Hi all

Been lurking for a few weeks now and have decided the time is right to join up, say hello and make a donation to the site!

I am a 34 year old single mum to two boys who lives in the UK.

Been suffering for 17 years with "headaches" which had been diagnosed until recently as migraine.  I have always questioned the diagnosis due to not having any sickness/vomiting, auras etc nor have I ever had any success whatsoever with what seems hundreds of different preventers, painkillers or anything else which the doctors threw at me.  

All except Imigran injections, they were the only thing to relieve the pain but the doctors stopped those because I was using too many.

Eventually I just didn't bother going to the doctors any more as they more or less just said get on with it.

I got pregnant at the end of 2005 and the headaches disappeared druing the pregnancy until my son was born and was about 6 weeks old.  Then they came back and were unbearable so I went to see my GP who referred me to the Neurologist.

Had MRI scan and was told I had a pineal cyst which was 19x13x11mm but wasn't the cause of the headaches, the Neuro was pretty horrible to be honest but the doctor just said let him do his thing and when he is finished we can always get a second opinion.  When I asked him if the cyst wasn't causing the headaches what was he replied "at least you know its nothing life threatening".  Really helpful.

A few weeks ago I was in so much pain I thought I was going to die and ended up at the NHS out of hours clinic who sent me to the out of hours GP who diagnosed Cluster Headaches?  My GP agreed and started me on Verapamil but wouldn't supply me O2 and after changing doctors twice I found a GP who has given me O2!

Got an appointment with another Neuro in July, hope this one is better than the last?

My symptoms were on the left side until a few weeks ago when I started getting feelings like they were going to start on the right! Then bang I had a hit on the right side along with a droopy red eye and a stuffy nose.

My symptoms on the left, excrutiating pain around my back molars, above my eye/eyebrow, under my eye/cheek, occasionally into my ear, corner of my eye/nose, the feeling like a poker has been stabbed through my eye into my head, feelings of pressure, along with a runny/stuffy nose, my eye goes red and sometimes waters but I have never seen or been told it droops?

On the right I get the feeling that one is going to start but it only actually has on a couple of occasions, my eye droops and goes red but doesn't run and my nose gets stuffy and also doesn't run.

I have O2, Imigran injections and am on Verapamil (80mg x 3).  Doctor won't increase Verapamil until I have seen the Neuro.

So thats where I am, sorry its so long!

Lisa
x

Make contact with this group at once! Solid organization which can help you.

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Hi again Lisa,

just thought - have you read this - told meso much about CH and the available remedies.

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regards & PF days,

Melvyn

hi

i am so sorry to hear that you are going through this without the support of a spouse and while raising your children. you have my complete empathy.
hope you get some useful advice on here to help you manage your pain.
take care