I know I am new too this web site and my have already upset some people, if you are reading this and I have I am very sorry.  I have been pissed for a long time and no one could understand,  I truely thought I was a freak,  but thanks to this web site I know I'm not alone.  Thanks to every one of you for helping me.  I have an O2 reg. 25lpm coming, ebay woo hoo $35 to the door.  But with out all of you I still would be suck'in 8lpm with minimal relieve.  with the help from everyone here I am hoping to get my life back, its been so long,  every day for three years seems like forever, my fuse is short but I am willing to take any advise from any one.  Ive felt alone for so long it hard to express whats really going on, I have the best wife ever she is truely my sole mate,  But I have been married before with two kids 14yo boy and 17yo daughter,  my kids have no idea what I go through Ive tryed my best to not let them see.  There mother was there when I was diagnosed with CH but she doesnt tell the kids about that.  I had full custidy of my kids until a couple years ago,  yeh she struck when my CH was at its worst and still is.  She lies to my kids to make them mad at me.  I can only hope they know what Ive done for them when they get older.  I seem to be going on  and on, all I wanted to say was My new o2 reg. is in the mail and I am hoping to atleast have a chance at taking RC seeds.  I hav'nt been able to go 72 hours with out triptans,  two or three days I will have my reg. and hopfully can go with out imi for awhile.  I know I probably sound like a freak but please send any advise I need all the help I can get right now.        thanks Phil

well here's some advice phil. be sure to detox from rx meds before using alternative treatments for at least a week or 2. i know it's scary but you can do it and your higher flow regulator will help. use of o2 is compatible with any kind of treatment. the higher flow will make a world of difference.

i haven't read many of your previous posts but us clusterheads can be some moody s.o.bs  sometimes.
                                                                    lots of luck brother

hi Phil:
I will be calling you today.
anyway yes us clusterheads can be extremly moody and short fused at times, i too have not been very kind in my post when i am getting pounded by the beast but i always try to apologize and i always get the same responce "we understand" it is so cool to be to lose you cool at times and still be cool
the high flow rate o2 will be a great help to you I hope, wish i had one but honestly can't afford one right now. my 15lpm does help though.
i don't know much about rc seed and the such except like guiseppi
my job prevents it, i know what you do for a living Phil and maybe you should look at that, but we will talk more about it  on the phone  cool!

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yeah ch for me is hard to hide. if somebody didn't have ch and jumped around and screamed i'd have to say they were crazy.

Phil,

You'll find that the high regulator will make a big difference, but as everyone above has said, you've got to get on the 02 at the first inkling that a hit is on the way.

My only armaments are rc seeds and 02, like Beth.  I'm absolutely astounded at how well this is working for me. 

Once you get your 02 set up, it is important to detox from all meds, including your triptans before starting the rc seeds.  I think you need to be off your meds for 5 to 7 days - this will be tough on you.  But, with the 02, and things like Red Bull, coffee, ice (or heat - whichever help you), you CAN do it.  Then start your seeds.

When you get ready to start the seeds, PM me and I'll be happy to walk you through the method that seems to be working for me.

Sandy

P.S.  I also agree with Beth about bringing your children in on your CH.  Be upfront and honest with them - tell them everything - hold nothing back.  They are old enough to understand, and possibly, armed with the true knowledge of what's happening with their Dad, maybe they will think a little bit more when their Mom "comments" about you.