Hi everyone, how are you doing?

I'm Gemma, I'm 24, and I live in the UK 

I just registered here after doing a search, as yesterday, after many years of faffing about with doctors and hospitals, I was diagnosed with CH.

I can't really remember when it all started, but I remember first going to my doctor about terrible, frightning headpain when I was about 16. Now, a million years later (almost!) and after being shuffled around from Ear/Nost/Throat specialist, to Neurologists, to Endocrine specialists, and being told so many times it was just a headache and to learn to live with it, I saw my GP yesterday who in about two minutes of me telling him about the pain I get, said everything pointed to CH. After so long being depressed, frustrated, scared and a heap of ither things, finally I feel like a doctor understood what I was saying!



So here I am, is there room for one more? 

Aways room for one more headbanger. Check out OUCH UK. There are many here from your side of the pond. Welcome and see ya out there.
thebb

Thanks for the welcome guys, its great to meet you 

When I saw my GP, he told me there are a few options as far as treatment goes but its a case of finding the best one for me. To start me off, he prescribed me a nasal spray (Imigran) so I will give that go as and when. But he said I should go back to see him anytime if I'm not happy with it and I can try something else. 

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or
There is a lot of treatments out there here's the traditional.
all the best
thebb

Hello Gemma

Welcome from me too. Just to alert you that although the recommended treatments are the same as here, some of the names and certainly how you get them are very different in the UK (e.g. we are very lucky we have a free Home Oxygen delivery service here)

Wendy

Hi Gemma,

This is my first  time on line too, suffering for years much like yourself , useless doctors giving me the run around telling me bullshit ,and giving me anti depresive drugs . Mighty helpful for relaxation when you havnt got a headache.

Cheers Wayne

Wishbone

Gemma doesn't need to get anything on the Net - 02 is totally free here, not even the usual prescription charge and they deliver it to your house with any kit you need as well.

Not meaning to rub it in, but the National Health Service is occasionally good for some things, and this is one of them.

Wendy

KJ wrote on Sep 5^th, 2008 at 9:56pm:



KJ
the polite phrase is "take a hike"

Please don't hijack a new person's asking for help thread with your personal beef- she may be put off posting ever again.

It was not a post intended to "correct" anyone but to clarify. Gemma is in the UK and could spend a lot of time and a fortune buying things she doesn't need to or even things for 02 which don't work.
The advice on here is fantastic but a lot of it just doesn't apply here.

Would you prefer I posted nothing and left her thinking that it does?

There are lots of people on here who prefer NOT to join OUCH UK, so I think other Brits need to "weigh in" as you put it when they appear and ask for help and point them towards UK Info and help if they prefer to stay on this website.

If you think that is wrong then by all means say so, but I just can't see how it is

Gemma

Please ignore this silliness.
The second thing which may really help you is that we have a Helpline in the UK where you can get direct advice from a knowledgeable fellow sufferer who has been trained to help you. You can also just ring to talk.
Telephone number is 01646 651 979. There is a recorded message, leave your landline number and someone will call you back asap.
You can talk through what you have tried and they can tell you how to get the best treatments.


W

PS to KJ
I have no idea why you seem to have decided to have some kind of personal "thing" about me- giving me a negative on the first day of me posting for no reason whatever.

Can you leave your personal views about me out of other people's threads from now on and send them via PM so the MB can concentrate on the useful CH stuff?

Thanks for your replies, guys, I really appreciate it, and its great to meet you 

And thanks Wendy for putting the ouch helpline number here, I have noted it down and will keep it safe  Its reassuring to know that I can chat to someone about CH like that, especially if it gets to be 'one of those days' when it gets the better of me! But also to find out more infotmation about treatment and stuff like that. My GP was great in telling me about CH, but he did say it isn't something he sees a lot of amongst his patients, and said it will be something for both him and me to learn about while we find what's best in dealing with it.