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tuck

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Damn this cross is heavy
!

Posts: 232
Gillespie , Illinois
Gender: male

Restless Leg Syndrome
Aug 31^st, 2008 at 6:33am

hey all. I am very sorry if this subject has been discussed in the past, but, it seems to me i remember hearing some time ago about cluster heads also having a high rate of RLS. Personally,,, this is something I have dealt with since childhood, and the last year,, WOW,, its an EVERYNIGHT thing.(major pain in the a$$) I was just curious if others here suffer with it also. Tuck

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cancer shmancer,, i get cluster headaches!

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mummymac CH.com Alumnus Offline Kissed Donny Osmond and proud of it Posts: 943 Jersey\|United_Kingdom\|europe Gender:	Re: Restless Leg Syndrome Reply #1 - Aug 31^st, 2008 at 12:46pm I get this, not all the time it comes it goes, but had it as far back as I can remember, it drives Rob nuts, I didn,t know this was linked to ch
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Langa CH.com Alumnus Offline So many donuts, such little time... Posts: 4754 x0\|\|USA\|usa\|0\|0\|NJ,New_Jersey Gender:	Re: Restless Leg Syndrome Reply #2 - Aug 31^st, 2008 at 2:03pm I get it too... Langa
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DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: Restless Leg Syndrome Reply #3 - Aug 31^st, 2008 at 2:11pm Count me in too. I get it mostly at night when I finally get the chance to sit on the couch. Once I'm in bed though it only becomes a problem if I get woken up by beast or child or bladder Fortunately it's not enough to wake my in and of itself. -Dennis-
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Opus CH.com Hall of Famer Offline "We have met the enemy... and he is us" Posts: 2746 Sidney,NY USA Gender:	Re: Restless Leg Syndrome Reply #4 - Aug 31^st, 2008 at 2:44pm I have it too. Requip before bed eliminates the problem for me. Paul
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Brew Ex Member	Re: Restless Leg Syndrome Reply #5 - Aug 31^st, 2008 at 3:46pm From what I recall, it can be closely associated with sleep apnea. When I had my sleep study done in 2000, I know they attached sensors to my legs (as well as about 40 bazillion other places) to monitor for RLS.
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Jonny Ex Member	Re: Restless Leg Syndrome Reply #6 - Aug 31^st, 2008 at 4:45pm I wake up and its hard.......Opps, wrong leg. Sorry, Tuck!
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Brew Ex Member	Re: Restless Leg Syndrome Reply #7 - Aug 31^st, 2008 at 4:46pm Quote: I wake up and its hard.......Opps, wrong leg. Sorry, Tuck! And at your (our) age, that can be a minor miracle!
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Jonny Ex Member	Re: Restless Leg Syndrome Reply #8 - Aug 31^st, 2008 at 4:51pm Quote: Quote: I wake up and its hard.......Opps, wrong leg. Sorry, Tuck! And at your (our) age, that can be a minor miracle! I thank the lord every morning.....LMAO!
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BrianJ CH.com Veteran Offline Take It Easy Posts: 190 \|Liverpool\|England\| Gender:	Re: Restless Leg Syndrome Reply #9 - Aug 31^st, 2008 at 5:04pm OMG i have had RLS since i was a child and never even thought about it being anything to do with CH this is strange Regards Brian
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ClusterChuck

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The BEAST rises again,
and again, and again,
and .

Posts: 5394
Greenville, North Carolina
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Re: Restless Leg Syndrome
Reply #10 - Aug 31^st, 2008 at 5:05pm

Quote:

I wake up and its hard.......Opps, wrong leg. Wink

Sorry, Tuck! Kiss

And at your (our) age, that can be a minor miracle! Grin

~~I happen to know that Jonny does NOT have a problem with this ...~~

OOOPPPSSS!! I promised not to mention anything about that ... nevermind ....

Now to the topic of RLS:

As far as RLS, I also have it, but usually, only at night, when I sleep. I thrash around so bad, I even work the fitted sheet off the mattress. It has never affected my sleep, that I know of.

I also have sleep apnea, and I am suppose to use the CPAP machine every night. I used it for about six months, and then just got lazy, filling the water tank every night.

I never noticed any difference in my sleep quality, but when I have had to share a motel room with someone, they have told me that when I had the CPAP on I did not snore, as I usually rattle the timbers with my snoring.

Chuck

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Keep fire extinguisher available, and charged.

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BrianJ CH.com Veteran Offline Take It Easy Posts: 190 \|Liverpool\|England\| Gender:	Re: Restless Leg Syndrome Reply #11 - Aug 31^st, 2008 at 5:09pm Another ?? seen as i have CH and RLS how would i know if i have sleep apnea i never get a good sleep always restless and always sleepy the next day i always put it down to the RLS could it be sleep apnea to and if so how do you go about getting tested ??
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BarbaraD CH.com Alumnus Offline Hugs to ya Posts: 8333 Douglasville, TX Gender:	Re: Restless Leg Syndrome Reply #12 - Aug 31^st, 2008 at 5:13pm Another one here -- had it since I was a kid.... mom always told me it was "growing pains" back then... guess I'm still a-growing or somethin' Hugs BD
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ClusterChuck

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The BEAST rises again,
and again, and again,
and .

Posts: 5394
Greenville, North Carolina
Gender: male

Re: Restless Leg Syndrome
Reply #13 - Aug 31^st, 2008 at 5:14pm

BrianJ wrote on Aug 31^st, 2008 at 5:09pm:

how do you go about getting tested ??

Your doctor has to request a sleep study. It usually invoves spending the night at the hospital or sleep center, and then if you do have it, a second stay, at a later date, using a CPAP machine, to see how you respond to the machine.

Or at least that is how it worked for me ...

Chuck

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CAUTION: Do NOT smoke when using or around oxygen. Oxygen can permeate your clothing or bedding. Wait, before lighting cigarette or flame.

Keep fire extinguisher available, and charged.

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Brew Ex Member	Re: Restless Leg Syndrome Reply #14 - Aug 31^st, 2008 at 5:16pm You can do a sleep study at home now.
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BrianJ

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Take It Easy

Posts: 190
|Liverpool|England|
Gender: male

Re: Restless Leg Syndrome
Reply #15 - Aug 31^st, 2008 at 5:43pm

Thanks guys

So i should go to my doctors and speak to him about it i hear sleep apnea can be life threatning due to heart problems it can cause ??

I was just talking to my wife about it and she says i snore bad but every now and then i go quiet for a few seconds then breath deeply and start snoring again.

The sheet is stripped from my bed every morning i move alot lol sometimes the wife gets up and sleeps with the kids i have always put this all down to the RLS i think i need a chat with the doc

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PF Wishes to all.&&We all live with this crap But it is not who we are dont let it control you!!!.

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tuck

CH.com Veteran

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Damn this cross is heavy
!

Posts: 232
Gillespie , Illinois
Gender: male

Re: Restless Leg Syndrome
Reply #16 - Aug 31^st, 2008 at 8:33pm

You freakin kill me Jonny!!!! strangest damn thing, I have that same problem, and it seems to wake my wife up too,, but,,,, its no big deal! All joking aside, I snore like a hog also. Have since I was a kid. "Veddy intidesting". Tuck P.S. by the way BD, my mom always told me the SAME THING ! Hell,, at 42, maybe now its shriking pains!

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« Last Edit: Aug 31^st, 2008 at 8:36pm by tuck »

cancer shmancer,, i get cluster headaches!

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ClusterChuck CH.com Alumnus Offline The BEAST rises again, and again, and again, and . Posts: 5394 Greenville, North Carolina Gender:	Re: Restless Leg Syndrome Reply #17 - Sep 1^st, 2008 at 4:40am tuck wrote on Aug 31^st, 2008 at 8:33pm: its no big deal! Tuck, so sorry to hear that you also are cursed with "endowment deficiencies" ... Chuck (Sorry, you left yourself wide open to that comment! LOL)
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