I now how you feel, except mine is a bit worse (at least in my eyes).  My daughter did inherit a disease from my side of the family.  Worse, it skipped me entirely.

Carolyn

Kimmie wrote on Sep 25^th, 2008 at 5:38pm:



I'm sorry everyone but WTF?

You post here on the 23rd, get an appt for on the 24th for the 25th and then you get a confirmed diagnosis with no mention of an MRI???

You got Elavil and Imitrex for a ten year old when Imitrex isn't prescribable for under 16's??

I think I need more fingers because this is so not adding up

I have to agree with Helen.   There should maybe be a little more investigation into this.  Don't feel like you shouldn't question your child's doctor.  It is your job to be his advocate and if a doctor doesn't like that you are requesting more investigation or questioning his diagnosis, then it's time for a new Dr.

I actually speak from experience.  My daughter, Morgan, was a very sick baby.  She had unexplained fevers, as high as 105.8%.  When I called the doctor, he would just treat the fever.....never investigating the cause.  Finally, I would have brought her into the office  enough that they would say she had an ear infection and give her an anti-biotic which would help her get better.   I always felt in my heart that something was really wrong...but, who was I to doubt the Dr?

On Mother's Day, when Morgan was three, I put her to bed.  She seemed fine.  She woke up vomiting and hallucinating.  The Dr. said that it was a virus and to bring her in the next day......he saw her at 6:00pm.  He then decided that she has a bladder infection.  I was to give her an anti-biotic and she would be fine.   After calling and calling the office because she was getting worse instead of better, and being told to "give the med some time" I took her to St. Louis Children's Hosp.   She was diagnosed with E-Coli Euro sepsis.  E- Coli was all through out her body and she was in great danger of not pulling through.  

After that crisis, they ran some tests that concluded that she had a condition called Kidney reflux.  It causes the urine to back up into the kidneys.  She had been having infections for three years!  Now her kidneys are damaged.   She may lose her right one.  It  is not growing well and the other is too large.  If I had just questioned the doctor more when she was a baby, she would be healthy today.  All it would have taken was a low dose prophylactic anti-biotic every day.  Talk about blaming yourself!  

You did NOT cause your little boy to have CH.  BTW, I had kidney reflux as a child too.... I out grew it.  I shared this with you so that you would not make the same mistake that I did.

Take care and give hugs to your sweetie for me!

Jeannie

????  What on earth are you talking about Kimmie with "put your fingers back down"??  We're just concerened about the fact that instead of harmless O2 even being tried, the doc just threw drugs at the kid.

Melissa wrote on Sep 26^th, 2008 at 12:24pm:


the lady was counting her fingers...I did the math for her...

Kimmie sounds like your your taking some abuse but your talking to a bunch of clusterheads, who know this pain and the trials most of us have gone through to get a diagnosis.  We are all concerned with the quick CH call,  with no mention of a CT or MRI.  So please tell us this was done.        Phil

CT negative. I did view them back at the Dr's office...it's funny how I can make out little figures...ya know....like they  do to ya when you have to be tested for anxiety or whatever...they show you the pictures and ask what you see, all kidding aside, it was a little disturbing having to view my son's CT. I got scared just looking at mine.