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Tiannia

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Life does not apologies......

Posts: 3422
Eugene, OR
Gender: female

New PCP - Thinks he knows more then he does.
Aug 1^st, 2008 at 5:43pm

Well, I saw my new PCP today.

He refilled my preventative, have me 6 months of refills on it.

My Trex NS... He filled it with 3 months of refills. But only gave me 1 a month. Said if I need it more then that to give him a call.

Then he hands me a Migraine Diet. Told me to follow the diet and then I should not need medication to control my HA. Huh

So here is the list of things that I am supposed to stay away form for 2 months before I see him again...

Remember food NOT TO EAT

Chocolate or anything that contains Chocolate
Alcoholic beverages

Aged, Canned, Cured Meat.
Ham
Hot dogs
Sausage (eg. salami, pepperoni, summer sausage, bratwurst, etc)
Cheese (eg. Bleu, brick, all Brie Types, all Camembert types, Cheddar, Swiss, Gouda, Roquefort, Stilton, Mozzarella, Parmesan, Provolone, Romano, etc)

Hot Fresh Homemade Bread (But I can eat commercial store brands) Huh

Sourdough Bread
Any produce with Chocolate or nuts
Beans - avoid all pole or broad beans (lima, lentils, navy, pinto etc.)
Snow Peas
Sauerkraut
Onions
Olives
Pickles

Avocados
Raisins
Papaya
Figs
Passions Fruit
Red Plums

Canned Soup
Soup or Bouillon Cubes
Anything that contains Yeast

Ice Cream
Pudding
Cookies
Cake
Any Dessert that contains Chocolate
Mincemeat Pie (No worries with this one Tongue

)
Snack foods that contain anything form the list.

Pizza, Cheese Sauce
Soy Sauce
Meat Tenderizer
Accent
Season Salt
Mixed Dishes (eg mac and cheese, beef stroganoff, lasagna, etc)

Nuts and seeds
Peanut Butter
Oils from Seeds or Olives
Any Pickled, Preserved or Marinated Food.

OK so after I starve foe 2 months I'm supposed to go back and tell him if this diet helps my head. WTF!!!!!!!!!!!!!!!!!!!

I'm German, Shaun is Italian. Everything I cook I use Olive Oil and typically has cheese, usually 2+ kinds.

I think I'll call him Tuesday and tell him that I He needs to give me the 6 MS a month and that if I dont use them, great. But he can suck my big toe if he thinks that I'm going to follow this diet.

Also do you think they could have listed Chocolate a few more times? Roll Eyes

What the fuck did they do. Follow people around who got HA's and list every damn thing they ate for a month? Shocked

Actually reading over the list, I think a researcher's wife kept telling him "Not tonight, I have a Headache" and so he kept track of everything she ate. He got laid when she ate seafood, everything else is foods to avoid. Wink

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Em

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I wanna go...

Posts: 830
St Peter Port, Guernsey.
Gender: female

Re: New PCP - Thinks he knows more then he does.
Reply #1 - Aug 1^st, 2008 at 6:03pm

Quote:

Chocolate or anything that contains Chocolate
Alcoholic beverages

Aged, Canned, Cured Meat.
Ham
Hot dogs
Sausage (eg. salami, pepperoni, summer sausage, bratwurst, etc)
Cheese (eg. Bleu, brick, all Brie Types, all Camembert types, Cheddar, Swiss, Gouda, Roquefort, Stilton, Mozzarella, Parmesan, Provolone, Romano, etc)

Hot Fresh Homemade Bread (But I can eat commercial store brands)
Sourdough Bread
Any produce with Chocolate or nuts
Beans - avoid all pole or broad beans (lima, lentils, navy, pinto etc.)
Snow Peas
Sauerkraut
Onions
Olives
Pickles

Avocados
Raisins
Papaya
Figs
Passions Fruit
Red Plums

Canned Soup
Soup or Bouillon Cubes
Anything that contains Yeast

Ice Cream
Pudding
Cookies
Cake
Any Dessert that contains Chocolate
Mincemeat Pie (No worries with this one )
Snack foods that contain anything form the list.

Pizza, Cheese Sauce
Soy Sauce
Meat Tenderizer
Accent
Season Salt
Mixed Dishes (eg mac and cheese, beef stroganoff, lasagna, etc)

Nuts and seeds
Peanut Butter
Oils from Seeds or Olives
Any Pickled, Preserved or Marinated Food.

You'll be living on radishes and spinach. I have a rabbit that follows a similar diet!!! Grin

On a serious note, sorry you're having to go through this. Handouts at the ready Tia!!

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Brew Ex Member	Re: New PCP - Thinks he knows more then he does. Reply #2 - Aug 1^st, 2008 at 6:06pm Fire his ass.
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Tiannia CH.com Alumnus Offline Life does not apologies...... Posts: 3422 Eugene, OR Gender:	Re: New PCP - Thinks he knows more then he does. Reply #3 - Aug 1^st, 2008 at 7:06pm Quote: Fire his ass. I will give him the benefit of the doubt for now. I'm gonna see what he says when I call for more NS. If he does anything other then fill them, then yes it is time to find a new doc, but at least my preventative is filled and I'm not in such a urgent state.
Back to top	Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or &&The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers IP Logged

Jonny

Ex Member

Re: New PCP - Thinks he knows more then he does.
Reply #4 - Aug 1^st, 2008 at 7:17pm

Tiannia wrote on Aug 1^st, 2008 at 7:06pm:

Quote:

Fire his ass.

I'm gonna see what he says when I call for more NS. If he does anything other then fill them, then yes it is time to find a new doc, but at least my preventative is filled and I'm not in such a urgent state.

When you ask him for more NS and he says "No"......you are back in the "Urgent state"

Fire his ass! Wink

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Brew Ex Member	Re: New PCP - Thinks he knows more then he does. Reply #5 - Aug 1^st, 2008 at 7:24pm But before you fire him, see if you can suck some freebie samples first!
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BarbaraD CH.com Alumnus Offline Hugs to ya Posts: 8333 Douglasville, TX Gender:	Re: New PCP - Thinks he knows more then he does. Reply #6 - Aug 1^st, 2008 at 7:49pm He's treating you for migraines -- he doesn't have a clue what CH is -- FIRE HIM!!! Get a doc who at least knows what a CH is.... I went thru a "world reknown" idiot like this one.... trust me - it don't get better... Hugs BD
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Tiannia CH.com Alumnus Offline Life does not apologies...... Posts: 3422 Eugene, OR Gender:	Re: New PCP - Thinks he knows more then he does. Reply #7 - Aug 1^st, 2008 at 7:50pm Nah, Jonny. I got my preventative. But I will work this and get some more stuff. Part of it was my own fault because I did not have copies from my old doc with the Neuros records, He is supposed to have them Tues. I will work on the samples though
Back to top	Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or &&The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers IP Logged

icedragon Ex Member	Re: New PCP - Thinks he knows more then he does. Reply #8 - Aug 1^st, 2008 at 9:03pm You should ask him for more NS before you actually need it. See what he does...
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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: New PCP - Thinks he knows more then he does. Reply #9 - Aug 1^st, 2008 at 9:24pm Sorry Tia...I'm with the rest...fire him. ANY Dr. who gives a cluster headache patient a migraine diet to follow shows himself to be a fool.
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Guiseppi

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San Diego to Florida 05-16-2011

Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male

Re: New PCP - Thinks he knows more then he does.
Reply #10 - Aug 1^st, 2008 at 9:28pm

Actually reading over the list, I think a researcher's wife kept telling him "Not tonight, I have a Headache" and so he kept track of everything she ate. He got laid when she ate seafood, everything else is foods to avoid. Grin

Okay I don't care who you are that there is funny! Another vote for the firing squad, he clearly means well, but it's like asking a hooker to build you a nuclear reactor. I'm not saying the hooker aint necessarily talented, I'm just concerned about how your reactor will turn out!!

Love and best wishes!

Guiseppi

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"Somebody had to say it" is usually a piss poor excuse to be mean.

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AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: New PCP - Thinks he knows more then he does. Reply #11 - Aug 1^st, 2008 at 9:37pm Educate him. You'll be doing CHeads of the world a favour.
Back to top	My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com IP Logged

Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: New PCP - Thinks he knows more then he does. Reply #12 - Aug 1^st, 2008 at 11:13pm I truly do not believe that this fool can BE educated Brian. I would love for Tia to prove me wrong. I really would. Go Tia...Go Tia....
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Charlie CH.com Alumnus Offline Happy to be here Posts: 18971 Jamestown, NY Gender:	Re: New PCP - Thinks he knows more then he does. Reply #13 - Aug 2^nd, 2008 at 1:17am Dumb fuck if you ask me....... Charlie
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Kirk CH.com Alumnus Offline VINIMUS, VIDIMUS, DOLAVIMUS Posts: 2393 Harts Lake, WA Gender:	Re: New PCP - Thinks he knows more then he does. Reply #14 - Aug 2^nd, 2008 at 3:56am I did that diet for a month, on a docs advice. Lost a few pounds, didn't do a damn thing for my CH though. YMMV
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sandie99 CH.com Hall of Famer Offline Wish it, dream it, do it - inspite the pain! Posts: 11975 Finland Gender:	Re: New PCP - Thinks he knows more then he does. Reply #15 - Aug 2^nd, 2008 at 4:07am Ok, what CAN you eat...??? I would have demanded a "Things allowed to eat" list as well... Oh I wish it would be so easy! Sanna
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sailpappy Ex Member	Re: New PCP - Thinks he knows more then he does. Reply #16 - Aug 3^rd, 2008 at 4:29am Like a fool, I did the diet for 5 years, believe me when I say, listen to every one that says "Fire Him!" My clusters never slowed down at all and I kept a daily log to prove it! John
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Karla

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One of Many and Never
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Posts: 3837
x1|Madison WI USA
Gender: female

Re: New PCP - Thinks he knows more then he does.
Reply #17 - Aug 3^rd, 2008 at 7:24am

I followed that diet for a month and it did nothing for my migraines or ch. That was in the beginning before I was diagnosed and was willing to do anything to find out what was causing these. I would however, wait until he gets your records, reads them, and then has a chance to change his tune. If not fire him.

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Karla&&suffer chronic ch &&ch.com groupie since 1999&&Proud Mom of Chris USMC Semper Fi

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Tiannia

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Life does not apologies......

Posts: 3422
Eugene, OR
Gender: female

Re: New PCP - Thinks he knows more then he does.
Reply #18 - Aug 4^th, 2008 at 2:58pm

Praise be to my Pharmacist!!!!!!!!

She called my doc Friday afternoon. And explained that my standard refill for the NS was 6 a month and that she wanted to confirm that he only meant to give me 1 NS and no0t 1 box. He told her to go ahead and fill 1 box, if that is what I typically got. Plus 6 months of refills. Grin

I really do love this lady. Not that I'll leave Shaun for her, but you get the idea. Cool

Anyway I called my old doc to make sure that he was getting my records over to the new doc. The new doc's office has a neuro on staff, so I have asked him to refer my HA care to the neuro, as he has more specialized care.

I am waiting 6 weeks to get into the neuro, but in the mean time I have my preventative and abortive. So I wont fire him for regular care. He will work for colds and normal stuff.

But I am not going to let him treat my HA, because he is rather clueless.

Sandie - The Things you are allowed to eat was on there too. One line only.

"Any except those to AVOID"

I'm not joking, it really said that. Cheesy

Quote:

Actually reading over the list, I think a researcher's wife kept telling him "Not tonight, I have a Headache" and so he kept track of everything she ate. He got laid when she ate seafood, everything else is foods to avoid. Grin

Okay I don't care who you are that there is funny!

Guiseppi I am glad you like my interpretation. I think it makes total logical sense. Which is a frightening thing when it comes to a CH'er having that.

I love you all
Tia

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