uh...o.k.

Since you're from Az.  I assume you know what you're talking about.

Hi Matt-

I put icepacks on my head too during a hit and press it real hard.   Don't know much about ice on my feet at the same time.  But I am of the opinion, that if it works for you and helps you with your pain then more power to you   

In desperate times , I may find myself one day pulling out more icepacks-  who knows?   

Thanks for being here-  Hoping you get some more relief soon!

Kelly

So, this is the cure we've all been looking for? I am intrigued, to say the least.

I read in the past about some one who walked on a cold tile floor and that seemed to help him.  Makes sense to me.  Glad it's helping.

i find ice can help and will try it on my fingers and on my toes ( ooh WET WET WET)!!!!

Hi, Matt,
It is the vascular stimulation, you could also go for a jog and have the same result.  Coffee or energy drinks will do the same. I live in Montana, when being hit ,I will go stick my head in a snow bank. It is like heaven ,on the hot head and fire eyes.
BTW: Please disregard the spiteful post of our resident troll Geewilly.

I hope you have a treatment plan that works for you. Read and study your condition. You will find the information you gather will help you in the future, to keep the doctors from treating you improperly.
all the best
thebb
PS: Ice can also make things worse for some people, and heat is their saviour.
Never relax ever.
Karl is right, your describing migraines. Our pain comes from the trigerminal nerve. I think.
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I am not reading any nay saying, just different opinions.
There is much more work to be done regarding CH research.
Many treatments for CH are migraine hand me downs. CH is not migraine and triptans fail for CH often.Others are beta blockers, calcium channel blockers, psychotropics and many more. There are reported results and failures for all. It is very individual and unique to all of us. Matt posted what worked for him we all have relevant experience that we will post based on that. They will all be different. and the more you know Thanks for posting that.

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There is no drug of choice for us in my opinion. With this level of pain and the relentlessness  of it...there is no choice. Treat it or die. Learn to live with it and control it or die. Study it find what works for you or ....well you get my point.That is my opinion. Get hit with a 16 month episode and your going to try anything.
 I have had many treatments work one or two times and then fail. Over the years I have found that you must have an open mind to all treatments or you will fail in the most important battle of your life.  ...the battle with CH.

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I couldn't agree more and thanks for posting that.


Edit:Here's the way I see it.
What are the causes of Cluster Headache?
The cluster headache condition appears to be caused by an abnormality in the hypothalamus.
The Hypothalamus is the control center of all autonomic regulatory activities of the body. It has been said that the hypothalamus is the brain of the brain. It is the hub for automatic and endocrine homeostatic systems such as cardiovascular, temperature, and abdominal visceral regulation. It manages all endocrine hormonal levels, pituitary gland regulation, blood pressure regulation, hunger and salt cravings, feeding reflexes, thirst, body temperature, hydration, heart rate, bladder function, water preservation, hormonal/neurotransmitter regulation, ovarian function, testicular function, mood & behavioral functions, wakefulness, metabolism, sleep cycles and energy levels.sensory processing, and organizing body metabolism, as well as ingestive behaviors. It appears that almost everything the Hypothalamus does is related in some way to the management of brain and body connection, linking the psyche (mind) to the body.

This abnormality is an extra-thick layer of cells. It is something CH sufferers are born with, although Chiropractors will tell you it is caused by misalignment in the neck or spine. This was one theory, but it has been disproved long ago - so don't waste your money.

Your odd hypothalamus sends scrambled messages to your nervous system, causing vascular constriction and other as-yet unknown effects which cause immense PAIN which is not treatable with any normal pain medicine.

CH headaches are not actually a 'headache' like a migraine or a caffeine withdrawal headache. It is more like a type of direct brain-dysfunction that is more painful and disabling that anyone can imagine.





I hate this condition with a frikkkkkin passion.
all the best
thebb

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Given his history, yes.  You will see Thomas. Dont feed the troll. It's about CH, not Geewilly or anyone else for that matter.
Hey Matt, I love working around walk in freezers. Going to sub-zero with the whole body for 15 min. provides some relief.
all the best
thebb

He never said that CH was caused by the vascular component, but "the pain of CH" is caused by the vascular component, which is true.  Gotta read all the words.

First, I'm 17 and a senior in high school battling this for only about two weeks.
My dad is the one who gives me ideas from his experiences of battling CH for 25 years.
I never said this is the magic cure, so don't make it seem like i said that.
It works for me so I put it out here for people like me who hate the idea of having to constantly take pills and risk becoming dependent on pills.

Matt i offer you a sincere apology. i was being an ass.
to explain a little i am having a hard time and i guess i am just a bit tempermental.
honestly i am normlly a nice and compassionate man. you just caught me on a bad day.
give me another chance and i promise i will be nicer.

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Karl, It is all good.  I have read many of your post and know you have nothing but good intentions.  My crossing the line/Geewilly statement was directed at someone else.  It is one thing to poke fun at some one or even make a smart comment, but I felt someone was insulting the man's intelligence just to be mean.  That is just uncalled for...

Thomas