tony Reply #22 - May 27^th, 2008 at 7:59pm Fingers crossed Tony - let us know asap won't you? lots and lots and tons of love Helen xxx
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George CH.com Moderator CH.com Alumnus Offline Black-Billed Magpie Posts: 8126 Boise, Idaho USA Gender:	Re: Pulling for Tony Reply #23 - May 27^th, 2008 at 8:03pm Good to hear that you're doing well, Tony. Sounds as if it's going to make a very positive change in your life. Best wishes, George
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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: Pulling for Tony Reply #24 - May 27^th, 2008 at 8:11pm Please, Tony....let us know after you see the doctor. Glad you're going...better to be safe. Much Love, Jackie
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