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Babies update (pictures added!) (Read 28708 times)
sandie99
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Re: Babies update
Reply #25 - Sep 22nd, 2008 at 4:44am
 
Prayers are on their way for you all... Smiley

Sanna
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fubar
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Re: Babies update
Reply #26 - Sep 22nd, 2008 at 11:57am
 
They finally let me go last night, but I have to go back in to the cardiologist this morning for some stress tests.  Yesterday, while I was in Jen's room, my heart just started doing the funky chicken.  I've felt that before, like I was getting an extra beat in the middle of the normal beats.  Usually it doesn't hurt, but this built up to where my heart simply wasn't pumping blood to my brain any more, and I started to pass out.  I got a really cool picture of the strange heart rhythm from the nurse, I'll try to post it later.

So, we are back to having just Jen there.  They have tried to treat her with terbutaline, which made her sick, then they gave her phenergan (I have no idea if I spell those right) which is supposed to help nausea, but it made her violently ill.  Thankfully, now she is calm and not as sick.  My little adventure yesterday didn't help much.

Once again, thanks for everything.

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DennisM1045
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Re: Babies update
Reply #27 - Sep 22nd, 2008 at 12:43pm
 
Just couldn't stand not being the center of attention could you Shawn Roll Eyes

Prayers continue to go up for all of you. 

-Dennis-
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Re: Babies update
Reply #28 - Sep 22nd, 2008 at 12:53pm
 
DennisM1045 wrote on Sep 22nd, 2008 at 12:43pm:
Just couldn't stand not being the center of attention could you Shawn Roll Eyes


busted
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Re: Babies update
Reply #29 - Sep 22nd, 2008 at 2:50pm
 
Still thinking of you all and sending good thoughts.

Take care of yourself too, Shawn!  Make sure you get to that Dr. appt.

Love and prayers,

Jeannie
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Em
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Re: Babies update
Reply #30 - Sep 22nd, 2008 at 3:08pm
 
My goodness Shawn, I think someone up there is preparing the both of you for twins! What could possibly be stressful after all this?!?  Wink

On a serious note, I have kept you in my thoughts and been sending all the positive vibes I've got to you. Every day that goes by is a day those babies get stronger.

Love Em
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Jackie
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Re: Babies update
Reply #31 - Sep 22nd, 2008 at 4:08pm
 
Good Grief!!!!
Your plates are certainly full these day.  I'm thinking things are going to improve a lot and very soon...Yep, that's what I'm thinkin'!

Continuing to keep you all in our thought and prayers......positive thoughts too.

Much Love & Big Hugs,
Jackie
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Re: Babies update
Reply #32 - Sep 22nd, 2008 at 11:43pm
 
We're still praying for you all.  You will be mentioned for special prayer tomorrow at church, and in the academy at church.  God has a purpose in all of this.  I often wish He would tell me what it is, but He hasn't yet. Smiley  Keep your chins up.  We're still behind you.

Jerry
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Re: Babies update
Reply #33 - Sep 23rd, 2008 at 1:45am
 
Today we got to sit and talk with one of the NICU doctors.  Everyday we get closer to viability, but for now we get to discuss the 'what if' plans with the docs.  I thought I was nervous *before*.  Good grief.

Here is a pic of what my heart was doing...
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It's pretty easy to spot the abnormal beats.  That squirrelly section is  a picture of one missed heart beat. When I went in, that was happening for about 80% of my heart beats.  I have more tests scheduled for Thursday.  Currently I get about 2-3 of those per minute.  Time to cut down on the caffeine I guess.

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Re: Babies update
Reply #34 - Sep 23rd, 2008 at 9:13am
 
your all in my prayers!  Phew what a load your bearing.  I will pray everyday .
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DennisM1045
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Re: Babies update
Reply #35 - Sep 23rd, 2008 at 9:17am
 
Hey Shawn,

I'm sure your Doctors are all over this but... Are you taking Verapamil or Kudzu or any other type of calcium channel blocker?  This stuff can result in heart rythm problems.

-Dennis-
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Re: Babies update
Reply #36 - Sep 25th, 2008 at 1:03am
 
DennisM1045 wrote on Sep 23rd, 2008 at 9:17am:
Hey Shawn,

I'm sure your Doctors are all over this but... Are you taking Verapamil or Kudzu or any other type of calcium channel blocker?  This stuff can result in heart rythm problems.

-Dennis-


Also beware the Red Bull...if you use that.  I'm glad that you're getting good care.  My dad actually had a very similar rhythm and his managed to resolve spontaneously somehow, so I hope that yours does too!  Lord knows you don't need to be going through more issues!  My dad's actually happened during a time of extreme stress, but I believe resolved without medication.  He is on heart medications, but not for rhythm - but for blood pressure and so on.

As far as the babies - you know I've been praying for you nonstop for years, and I escalate those prayers even higher every time I read one of your updates.  So the NICU talk - I know the talk.  It can be very scary.  And it's obviously even more scary when you've got TWO babies!  They are officially viable by dates, as I'm sure they told you - but multiple births mean they are technically younger than they really are.  Although not all twins turn out that way by any means!!

And those problems they probably listed?  Just have to take it one day at a time.  If they do come early and are admitted to the NICU as micropreemie twins, then the ONLY thing you can do is take it one day at a time.  I can tell you that there are times when it all seems awful, times when it all seems great, then times when it all seems awful again, then a good day, then 2 bad days, then 5 good days, a week of bad days, and 2 weeks of good days.  Or sometimes an hour of good, hour of bad, hour of good and so on.  What is ultimately most important is the big picture.  To have them move in a forward direction OVERALL.  Not every baby hits every problem, but they still have to forewarn you of all the possibilities.

I know I'm not telling you anything they didn't already tell you, but you just can't let their talk totally blow your mind off.  Obviously you have choices, depending on when the babies come and how things go at delivery.  How you proceed throughout ANY of these things (birth, initial minutes/hours/days/weeks/months) and the choices you make are your choices - and you must trust that you are always making the best decision you can, with the information you have AT THAT TIME.

Let the doctors and nurses worry about everything - and you and Jen just continue to hope and pray for the best, and we will all do the same with you.  It really does help the babies when the parents try to remain calm (sometimes an impossible request) and are present and interacting - if they do end up in the NICU at an early gestation.  All of this is a major "WHAT IF".

The docs don't want to scare you, but they have to give you all your options and the full picture of what you may be getting into.  It isn't fair to your or Jen not to present you with all the possibilities, even though it will make you feel horrible and scare the living daylights out of you.  It allows you to make informed decisions and to decide what direction you want things to go.  Once the babies are born, all you can do is hold on to every single positive thing that happens and hang tight during the tough times.

This is the best I can do from my end to add to the preparation speech without going to much more into it.  (And I know you didn't ask for my NICU input, but just always know you have a trusted NICU nurse friend and CH buddy in me!!)  But you and Jen are very strong - and you have all of us behind you every step of the way, no matter what.

I am praying BIG TIME for the babies to just hold tight in there each day a little longer!!  Have they talked about giving steroids before delivery to help with lung maturity if they do start to come?

I cannot begin to tell you how many miracles I have seen out of the NICU.  NOTHING is predictable.  Each day they stay inside mom is another day for them to get stronger and for their lungs and vital organs to develop just a little bit more.

Hang in there and take care.

Much love, hugs, and PF wishes!!!
Carrie Smiley
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Re: Babies update
Reply #37 - Sep 25th, 2008 at 11:05pm
 
OK... 24 weeks as of today.  That's GREAT!   Smiley

Jen is hanging in there, and she was very pleased to get some flowers and 2 cards already from the gang (Thanks Jackie and Guiseppe!).  The cards were very thoughtful, and in fact she cried a bit.  She is going a bit stir crazy though, and you would think she'd enjoy company, right?  Nope.  She got a roommate yesterday and the chick is driving her insane.... Jen even asked the doc if she could go home because she thought she'd be less stressed out, but he basically laughed at her.

She is having a cervix scan every two days, and tonight the doc says she is holding steady, exactly where she was when she came in one week ago.  That's good news.

Every single day matters now, because the boys are right on the edge of being viable.  If we can make it to 28 weeks, we should be golden, but I'm thankful for every day we get between now and then.  For all I know, Jen will be there for the next 12 weeks.

Today I was pumped full of radioactive juice and did a stress test on the treadmill.  My resting heart rate was 54, but 15 minutes on the treadmill got me cranked up to 150.  They took some cool pictures of my very healthy heart and sent me home.  I have to have a cholesterol check but everything else is normal.  Doc says the PVCs (extra heart beats) are pretty normal and that maybe I should lay off the caffeine.  I think they are right about anxiety.  You can't really tell it's getting to you until you get smacked down.  I don't think the fact that I've been spending these days in the very same room where I had my last set of twins die in my hands helps much, but poor Jen has to spend every night there.  I just have to keep my head screwed on straight and help her deal with this.

So, all-in-all, not a bad day.  Thanks for all of the prayers and vibes.

-Shawn
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Re: Babies update
Reply #38 - Sep 25th, 2008 at 11:21pm
 
Soo, we need to form a team of people to play checkers with Jen to drown out the neighbor...and, for you......you.........some yoga, deep breathing exercises and......for the babies..............YOU precious angels.keep hanging on! We're all looking forward to your arrival, but NOT YET!
Nonstop vibes for all of you!
Shawn thanks for the positive news, now go take care of yourself!!
GOINg  for 25 weeks now......baby steps for babies.......next week, we'll ask for yet another week, then another......then another!
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Re: Babies update
Reply #39 - Sep 25th, 2008 at 11:23pm
 
thanks so much for the update!  You have our prayers, and the prayers of our church and school.

I know it is hard, but try to leave it in God's hands.

Jerry
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Re: Babies update
Reply #40 - Sep 25th, 2008 at 11:34pm
 
Still praying for you Shawn and Jen.  Hang in there!

Ray
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Re: Babies update
Reply #41 - Sep 26th, 2008 at 12:03am
 
Lizzie,

Yes, they talked about the steroids.  Doc says he's going to give the steroids when/if things start to change, but that right now he'd like to hold off.

You're right, those guys scare the crap out of me.  I'm pretty sure that's why I'm having PVCs constantly, but there doesn't seem to be much to do about it except taking a beta-blocker to slow things down.  Unfortunately, my resting heart rate is a little too low for that.  Every day we get right now helps though.  To be honest, I'm more nervous right now than ever because we are so close, and if they are born we'll have to make one of those really, really hard decisions.  Keep them alive and miserable, or let them die.  That's a toughie.  Please God, don't make me have to decide.  I haven't been given that kind of wisdom yet.
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Re: Babies update
Reply #42 - Sep 26th, 2008 at 3:50am
 
Shawn,
more prayers are on their way. I'm glad that things are bit better now - and I hope that more good news are on their way. Such as Jen's roommate will find a new room.

Hugs and prayers to you all,
Sanna

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Re: Babies update
Reply #43 - Sep 26th, 2008 at 9:30am
 
Thanks for keeping us up to date.

Glad to hear that your heart is strong and healthy!

What about speaking to the docs and asking for a room change?  I would imagine that they would want to provide the best possible conditions for Jen.  The stress of being in a room that holds such sad memories cannot be good for anyone! ( not to mention that a room change would also mean a roommate change!)

You all are still in my prayers and though I have never met you all, I think of your family daily!  Hang in there!

Jeannie
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Re: Babies update
Reply #44 - Sep 26th, 2008 at 9:54am
 
Thanks for the update.  Keeping you all in my thoughts and prayers.

Hugs and Kisses,

Jen
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Re: Babies update
Reply #45 - Sep 26th, 2008 at 10:14am
 
Thanks for keeping us updated, Fubar.
You all are constantly in our thoughts and prayers.
Sweetie, don't forget to take care of yourself too.

Much Love,
Jackie
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Re: Babies update
Reply #46 - Sep 26th, 2008 at 10:25am
 
Thanks for the update.

You and your family continues to be in my thoughts and prayers.  Sorry to hear Jen has a problem roommate.  Being in the hospital is stessful enough without having to deal with that.  I agree with Jeannie that you should request a room change for the reasons given.

Beth
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Re: Babies update
Reply #47 - Sep 26th, 2008 at 10:52am
 
Shawn - you and Jen and the kids are in my thoughts every single day - I'm willing you all on with everything I have in me

lots of love
Helen xxx
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Re: Babies update
Reply #48 - Sep 26th, 2008 at 3:47pm
 
So glad to read good news here. Each week is a milestone you, Jen and babies overcome. We're all counting the weeks down with you, willing those little ones to keep safe and to not make an appearance until they are strong and ready. Bring on 28 weeks and beyond!

I'm with the others in requesting a room change. That isn't good for your stress levels and will undoubtedly be affecting Jen too. I'm sure the hospital will understand.

Still sending vibes.

Em
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Re: Babies update
Reply #49 - Sep 26th, 2008 at 3:55pm
 
Quote:
Time to cut down on the caffeine I guess.

Hee he..he Smiley
Hugs and prayers. Smiley
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