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A trip to the ER (Read 2134 times)
wildhaus
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Wildhaus|Switzerland
Gender: male
A trip to the ER
May 28th, 2008 at 3:15pm
 
I had to pay a visit to the ER, not for a CH related issue,
for an eye case, as I was in the ER I got lucky and
an attack pays me a visit. And that is when things turn
interesting……

The team knows about CH, (which is nice to know)
but most of them have never seen a “real” CH’er, with
“papers”, just the ones that think they have CH.

I asked if they have O2, which they do, do they have a
regulator of 15lt./min, well yes but what do I need it for?
for the O2 took a few minutes and they got one….. now
can I have a mask? yes no problem - just the wrong one!
so pragmatically I tore of the the “funny” mask and just
used the hose, and “hit” on a  “Zomig”, the funny part
was I became an “observation” object, sort of a rare bird
that one gets to see once in a life time, I found it sort of
amusing.
There were some more "interesting" anecdotes, but this will
turn into a way to long of a post.

And what I came in for became secondary….. which
angered, me needles to say….. but got taken care of later.

and I got to explain what CHers need and showed them
CH.com and all the nice info. that they can find on it,
as well as the link to “OUCH” and a link to  the
O2 doc. as well as the link to CB, and CK Wissen in
Germany

Michael

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Agostino Leyre
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"Hit like a phillips head
into my brain."


Posts: 3803
Madison WI USA
Gender: male
Re: A trip to the ER
Reply #1 - May 28th, 2008 at 3:31pm
 
Well, I think it's always great when we get a real chance to educate those in the medical field.  I remember serveral years ago I got hit a my nuero's office.  The reactions were not quite what I expected.
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Triptans cause increased number of hits and increased intensity.  Learn it, believe it, live it.  I use triptans as the absolute LAST RESORT when treating my CH.&&
 
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Mosaicwench
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Posts: 3507
Near Milwaukee WI, USA
Gender: female
Re: A trip to the ER
Reply #2 - May 28th, 2008 at 4:14pm
 
It's kinda like taking your car to the mechanic because it's making "that noise" but "that noise" disappears when you enter the garage. 

At least you can say "SEE?  THIS IS WHAT I'M DEALING WITH!"
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Batch
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Control The Beast With
O2 & D3 You Must


Posts: 3704
Bremerton, WA
Gender: male
Re: A trip to the ER
Reply #3 - May 29th, 2008 at 12:01pm
 
Michael,

What a fascinating series of events.  Even for an old hand at cluster headaches like you, having an attack turn into the center of attention with the medical staff in stead of your eye problem must have been a bit frustrating.  Having said that, I’m guessing you gave them far more in first hand observations on the use of oxygen therapy as an abortive for an acute cluster headache attack than they gave you in treatment for your eye.

I do hope the eye is better.  I also hope the doctors recognized the valuable learning opportunity you provided and that they add the proper oxygen therapy procedures to their ER list of SOPs so that when the next cluster headache sufferer presents in the ER with an acute attack, he or she gets treated promptly and properly.

Take care,

V/R, Batch

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You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there
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Melissa
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Don't give up!


Posts: 7238
Central WI, USA
Gender: female
Re: A trip to the ER
Reply #4 - May 29th, 2008 at 3:48pm
 
Wow Michael.  I can honestly say that I don't envy you, that's for sure.

You are a very patient soul.  Good on you though for educating the medical community there!

I do hope your eye is doing better now.

hugs,
Smileymel
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Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way.  ~Bernie S. Siegel
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ClusterChuck
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The BEAST rises again,
and again, and again,
and .


Posts: 5394
Greenville, North Carolina
Gender: male
Re: A trip to the ER
Reply #5 - May 29th, 2008 at 5:08pm
 
wildhaus wrote on May 28th, 2008 at 3:15pm:
I was in the ER I got lucky and
an attack pays me a visit. And that is when things turn
interesting……

Been there ...
Done that ...
Have the tee-shirt!



wildhaus wrote on May 28th, 2008 at 3:15pm:
I became an “observation” object, sort of a rare bird that one gets to see once in a life time, I found it sort of
amusing.

Yes, it can be amusing, but also frustrating, when they ignore you 'cuz you ain't ed-a-ma-kated enuff to teach them, the elite!

wildhaus wrote on May 28th, 2008 at 3:15pm:
I got to explain what CHers need and showed them
CH.com and all the nice info. that they can find on it,
as well as the link to “OUCH”

It is GREAT when they are willing to learn, but pisses me off when the next time you are in, for whatever reason, you have to go through the whole song and dance AGAIN ...

I can't remember the last time I wasted time, by going to the ER for a cluster hit, but have been there MANY times for other problems.  And, YUP, I always manage to let the beast show his stuff, at least once, while there ...

I feel for you, Michael!

Chuck
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CAUTION:  Do NOT smoke when using or around oxygen.  Oxygen can permeate your clothing or bedding.  Wait, before lighting cigarette or flame.  

Keep fire extinguisher available, and charged.
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Charlie
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Happy to be here


Posts: 18971
Jamestown, NY
Gender: male
Re: A trip to the ER
Reply #6 - May 29th, 2008 at 5:11pm
 
The staff at your ER is lucky....even if you are not....to have run into you or perhaps you over them. Nice going Michael


Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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