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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › Documentary called ''Clusterheads''.

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Documentary called ''Clusterheads''. (Read 1860 times)

maalstroom

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''Dance to my tune''....
the hell I will!

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Documentary called ''Clusterheads''.
Jun 28^th, 2008 at 10:21am

On Youtube I saw an excerpt from a documentary called ''Clusterheads'', which seemed pretty interesting to me. I was wondering if there is any place on the web I could see it in in it's entirety, as my own searching didn't come up with much results.
Has it been aired on TV or did it tour the festival circuit in the US? I am very curious about any info anyone could provide.

Thanx in advance!

...AND AS A FINISHING TOUCH, GOD CREATED THE DUTCH.

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ClusterChuck

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The BEAST rises again,
and again, and again,
and .

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Re: Documentary called ''Clusterheads''.
Reply #1 - Jun 28^th, 2008 at 12:48pm

The clip that I think you are referring to, was taken by Justin Ott, at our Nashville convention. Justin is a fellow sufferer, AND a movie producer, and cameraman. He is doing this, mostly with his own money, so it is taking time for him to get the whole thing completed.

He has some amazing film, already captured, but he still has a lot of work left to do on it. He WILL finish it, I am sure. But, till then, we have to wait.

Chuck

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cluster CH.com Old Timer Offline WaterX3 - It helps! Posts: 259 Cologne(Europe) Gender:	Re: Documentary called ''Clusterheads''. Reply #2 - Jul 1^st, 2008 at 9:46am Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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maalstroom

CH.com Old Timer

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''Dance to my tune''....
the hell I will!

Posts: 491
the Netherlands
Gender: male

Re: Documentary called ''Clusterheads''.
Reply #3 - Jul 6^th, 2008 at 11:33am

Thanx for the links.

I saw the vids and really feel for Terry Gordon, as he describes basically a permanent headache for years. Wish I could tell him how sorry I am how he missed his kid's moments, that must be hard on someone.

Also the guy called Chuck (that wouldn't be you now, would it ClusterChuck?) who has to suffer his hits without Imitrex due to his heart condition... he's a bigger man than I am for having himself taped during CH. Personally, I shy away from everyone for I hate to be so vulnerable in the presence of others.
Only my parents witnessed my hits when I was still living at home, and my gf Sonja is allowed to see them.

I think this Justin guy is doing something amazing for our community, and hope loads of people get to see it.

...AND AS A FINISHING TOUCH, GOD CREATED THE DUTCH.

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ClusterChuck

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The BEAST rises again,
and again, and again,
and .

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Greenville, North Carolina
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Re: Documentary called ''Clusterheads''.
Reply #4 - Jul 7^th, 2008 at 3:07am

maalstroom wrote on Jul 6^th, 2008 at 11:33am:

Also the guy called Chuck (that wouldn't be you now, would it ClusterChuck?)

GUILTY, as charged! LOL!

The interesting thing about that clip, and my time there in Nashville, and at every other convention since then, is that I allow people to see me, be near me, and even touch me, while I am getting hit. Something about being around those that actually know what you are dealing with, changes your feelings about your hits.

When I am out in the "real world", among "civilians", I hide away, and don't let anyone see me, while fighting the beast. And woe be to anyone that comes NEAR me, or heaven forbid, are stupid enough to touch me, while I am getting hit! I am NOT a very nice person at that point (contrary to my normal sweet lovable self that I am at ANY other time Wink

).

I have never allowed so many people to see me get hit, as I have at various conventions or local meet-n-greets. MANY fellow clusterheads have told me that I was the first one that they had ever seen get hit. It has had a profound effect on most clusterhead's life, to see that. (SEE?? I AM NOT totally worthless!)

Chuck

CAUTION: Do NOT smoke when using or around oxygen. Oxygen can permeate your clothing or bedding. Wait, before lighting cigarette or flame.

Keep fire extinguisher available, and charged.

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maalstroom

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''Dance to my tune''....
the hell I will!

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Re: Documentary called ''Clusterheads''.
Reply #5 - Jul 7^th, 2008 at 4:10pm

Lmao, I dig your sense of humour!
But I must applaude you, very brave at any rate. So, from me to you: three thumbs up (don't ask, I grew up near a chemical plant).
I've never met a fellow clusterhead so seeing this footage is very.....what's the word (remember, I'm not a native English speaker)? Sorry can't think of it.
But anyway, scenes like these show ya that you are not the only one who acts in a similar manner. Believe you me, CH is a very lonely affliction if you do not know any others. One day I will visit the US and attend a convention of you guys! Guess I'm part of Clusterville as well, and lovin' it for the people, hatin' it for the Beast.

Regards from the Netherlands!

...AND AS A FINISHING TOUCH, GOD CREATED THE DUTCH.

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maalstroom CH.com Old Timer Offline ''Dance to my tune''.... the hell I will! Posts: 491 the Netherlands Gender:	Re: Documentary called ''Clusterheads''. Reply #6 - Jul 7^th, 2008 at 4:12pm O and by the way, when he finishes it I hope he'll sell it also on DVD......I'd order it. Great and important work indeed!
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