Got O2?

        Potter

Hi there.

Thanks for the help. I'm heading to my neurologist in a few minutes. It's good to know that others found it weird at first. So I'm assuming you don't feel so overly energetic (not in a good way) after a while.

It's also weird having all the symptoms but not headache.

And, I'll get an oxygen tank!

Tanks! (Sorry!)
Marie

Quote:

Pardon my ignorance, but what does that mean?

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so, so sorry.

Marie,

That's a really low dose, but it's great that it killed the pain (I started out on 75mg). Take it at night (regardless of what the directions say). You'll probably sleep off the weird effects.

A lot of people call it Dopamax but they usually take it in the daytime. I've never had that side effect. My memory gets a little vague at times (but I'm old -it's never been great  ). Other than that the only side effects I've experienced is weight loss (and I haven't found a downside to that one).

The only complaint I have about it is the expense of it. But I'll do without something else to get it.... My maintenance dose is 100mg per day right now.

PM me if you need help with it...

Hugs BD

Ahhhhh,

Topamax.

I am currently maintaining a dose of 100mg per day. 50 in the morning and 50 at night. It's the best way for me to do it. Tried the all at night thing and It didn't work (mostly because I still forget to take them at times) better to forget half of your dose than all of it

The lack of an appetite is tough to deal with at first. I don't eat anything until dinner. Even then I am usually forcing myself to do that. I still get all of the symptoms and the occasional burn-through of a kip-8 in high cycle, but I can handle that with o2 or a Rockstar and some really loud Slipknot music at 150 decibles

I work in the telecommunications field, so I need my memory pretty sharp. It is not. I now carry a little pad of paper with me every where I go to take notes. I couldn't remember what 15-7 was last week, nor could I do it on my fingers. It made me mad, so I broke some Cat-5 modules and that made it better. I sometimes drive past my turn for work twice in the morning while looking at it before I remember to turn. It's the little things like that that drive me batty. They take some getting used to. I've only been on this stuff for about 2 months now. It's coming along now. I still get a little frustrated, but I just take a breath, call myself stupid, laugh about it, and move along. You have to make sure that you laugh about it for sure! The pain free time is bad ass!!!!

Hope all is well. Good luck and PFDN to you and yours!!

Hah hah. That's hilarious about the Cypress Hill song! Yeah, I agree. But you have to admit it sure 'feels' like a CH!

Funny I thought I was the only one not wanting to eat anything until dinnertime. I've been rockin' the Red Bull in a serious way. Got hit two times today. Once in the midday sun at the playground. I thought I was going to die when my toddler refused to get in the car seat. Then she only slept for 45 mins. which got me through to the next one. It's really hard to power through these and 'pretend' everything is OK. What else can I do?

I'm concerned about my weight though 'cause I didn't have much to lose before I went on the Topamax. I'm eating pizza, chocolate, cookies, burgers, whole milk, yada yada and still, the waistband is loose.

Pretty soon I'll have to run around the shower to get wet.

I'm doubling my Topamax dosage on Thursday -- my birthday is Wed. -- God please don't let me get hit on Wed. Please! My husband's been brewing up some sorta secret plan up in his computer cave. I would hate to let him down.

Marie

Balanchine wrote on Jul 7^th, 2008 at 11:48pm:

For checking out that video, or for stating my opinion?

OK, Update, the long and the short of it is: NOPAMAX.

This stuff ain't for me. Yesterday will be the last time I drive past my house!

Wish me luck! 

Yeah, topamax really messes with your mind too much.  I was forgetting how to spell, names, I couldn't add...I felt stupid and my face and arms were tingling all the time.  To top it off, I had to pay for the medicine (so not cheap!) and it wasn't even helping at all.  I switched to lithium and it's been pretty good so far.  It took almost no time to take effect, the only side effects I've had is I'm thirsty all the time so I could drink a whole gallon of water in one sitting if I wanted to and I've never really been a chocolate fan but for some reason that's all I want to eat anymore (dark chocolate chex mix *drool*).  Oh, did I mention that instead of paying $93 for a ten day supply of topamax, I only pay $1 for a month supply of lithium (insurance covers it)?  I'm definitely glad I got off the topamax.

Last night I stood in my kitchen and forgot where I was! That was terrifying! I have to take care of my two year old. Next it'll be the gas and brake pedal. Nuh uh.

I'm off of it. Ack! And I had one big hand squeezing my head for two weeks anyway and a coupla big hits.

In addition, I've had a strange sensation in one ear since I've upped the dose -- like being in a plane that's losing altitude too quickly. Already my stomach is feeling a bit better and I'm looking forward to no longer trailing off at the end of my sentences.

Hopefully the folks who delivered my o2 tank this past week will finally remember to bring the mask!