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HISTAMINE OVERLOAD!  I found the cause for my CH (Read 4615 times)
brilmont
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HISTAMINE OVERLOAD!  I found the cause for my CH
Sep 10th, 2008 at 4:46am
 
I feel your pain!  I'm 47 years old, suffering from CH for the last 22 years.  The last 2.5 years have been chronic.  Lots of doctors including neurologists and endocronologists and they can't find anything.  Most don't even try, only to prescribe an anti-seizure med and a pain med.  I've done alot of my own research especially in the last 2.5 years since I haven't been able to do much else.  I finally figured it out just recently.  HISTAMINE OVERLOAD!  Please do some research on histamine intolerance.  Try a low histamine diet for at least 3-6 weeks while you're in a cycle.  NO CHEESE, TOMATOES, CHOCOLATE, RED WINE, SPINACH, STRAWBERRIES, ETC.  Try an Anti-histamine (ie. Zyrtec, Claritin, Benadryl) to help block the histamine while dieting.  I think this will help many of you as it has me.  I've included a few articles to get you started on your research. GOOD LUCK.

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Pixie-elf
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Re: HISTAMINE OVERLOAD! I found the cause for my CH
Reply #1 - Sep 10th, 2008 at 7:49am
 
I'm histamine intolerant, and none of that has helped me with the cluster headaches at all. Sad I'm glad it worked for you.

I'm on Ketotifen tablets (had to buy it from Canada) and that has changed, and most likely saved my life. Before that I used an epi pen at least once a week. Haven't had to use one in 9 months now. Cheesy
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As far as I'm concerned, cluster busting has been the best treatment I've tried. No migraines since I started it, and my hits have gotten so much better. Wanna know more?
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AlienSpaceGuy
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Re: HISTAMINE OVERLOAD! I found the cause for my CH
Reply #2 - Sep 10th, 2008 at 11:38pm
 
Quote:
Lots of doctors including neurologists and endocronologists and they can't find anything. Most don't even try, .....
Of course they don't find anything. To do so, they would have to cut deep into your brain, to find your hypothalamus differs from the average. The cause of your CH is a defect in your hypothalamus, not a histamine overload.

However, histamine, being one of the many neurotransmitters, can in abundance trigger a cluster attack.

Your list "NO CHEESE, TOMATOES, CHOCOLATE, RED WINE, SPINACH, STRAWBERRIES, ETC." reminds me strongly of the infamous meegraine trigger list. I've never been triggered by any of these (well, I can't vouch for spinach, I don't eat that weed).

For me a combination of good ripe Swiss cheese and alcohol is a sure fire trigger. With the presence of alcohol the uptake of histamines is speeded up a hundred fold. The resulting histamine peak is for me high enough to trigger an attack of 2 - 3 hours.


Smiley


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Pixie-elf
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Re: HISTAMINE OVERLOAD! I found the cause for my CH
Reply #3 - Sep 10th, 2008 at 11:58pm
 
AlienSpaceGuy wrote on Sep 10th, 2008 at 11:38pm:
Quote:
Lots of doctors including neurologists and endocronologists and they can't find anything. Most don't even try, .....
Of course they don't find anything. To do so, they would have to cut deep into your brain, to find your hypothalamus differs from the average. The cause of your CH is a defect in your hypothalamus, not a histamine overload.

However, histamine, being one of the many neurotransmitters, can in abundance trigger a cluster attack.

Your list "NO CHEESE, TOMATOES, CHOCOLATE, RED WINE, SPINACH, STRAWBERRIES, ETC." reminds me strongly of the infamous meegraine trigger list. I've never been triggered by any of these (well, I can't vouch for spinach, I don't eat that weed).

For me a combination of good ripe Swiss cheese and alcohol is a sure fire trigger. With the presence of alcohol the uptake of histamines is speeded up a hundred fold. The resulting histamine peak is for me high enough to trigger an attack of 2 - 3 hours.


Smiley




That is part of the migraine and histamine intolerance list, however, it's not the full one for histamine intolerance. It's just foods high in histamine.

These things are to be avoided. I haven't seen people mentioning a lot of these things as triggers for their Cluster Headaches though...

Histamine Rich Foods(Copypasta'd from a PDF):
Fish: Mackeral, Herring, Sardine, Tuna.
Cheese:Gouda, Carnernbert, Cheddar, Ernmental, Swiss, Parmesan
Meat: Fermented Sausage, Salami, Fermented Ham
Vegetables: Sauerkraut, Spinach, Eggplant, Tomato Ketchup
Wine:
White Wine
Red Wine
Top-Fermented Beer
Bottom-Fermented Beer
Champagne
Red Wine Vinegar
Citrus fruit, Papaya, Strawberries, Pineapple, Nuts, Peanuts, Tomatoes, Chocolate, Fish, Crustaceans, Pork, Egg White, Additives, Licorice, Spices.

Up til I wound up on the ketotifen, every time I ate an orange, my nose would swell up and I'd get congested. It was horrible. Now? I can eat as many oranges as I like.

I haven't found -any- of these foods to trigger my CH yet...  My CH tends to trigger my histamine intolerance though, because if I'm stressed, my body produces more histamine, which breaks me out in hives. And the pain of a cluster headache can do that. However, I don't think I'll try any of these in combination if I can avoid it...
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As far as I'm concerned, cluster busting has been the best treatment I've tried. No migraines since I started it, and my hits have gotten so much better. Wanna know more?
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MR_FLOOR
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Re: HISTAMINE OVERLOAD! I found the cause for my CH
Reply #4 - Sep 11th, 2008 at 12:58am
 
Hi brilmont.
 
     About 15 years or so ago I was introduced to a treatment called histamine desensitization. This treatment is offered by Diamond Headache Clinic in Chicago (my clinic)I have been through this treatment 2 times the first time my CHs left me for almost 8 long years. Now mine you I have been chronic since the ripe old age of 14 getting 3 to 4 hits a day for 15 years when I first showed up on Diamonds front door and then a year later I went to this treatment and for 8 years almost no hits (you can see why there my doctors) shit I thought I was cured but then they came back so I went in for the second time and that time it lasted about 3 years not as good but still pretty damn good.

     So I guess what I'm saying is it worked for me, that don't mean it would work for everyone.




Dave
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laura
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Re: HISTAMINE OVERLOAD! I found the cause for my CH
Reply #5 - Dec 3rd, 2008 at 2:11pm
 
Hey Dave!!!

I am new to the site but I am also a patient at Diamond!!!!  Who is your Dr. there?  They are a great medical center to work with.  This is my 3rd year as a patient there and they have helped me control my CH.  I will ask about that treatment the next time I am there, I notice a lot of sneezing during the day and then attacks at night. 

Thanks for your input!!

Laura
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Ray
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Re: HISTAMINE OVERLOAD! I found the cause for my CH
Reply #6 - Dec 3rd, 2008 at 2:32pm
 
Hello Laura:

As a former patient of Seymour Diamond, MD, I've been through that diet (no help) and had a couple of sessions of histamine desensitzation, and none of those worked FOR ME.

I hope that you get better results, like Dave did.  CH are a tough beast to beat.  Have you tried high flow Oxygen to abort your attacks?

Wishing you well,

Ray
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Jimi
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Re: HISTAMINE OVERLOAD! I found the cause for my CH
Reply #7 - Dec 3rd, 2008 at 2:51pm
 
Brilmont,

You came on here back last March with a whole different theory, wrote a whole page about it and then ended it by asking if we keep the TV on when we sleep.

Many responded but you had disappeared. Today you come back with a different theory. My advise to you is that if you truly want to learn about your (self-diagnosed as per your first post last spring) headache, maybe you should stay and learn a little.
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MrsT
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Re: HISTAMINE OVERLOAD! I found the cause for my CH
Reply #8 - Dec 3rd, 2008 at 8:30pm
 
brilmont wrote on Sep 10th, 2008 at 4:46am:
Try a low histamine diet for at least 3-6 weeks while you're in a cycle. NO CHEESE, TOMATOES, CHOCOLATE, RED WINE, SPINACH, STRAWBERRIES, ETC. Try an Anti-histamine (ie. Zyrtec, Claritin, Benadryl) to help block the histamine while dieting.

Easier to take Benadryl to see if it lessens the CH activities or eat the above foods (except alcohol) to see if they trigger CH, than an elimination diet for weeks to see if it helps---many episodics end the cycle anyway while missing out on precious nutrients fruits and veggies can offer.

I grazed tomatoes all day off my plants, loads and loads of tomatoes everyday in high cycle to the point of worrying myself about potassium overload. Apparently I don't have any histamine intolerance as tons of tomatoes didn't trigger one CH, as long as my eyes are well protected from the sun and I didn't sweat much in the backyard. And I'm fish eater......histamine-rich blue fish on the list Pixie pasted, plus lots of "fermented" stuff on a daily basis. I guess I'm lucky enough to have no food allergy or intolerance (just lactose and fructose).
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thebbz
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Re: HISTAMINE OVERLOAD! I found the cause for my CH
Reply #9 - Dec 3rd, 2008 at 9:42pm
 
I eat whatever I want. Doesn't do anything but nourish me. No food is a trigger for me. but that's me.
all the best
the bb
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George
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Re: HISTAMINE OVERLOAD! I found the cause for my CH
Reply #10 - Dec 4th, 2008 at 1:41am
 
Quote:
I eat whatever I want. Doesn't do anything but nourish me. No food is a trigger for me. but that's me.
all the best
the bb


Pretty much the same here.

I spent a long time trying to isolate various things that started a cycle, and never found anything.  They just came along every May/June and October/November.

The only things (for me) that trigger an individual attack during a cycle are REM sleep and alcohol.

'Course, I get nailed during a cycle anyway...   Undecided

Best,

George



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Marc
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Re: HISTAMINE OVERLOAD! I found the cause for my CH
Reply #11 - Dec 4th, 2008 at 3:35pm
 
Quote:
I eat whatever I want. Doesn't do anything but nourish me. No food is a trigger for me. but that's me. all the best
the bb


Ditto.
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