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OMG the demon is back. (Read 1524 times)
laurainpain
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OMG the demon is back.
Aug 11th, 2008 at 6:37pm
 
I cannot believe that after 7 (seven) years of peace the awful demon is back. And here I am again at my keyboard writing all of you other sufferers once again. I went through menopause and thought they were gone for good, but no....I guess I will be in an old folks home and still banging my head on the floor when Im 95. That is if the demon finally wins his battle and I take 50 doses of imitrex in a day and have it over with.  How sad, but I really had 7 wonderful pain free years.  How friggin depressing.
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Melissa
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Re: OMG the demon is back.
Reply #1 - Aug 11th, 2008 at 6:40pm
 
At least you had 7 PF years!!!
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Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way.  ~Bernie S. Siegel
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BrianJ
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Re: OMG the demon is back.
Reply #2 - Aug 11th, 2008 at 7:18pm
 
Thank god you had the 7 years now you need to start fighting it again and not let it win go to your doc asap and read read read alot may have changed 7 years on

PF wishes to you
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PF Wishes to all.&&We all live with this crap But it is not who we are dont let it control you!!!.
 
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maalstroom
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Re: OMG the demon is back.
Reply #3 - Aug 12th, 2008 at 3:07am
 
I agree with Melissa and Brian; you did have 7 years without the bastard. I know it doesn't mean much while you're crawling on the floor, trying to find a way out of this hell, but you should try to bear that in mind. Just for your own sanity's sake.

In the meantime, when the Beast is still not done with you, we are here to try to take the edge of, okay?
You're among friends who go through the same.

Wishing you some painfree time very very soon.

Pascal.
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...AND AS A FINISHING TOUCH, GOD CREATED THE DUTCH.
 
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sandie99
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Re: OMG the demon is back.
Reply #4 - Aug 12th, 2008 at 3:52am
 
Laura,

first of all: I'm so sorry that the beast is back in your life. None of us deserves that.

But you have a strong weapon on your side: you already know that you can be PF again. You know that remission is possible! Use that to your advantage when the beast tries to get to you. You've already been PF for years, so you can be PF for years again! Concentrade on that.

Wishing you PF time asap,
Sanna
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« Last Edit: Aug 12th, 2008 at 3:54am by sandie99 »  

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mezza
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Re: OMG the demon is back.
Reply #5 - Aug 13th, 2008 at 1:59am
 
Hi laura

Ch stink- no way around that.   The times in between episodes have a way of making you forget what the pain was like.  That's the good news.   Bad news - they usually come back.

I hate that you are in pain right now.  Hopefully your arsenol is stocked and you fighting with all that you have.

Hang in there!

kelly
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fubar
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Re: OMG the demon is back.
Reply #6 - Aug 13th, 2008 at 2:20am
 
OMG, 7 PF years?  Sorry you're in pain now, but you realize that's north of 2100 days (in a row).. pain free.  I would love to be in your shoes.  I've been chronic for so long I forget that I used to be a nice person.  Now I'm a Republican.   Shocked
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purpleydog
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Re: OMG the demon is back.
Reply #7 - Aug 13th, 2008 at 4:34pm
 
Quote:
I've been chronic for so long I forget that I used to be a nice person.  Now I'm a Republican.   Shocked


Shawn, you crack me up. Now, that was funny. And true, me too, except I'm not a republican Wink.

Laura, I'm sorry the beast has found you again. Read, read, read. Start with the links over to the left, and check out the medications board, and the CH specific board for some of the latest in treatments, and such.

One thing that helps many of us is chugging down a Red Bull energy drink, or a similar brand. When you have shadows, or a hit starting, it really helps to take the edge off, or stop them. You may have some tricks up your sleeve, but that one is new.

Time to go see a neuro, too. Does oxygen work for you? Ask any questions, we are here to help!

Welcome back to the board!
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HappyElaine
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Re: OMG the demon is back.
Reply #8 - Aug 13th, 2008 at 5:45pm
 
Yep have to agree clusters suck. Like the others said you now have the tools to work for you. Don't give up. I use to be chronic and I finally went episodic. The longest I have had is 2 years between cycles. I have a motto " I HAVE CLUSTERS, THEY DON'T HAVE ME"! When your in pain its hard to think this I know.
Have you tried O2, what are you using. Find a doctor Now and go get treatment. Study the board and go ready with what you want to try. Imitrex is good. There are so many different things, find what is best for you.

Welcome back to clusterville we are here for you.
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Fear less, hope more;&&Whine less, breathe more;&&Talk less, say more;&&Hate less, love more;&&And all good things are yours.&&&&Member of ch.com and OUCH since 1999
 
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Ree
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Re: OMG the demon is back.
Reply #9 - Aug 14th, 2008 at 11:02pm
 
sorry Laura... thats just how it goes I guess... 7 years is one long remission.

We are here
Ree
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Linda_Howell
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Re: OMG the demon is back.
Reply #10 - Aug 14th, 2008 at 11:23pm
 
Lips Sealed
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Hurt people.....hurt people.   Think about it.
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