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We have all wondered why we have clusters. (Read 3752 times)
HappyElaine
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We have all wondered why we have clusters.
Aug 21st, 2008 at 10:48pm
 
I have for many years. I think it was planed by a higher power, so we could all meet and become friends. I will be here 10 years in April. That is a long time. When I came here life changed for me for the good, cluster wise, health wise. I have so much more knowledge about lots more things than I use to. I have friends I love very much. I even have people I have bickered here with I love very much. Each one of you have touched my life in some way. Each time my life is touched it changes things and makes my life better.I hate the pain but I love the people the pain brought me too.

Memories I have that will go with me till the end of time I made here with many of you. No matter how far away some of you go, no matter if you post or not, or don't email any more. The memories are still here with me. The first hello, the first welcome to the last good by.
Regrets that I said something dumb that mad some mad, regrets that I missed posting on a few Birthdays. I think God knew we needed each other and he worked through DJ to build us this place. There is a reason and its to help each other and love each other!

When I have my cluster tonight I am going to raise my hands to the sky and say Thank you Lord I love my friends and glad you took me to them. I just have one questions,Why clusters? Why not a bad case of pimples or something? We could have met on a pimple site maybe. I guess you had to get our attention with a hot iron through the eye to get us to see.

Thank you for leading me and others to theses fine people! I don't know if its the xanax I am on or the pain that is making me so sentimental .   I f I have not rated you on your profile I am getting to it. I can only do so many a day. I have not forgotten any of you.

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Fear less, hope more;&&Whine less, breathe more;&&Talk less, say more;&&Hate less, love more;&&And all good things are yours.&&&&Member of ch.com and OUCH since 1999
 
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tuck
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Re: We have all wondered why we have clusters.
Reply #1 - Aug 21st, 2008 at 11:00pm
 
Elaine, I recently read your post about the meals with your husband, it made me think of ONE thing,,,,, a home. NOT a house , but a loving home! Now I read the post you just wrote and i can fully understand why the word "home" kept running in my mind previously.  You have obviously filled that house with love and made it a "home"  God bless ya! and may you sleep well tonight!    Tuck
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cancer shmancer,, i get cluster headaches!
 
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artonio7
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Re: We have all wondered why we have clusters.
Reply #2 - Aug 21st, 2008 at 11:02pm
 
The cynical catholic in me was taught that god tortures us until we die... and if we don't show the appropriate amount of gratitude for all that is dumped on us... we get to spend an eternity burning in hell.

... lol... my sister said of my cluster headaches... thank god for them and offer them up to jesus... god shows you how much he loves you by making you suffer so much... I said "fine... I will pray that God shows you his love in abundance 8 times a day for an hour at a time... after a year of enjoying all of gods love in the form of cluster headaches... get back with me.

with warm regards,
Tony
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Charlie
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Re: We have all wondered why we have clusters.
Reply #3 - Aug 21st, 2008 at 11:04pm
 
This place wouldn't be anywhere near as effective nor as much fun as it can be without your presence Elaine.

You're doing a lot of things right kid.

Charlie
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Brew
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Re: We have all wondered why we have clusters.
Reply #4 - Aug 21st, 2008 at 11:13pm
 
I stopped asking why a long time ago.

I don't believe we can ever really know why. I think there's a reason my middle name is Thomas.

One thing I've come to realize is that we are put here to love each other and so that we're not alone. What that has to do with the original question, I'm not sure.
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Mrs Wo
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Re: We have all wondered why we have clusters.
Reply #5 - Aug 21st, 2008 at 11:46pm
 
I am not where you are at this time Elaine.  I hope to be someday.  I am still muddling through.  I love your outlook and kind words, they soothe me and give me hope that I will once again feel peaceful in spite of the pain.

I look forward to your posts, they make me smile and laugh, loved the one about your husband complaining about the meal!  My husband does most of the cooking, I am so blessed to have him. Not just for his cooking of course!  He is the love of my life, he makes this life of mine so worth it!

Thanks for being here Elaine, you help even when you aren't aware, just wanted you to know.
Kathleen
Wichita, Kansas
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Guiseppi
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Re: We have all wondered why we have clusters.
Reply #6 - Aug 21st, 2008 at 11:55pm
 
And if i only got to meet you Elaine, I'd still say it was probably worth CH. Love ya back.

Guiseppi
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"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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Mastifflvr28
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Re: We have all wondered why we have clusters.
Reply #7 - Aug 21st, 2008 at 11:57pm
 
You know...Elaine's stories online are pretty freakin funny...but I'd highly suggest hearing some in person...my guts have never hurt SO bad as when Elaine tells a story, in person!  It's such a good hurt too, unlike the clusters.

Miss you tons Elaine!
PF vibes goin up to ya,
Tell Buddy I said hi Smiley
Mast
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Mastifflvr28 (aka Michelle A.)
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Kirk
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Re: We have all wondered why we have clusters.
Reply #8 - Aug 22nd, 2008 at 12:15am
 
   Now I think I know why I've always enjoyed your friendship Lady E.

Smiley
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Potter
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Re: We have all wondered why we have clusters.
Reply #9 - Aug 22nd, 2008 at 12:34am
 
Quote:
The cynical catholic in me was taught that god tortures us until we die... and if we don't show the appropriate amount of gratitude for all that is dumped on us... we get to spend an eternity burning in hell.

... lol... my sister said of my cluster headaches... thank god for them and offer them up to jesus... god shows you how much he loves you by making you suffer so much... I said "fine... I will pray that God shows you his love in abundance 8 times a day for an hour at a time... after a year of enjoying all of gods love in the form of cluster headaches... get back with me.

with warm regards,
Tony


    This is funny stuff my friend.

       Potter
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Linda_Howell
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Re: We have all wondered why we have clusters.
Reply #10 - Aug 22nd, 2008 at 1:26am
 
Quote:
cynical catholic in me was taught that god tortures us until we die... and if we don't show the appropriate amount of gratitude for all that is dumped on us... we get


Tony?  I've been a Catholic since Baptism.  I have rasised my children Catholic.  I have never EVER.. heard of this (above)   please tell me you are kidding, or that you had a very unpleasant and VERY isolated experience here.


Elaine, as to what you have said ?


   You were the very 1st. person I ever met at the very first convention in Atlanta.  (2000?)

   By the time we got to the first stop-light on the way to the hotel..I knew you were a keeper and I knew you'd be my friend for life.  You are,  and you will be fore-ever.


Linda




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Jackie
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Re: We have all wondered why we have clusters.
Reply #11 - Aug 22nd, 2008 at 6:35am
 
Elaine, my friend, well said.  Smiley

The bonds and friendships formed here are strong and lasting....you are so right.  What do they say...'brothers and sisters in pain'.

We've been friends for 9 years or so....been through lots too.....clusters, deaths, births, health issues, etc.....good times and bad.  This is a family for sure.  Does that make DJ the Dad? Wink

Wish you and BillyBob were here....we're going to Zimmy's for Friday date night.

Doing my 'clusters away' dance for you, my friend.

Much Love to You,
Jackie
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Re: We have all wondered why we have clusters.
Reply #12 - Aug 22nd, 2008 at 6:54am
 
Dont think anyone wondering why we really do love you LADY E

Svenn
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Karla
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Re: We have all wondered why we have clusters.
Reply #13 - Aug 22nd, 2008 at 7:44am
 
Awe Elaine.  I think we are on the same page in history and thoughts.  I don't think it is the xanax I think it is that we have come to terms with our illness and have learned to appreciate the value of friends and family that we have made here after 9 years.  I still remember the day you and Margi welcomed Ted and I to this site.  And am forever grateful for the impact you and others have had on my life.  I love you all and do believe that God used DJ for a higher purpose in life.
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AussieBrian
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Re: We have all wondered why we have clusters.
Reply #14 - Aug 22nd, 2008 at 9:29am
 
Atheists get CH, too.
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My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com
 
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Re: We have all wondered why we have clusters.
Reply #15 - Aug 22nd, 2008 at 9:47am
 
Guiseppi wrote on Aug 21st, 2008 at 11:55pm:
And if i only got to meet you Elaine, I'd still say it was probably worth CH. Love ya back.

Guiseppi




Yess its definatly worth it.

Lady E is definatly a LADY with BIG LETTERS and i am proud to call her a personal friend of mine.Lady E and OLD CHARLIE "sorry Charlie but just had to say that"  Smileywas among the very first that did talk to me when i was so lucky finding this community back in 99/2000 something
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HappyElaine
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Re: We have all wondered why we have clusters.
Reply #16 - Aug 22nd, 2008 at 1:13pm
 
It doesn't seem like 10 years. Damn where does the time go.
I love you guys.
Smiley

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Fear less, hope more;&&Whine less, breathe more;&&Talk less, say more;&&Hate less, love more;&&And all good things are yours.&&&&Member of ch.com and OUCH since 1999
 
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mummymac
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Re: We have all wondered why we have clusters.
Reply #17 - Aug 22nd, 2008 at 2:36pm
 
AussieBrian wrote on Aug 22nd, 2008 at 9:29am:
Atheists get CH, too.


Athesists just do not realise the help the universe gives until they stand along side the pearly gates. thats what I tell Rob - one day you will know if you are right and wrong and either way it will not matter. Smiley
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thebbz
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Re: We have all wondered why we have clusters.
Reply #18 - Aug 22nd, 2008 at 2:48pm
 
Just when I think the human race is whacked and people suck, I read a post and thread like this and breathe a big sigh of relief.
You Rock!...and lots more. Kiss
I have a broken hypothingy that only explains the CH. Tongue
thebb
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Re: We have all wondered why we have clusters.
Reply #19 - Aug 22nd, 2008 at 4:49pm
 
what a sweet lady you are elaine. you know i'm not on any other blogs or message boards. ch.com is pretty much it for me. even though i've been pf for several months now i still get on here and surf around. some people come and go but i've hung around. it's such a relief to know that i'm not the only one with this condition, and it feels good to identify with somebody that knows the difference between a migraine and ch.
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echo
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Re: We have all wondered why we have clusters.
Reply #20 - Aug 22nd, 2008 at 4:55pm
 
I've heard apathetic people get headaches but I'm not sure if I care.
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"If you love something, let it go.  If it doesn't come back,  hunt it down and kill it". Proud father of a US Marine,  Marine turned COP, Navy Corpsman, and KS Army National Guard. Our  4 sons serve.
 
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echo
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Re: We have all wondered why we have clusters.
Reply #21 - Aug 22nd, 2008 at 4:56pm
 
Okay,  that was terrible -- I care about anyone who gets these little jewels. 

PF Weekend to all.

Happy to be sharing the board with all of you.
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"If you love something, let it go.  If it doesn't come back,  hunt it down and kill it". Proud father of a US Marine,  Marine turned COP, Navy Corpsman, and KS Army National Guard. Our  4 sons serve.
 
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Brew
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Re: We have all wondered why we have clusters.
Reply #22 - Aug 22nd, 2008 at 5:59pm
 
echo wrote on Aug 22nd, 2008 at 4:55pm:
I've heard apathetic people get headaches but I'm not sure if I care.

Let's not forget the apoplectic.
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Jonny
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Re: We have all wondered why we have clusters.
Reply #23 - Aug 22nd, 2008 at 6:54pm
 
Guiseppi wrote on Aug 21st, 2008 at 11:55pm:
And if i only got to meet you Elaine, I'd still say it was probably worth CH. Love ya back.

Guiseppi


Eat your heart out, Joe....LOL  Wink

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Tara Ann
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Re: We have all wondered why we have clusters.
Reply #24 - Aug 22nd, 2008 at 7:31pm
 
Elaine, that is so very sweet.  And I can't agree with you more.  Through all of lifes trials (even though I whine about some of them) Deep down I always believe there is some kind of reason for it all.  We may not know what it is, in the here and now.  But someday, when all is said and done we will know why.  That's why one of my favorite quotes is "everything happens for a reason". 

I would not trade this place for the world.  I have had such wonderful support (bot ch related and non) here, and made some pretty amazing friendships.  This is truly more of a family that I ever knew.  A lot of you have been there for me (and my little fam) more than my "real" family has or ever will be there for me.  So it's you my clusterfam, my 2 kids, and hubby that complete my meaning of family.  I am beyond thankful for finding such an amazing group of angels.  We can laugh together, cry together, lean on eachother, and just plain be ourselves with eachother... even if we argue, cause that's what family does.

Lotsa Love,
Tara Ann

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