DennisM1045 wrote on Sep 23rd, 2008 at 9:17am:Hey Shawn,
I'm sure your Doctors are all over this but... Are you taking Verapamil or Kudzu or any other type of calcium channel blocker? This stuff can result in heart rythm problems.
-Dennis-
Also beware the Red Bull...if you use that. I'm glad that you're getting good care. My dad actually had a very similar rhythm and his managed to resolve spontaneously somehow, so I hope that yours does too! Lord knows you don't need to be going through more issues! My dad's actually happened during a time of extreme stress, but I believe resolved without medication. He is on heart medications, but not for rhythm - but for blood pressure and so on.
As far as the babies - you know I've been praying for you nonstop for years, and I escalate those prayers even higher every time I read one of your updates. So the NICU talk - I know the talk. It can be very scary. And it's obviously even more scary when you've got TWO babies! They are officially viable by dates, as I'm sure they told you - but multiple births mean they are technically younger than they really are. Although not all twins turn out that way by any means!!
And those problems they probably listed? Just have to take it one day at a time. If they do come early and are admitted to the NICU as micropreemie twins, then the ONLY thing you can do is take it one day at a time. I can tell you that there are times when it all seems awful, times when it all seems great, then times when it all seems awful again, then a good day, then 2 bad days, then 5 good days, a week of bad days, and 2 weeks of good days. Or sometimes an hour of good, hour of bad, hour of good and so on. What is ultimately most important is the big picture. To have them move in a forward direction OVERALL. Not every baby hits every problem, but they still have to forewarn you of all the possibilities.
I know I'm not telling you anything they didn't already tell you, but you just can't let their talk totally blow your mind off. Obviously you have choices, depending on when the babies come and how things go at delivery. How you proceed throughout ANY of these things (birth, initial minutes/hours/days/weeks/months) and the choices you make are your choices - and you must trust that you are always making the best decision you can, with the information you have AT THAT TIME.
Let the doctors and nurses worry about everything - and you and Jen just continue to hope and pray for the best, and we will all do the same with you. It really does help the babies when the parents try to remain calm (sometimes an impossible request) and are present and interacting - if they do end up in the NICU at an early gestation. All of this is a major "WHAT IF".
The docs don't want to scare you, but they have to give you all your options and the full picture of what you may be getting into. It isn't fair to your or Jen not to present you with all the possibilities, even though it will make you feel horrible and scare the living daylights out of you. It allows you to make informed decisions and to decide what direction you want things to go. Once the babies are born, all you can do is hold on to every single positive thing that happens and hang tight during the tough times.
This is the best I can do from my end to add to the preparation speech without going to much more into it. (And I know you didn't ask for my NICU input, but just always know you have a trusted NICU nurse friend and CH buddy in me!!) But you and Jen are very strong - and you have all of us behind you every step of the way, no matter what.
I am praying BIG TIME for the babies to just hold tight in there each day a little longer!! Have they talked about giving steroids before delivery to help with lung maturity if they do start to come?
I cannot begin to tell you how many miracles I have seen out of the NICU. NOTHING is predictable. Each day they stay inside mom is another day for them to get stronger and for their lungs and vital organs to develop just a little bit more.
Hang in there and take care.
Much love, hugs, and PF wishes!!!
Carrie