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New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › Help in getting OXYGEN prescribed

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Help in getting OXYGEN prescribed (Read 43092 times)

Batch

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Re: Help in getting OXYGEN prescribed
Reply #100 - Sep 30^th, 2015 at 2:16am

Mike,

You're quite correct... the NHS HOOF only works in Northern Ireland...

That said, I've checked some of the Health Service Executive (HSE) Republic of Ireland web sites... They have a similar HOOF that covers the use of home oxygen therapy.

I've also checked the Baywater Healthcare web site on home oxygen therapy and came up with the following link that clearly states home oxygen therapy can be used for cluster headache. See the following link and also attached below in pdf format:

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I've worked with BOC and their parent company, the Linde Group Healthcare Systems in Germany on the use of home oxygen therapy as an abortive for cluster headache since 2007. As of 2009, home oxygen therapy was approved and covered as an abortive for cluster headache by National Health Care Systems in Germany, Austria, Switzerland, Norway, Sweden and the UK including Northern Ireland.

It appears the Republic of Ireland HSE does provide home oxygen therapy for cluster headache... The problem now is finding a doctor within the HSE who knows about cluster headache and the use of home oxygen therapy as a CH abortive...

Take care,

V/R, Batch

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thierry

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Re: Help in getting OXYGEN prescribed
Reply #101 - Sep 30^th, 2015 at 4:18am

Jaysus Batch, good on you, you know as much about the HSE as some of us here in Ireland

.
Emma, have you talked to your GP about getting O2, maybe he/she can prescribe it to you.
There is another way of getting O2. O2 is used by people who weld. It is possible to purchase an O2 welding bottle. It works like the gas bottles, you purchase an empty and pay to get it refilled when needed. When buying the O2 bottle, you would also need a regulator, up to 25 litres/minute if possible. All this doesn't come cheap though but you might have a friend that does metal work that might be able to help.
Anyway, soon enough, you will likely hardly need the 02 as you have started on the D3 regimen. I still have the O2 but don't use it much at all. Just a couple of times/year when some shadows show up.
What are you currently taking for the CH? Did your doc give you Zomig?
All the best

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Emma marie h

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Re: Help in getting OXYGEN prescribed
Reply #102 - Sep 30^th, 2015 at 9:02pm

Hi guys,

Wow Batch thank you for taking the time to find all that information

I will take a copy of the Baywater Healthcare pdf with me to my next doctors appointment.

I did mention the 02 to my doctor a few weeks ago, he just dismissed it. I was still just learning everything for the first time so I just let it go.

My first appointment after my diagnosis I was given 10mg amitriptyline. Then the following week after doing some research I went back with a print off about 02 and sumatripton injections. He decided then to put me on 25mg amitripyline and he gave me the sumatripton nasal sprays(they do work but they take about 20mins and I only have 6 for the week Sad

). I will ask for the 02 again on Tuesday at my appointment. Peter has looked in to it for me as well and if I can get my GP to write the prescription I should have no problem getting it

. Thierry I actually have a friend who is a welder, so thanks for letting me know. I will defiantly call him if it doesn't go well with my GP. Or the Vit D might start working for me (day2 now) and at least then I wont be too dependent on getting the 02.

Thanks again Guys

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jk247g CH.com Newbie Offline I Love CH.com! Posts: 5 Gender:	Re: Help in getting OXYGEN prescribed Reply #103 - Apr 6^th, 2016 at 8:40pm Great post. Wish I had read this before my doc appointment where when I asked about oxygen, it was dismissed.
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