jon019
CH.com Alumnus
 
Offline

"Ya gotta believe!"
Posts: 1656
USA
Gender:
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Hi,
Sorry for the added stress of obtaining the meds you need. Many here can relate. It makes fighting the beast that much harder and at the worst possible time. A few suggestions:
Your doc (neuro, I hope) may have samples, ASK for them.
Mine has coupons, again, there for the asking.
Some docs don't seem to realize the monetary hardship these drugs become. Talk to him/her about it. There's no shame there. They are your advocate.
The manufacturer of Imitrex (Glaxo-SmithKlein) has a program of providing free or lowered cost product. Visit their website: gsk.com and look for patient assistance program.
If you are a AAA member, they have a prescription med discount program.
Have to say that this one is a lucky break and I haven't quite figured it out yet. That is, I took a script for Imitrex Stat-dose to the pharmacy (Costco). They gave me vials!!!! I was astounded and started asking questions. They said, well, it's the SAME thing, is there a problem? Ummmm....NOPE and I SHUT up! Same price but LOTS more med. Upon subsequent visit to neuro, I asked for a script for the vials. 'Well, sure, no problem..." ASK! Both your doc and the pharmacist.
Second only to the beast for obstinant glee in serving up pain, in my opinion, is health insurance companies. First we go to doctors that don't GET ch, then we have to deal with the insurance companies. They REALLY don't get CH. Closest they come is "oh, that's "like" migraine" and this is what we allow for that. It aint even close...
Be prepared to fight. For many years I tried it on my own. My particular insurance co regularly denied nearly every med (and even O2) for, as they put it, "this condition". The stress was enormous and the desire to just give up was nearly overwhelming. Well, CH made me stronger than I ever believed I could be. I DIDN'T give up. I started learning "the game". Hound 'em. Calls, letters, calls, letters, emails, calls, letters...and then the most important. Get your advocate (your doc) to join in.
In my case, for my insurance company, I FINALLY (my mistake, didn't know the game) got out of them, well, you need a "pre-authorization request" from your doc. When I told her of my problem and what I needed (O2), she was outraged and practically ran out of the office to write it for me. Later, when the SAME problem came up re Zomig Nasal Spray, she did the same. That and using the advocate for the Insurance broker (the one who sold the insurance policy to my co and therefore the ins co customer) got me what I needed. They still TRY to make things difficult, BUT I know the game now. Learn it, it is VERY satisfying...
We are rooting for BOTH of you, hang in, hang on. C'mon back cuz we got your back.
BTW, Jonny is WAY right. You would do well to listen...
Best,
Jon
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