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  New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › I have a question
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I have a question (Read 985 times)
worst pain ever
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I have a question
Aug 21st, 2008 at 7:03am  
Hello everyone I have a quick question. Yesterday was tough for me but  last night was worse as I had two very bad run ins with the devil, beast or whatever you want to call it.Here is my question all day yesterday I had what I guess is called  a shadow headache about a 3 to 4 on the kip scale  it never progressed past that until I went to sleep(of course) is this normal? I thought that these things just come on get excruciating and then depart laughing when your half dead.Has anyone else had this experience with a shadow that lasted all day but never developed into a full on CH. I didn't want to use up one of my precious vials of imitrex unless it got really bad which it never did it just kind of took residence over/behind my right eye and played the heavy metal tune we all know so well but at a considerably lower volume than usual so I just dealt with it and went about my day but I must say it drained me.
Thanks
Joe
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tuck
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Re: I have a question
Reply #1 - Aug 21st, 2008 at 7:23am  
welcome dude, i believe it was Guiseppi who once said," the only thing predictable thing about CH is , its UNpredictable".   I have had the all day shadows that you mentioned, not often , but it has happened, I have found low LPM of O2 for a prolonged period helped that. Others use energy drinks, others exercise. Keep reading , the more you read, the more you learn. The more you learn, the better able you are to fight the pain.  Good luck.   Tuck
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worst pain ever
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Re: I have a question
Reply #2 - Aug 21st, 2008 at 7:34am  
tuck wrote on Aug 21st, 2008 at 7:23am:
welcome dude, i believe it was Guiseppi who once said," the only thing predictable thing about CH is , its UNpredictable".   I have had the all day shadows that you mentioned, not often , but it has happened, I have found low LPM of O2 for a prolonged period helped that. Others use energy drinks, others exercise. Keep reading , the more you read, the more you learn. The more you learn, the better able you are to fight the pain.  Good luck.   Tuck

Thanks alot. I have absolutely been doing alot of reading on this site and alot of the info is useful.Thanks again for the reply wishing many PF days for you
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BarbaraD
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Re: I have a question
Reply #3 - Aug 21st, 2008 at 8:21am  
Yep - shadows are "normal" (if anything is normal with these things!).

When the shadows hit (and they do) get an energy drink and hit the O2 (15-25 liters with a NON-REBREATHER mask).

Try melatonin at night and see if that will help the night hits... Start with 3-5mg and work up to 15-20mg (whatever works for you). It gets you thru the REM sleep (where the CH hits). Works for a lot of us.

But the O2 should be your first line of defense. About 70% of us swear by it here.
Hugs BD
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thebbz
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Re: I have a question
Reply #4 - Aug 21st, 2008 at 11:24am  
Listen to Barbara.

Quote:
I had what I guess is called  a shadow headache about a 3 to 4 on the kip scale  it never progressed past that until I went to sleep(of course) is this normal?


Yep. That is normal for us. Crazy huh?
all the best
thebb
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