Hi there,
I'm new here and this is the first question I'm going to ask you all after my dad and I read a LOT of the experiences on this board. My mother (64) suffers from Cluster Headache and we're pretty desperate most of the times about her situation. I think you can call her a (mild) chronic because she gets hit every night one's or twice and suffers from heavy headaches and as she calls it; "a very bad head" every day for the last 3 years.
I've read a lot about the Mushroom treatment and got so hopeful and could easily convince her to go for this after telling her about the fantastic results many of you had.
We live in Holland so it's very easy to by them and we're experimenting with fresh Mexican Mushrooms.

-The first 2 times she was still on Verapamil, Maxalt and Imigran so she didn't feel a thing from the 12 gram fresh Shrooms and also nothing changed the days after.
-Then she managed to get rid of ALL her medications for 5 days and tried it again and chewed and swallowed 18 gram fresh. Nothing happened.
- Again but now 19 or 20 grams. This time she had a beautiful mild trip experience and told me her head felt very CLEAR and peaceful during the experience. But still the daily routine did not change after this.
- again after the prescribed 5 days; 20 grams fresh swallowed in 10 minutes. This time the taste of the mushrooms was so horrible she almost could not deal with it and had a very weird, quite unpleasant and most of all COLD experience. And most important; no clearness this time....

So basically we're a little disappointed by now. I really believe in this treatment and so do my mom and dad! After all the success-stories we've read....
I know that in some cases you should repeat this treatment a lot before you can break the cycle.
What can we do....?? Go on with this or try the SEEDS?? I understand this worked great too for a lot of you! I've already checked with the same store were we by the Mushrooms and they sell : Hawaiian baby woodrose seeds.

thanks! and good luck to everyone,
Ink

thanks for your reply,

Yes, she tried oxygen for I guess 10 days now. She finally got it after a lot of talking to a lot of docter's. I don't know wy this must be so hard to get... It did not do her any good yet, but she keeps taking it and my father ordered a new mask from Denmark last week because this mask does not fit a 100%. So now she waits for this new mask. She inhales 7 L. for 15 minutes. Maybe she should take more?? or longer??

But the thing is; she just phoned me and told me she feels GOOD! no headache today and this past night... We don't know if it's:

- a late reaction to the mushrooms (now 1 week ago) or
- the Magnesium, Taurine capsules and Vitamine B6 she took for the last 2 days...(we read about these suplements on the board).
- or just one of those very rare days that she's just Pain Free out of the blue....(and feeling alive and kicking!)

Ink

I have had shrooms fail, only to work again the next time. It does take a day or two, to a week for the demon to settle down after using shrooms. I am on maintenance doses now. It has taken me up to four shroom doses to break an episode, it is slightly different for everyone I think. I would stay on detox mode and use 35 to 40 Rivea Corymbosa seeds for a dose. The better the detox the more effect from the alternatives. Give the bastard demon the old one,two. That's what I would do if it were me. RC seeds are easier to prepare and dose with than HWBR.
Careful and the best of luck.
all the best
thebb

Hola Ink, well done. I think you just have to adjust it all, O2 at 12/15 lpm with a Non-Rebreather mask, and cubensis once a week, detoxed.
I take 4 gr dry from sjamaan once a month for maintenance, it took me 8 weeks but I'm now 30 months painfree, it's worth a try...
Tell her to enjoy this meanwhile Mr Honguito is doing his job in her Hipotalamusthingy

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Thanks a lot for your support, and try to keep this legal for us.
Saludos
Poli

"I have the feeling that these pain free days are going to stop being so rare.

BobW"


Keep us posted Ink. Wishing the very best for Mom.

Figure I'll chime in here

First, some background. I was big into shrooms recreationally before I began my journey through hell. 6-7g dried about once a week, needless to say I can relate quite well to the trip feeling.

After finding this great page, I found another page in the links section of ch.com calls clusterbusters. I recommend (if you haven't yet) checking them out, a LOT of great information regarding the Psylocibes in shrooms and our ch's. I now keep (illegal albeit here in the states) 1-2 grams dried shrooms with me at all times, and leave the rest (4-7g) at home as my medication. I have used them for the past 4 weeks for my attacks and they abort beautifully with 1-2 grams poped in my mouth, chewed and swallowed. Then a glass of water to wash it down (doesn't taste too good lol). A few minuets later I'm good to go with no trip feeling and a VERY slight body "buzz". I have begun a preventative treatment, once a week now I will ingest 1g via tea made with the shrooms (also outlined in clusterbuster). To say the least, I am now PF for 2 weeks Yay! And this is in the middle of my normal cycle (late summer to late winter).

Long story short, O2 works wonders if you can do that to bust her CH's I'd recommend it before going with something potentially illegal, especially in dried form. I also have never had a rebound headache after shrooms, nor any shadows until the next day after they vacated my system.

I've personally also never experienced anything like your describing after my recreational use of shrooms in the past. Perhaps there's more going on than just the CH's?

All the best,

Jeremy

Quote:


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-Lee

Hello again,

Well, as much as I believe in this alternitive, Mushroom therapy, and I REALY do....it sure doesn't help my mother. Also the O2 still dos not work. (is she the only one or what??) I just spoke to her and she was totally desperate and in tears. She took the shrooms for at least 6 times now and still suffers from strong headaches to heavy attacks all the time.
I'm starting to lose faith here. and it makes me feel very down and depressed.
How I hate it to see someone I love so much suffer all the time.

What the F. can we do?

She started with Melatonine since 5 days by the way.

good luck to you all and all the best,
Ink

Im sorry to ask but are you/doctors/mom sure she has clusters? To tell you the truth there is a possibility that what she has is not CH. That might be why none of our therapies work. I know some people are major sufferers but to see that nothing(even o2) is giving her any help what so ever is alot unsual. IMO

HiRobbyson,

Nice to see a fellow Dutchman here, and as you are from the north, I am from the southernmost part. Heerlen, near Maastricht, to be precisely.
But I´m gonna have to ask you to write in English here, as this is an international board... no one here knows what you wrote except for me and some others.
And never and I mean never, consider heroin to be a painkiller. Morphin does not work, so heroin won´t either. I mean it!

Greetings, Pascal.

Are you sure the mushroom didn't help the CH and what she is experiencing is a different type of headache? 

I do know quite a number of people experience a HUGE hit or two after dosing with shrooms, but then the activity usually calms down - sometimes it does shift around.  Importantly, the CH is reacting to the psilocybin.

While it may be time to "give up" on the treatment, it may also be time to consider trying a different administration, or timing, or ensuring that she's not on any meds that interefere.

Hubby stopped responding to psilocybin treatment, and 02 didn't work - but he was on something that interfered with the treatment (for his GI system, which was causing serious problems for him at the time).

I would - if you haven't - spend time at Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or , especially the Mushroom FAQs section. And I've PMed someone who may have further thoughts on the matter that may be helpful for you.

Wishing your mom PFDAN,

Laurie

Nice to see a fellow Dutchman here, and as you are from the north, I am from the southernmost part. Heerlen, near Maastricht, to be precisely.
But I´m gonna have to ask you to write in English here, as this is an international board... no one here knows what you wrote except for me and some others.
And never and I mean never, consider heroin to be a painkiller. Morphin does not work, so heroin won´t either. I mean it!

Greetings, Pascal.




From what I gather Pascal...this man thinks that Heroin can relieve his CH?   Am I correct?   If you can,  will you please show him Svenn's ordeal post?   Please?   I guess you will have to translate it for him.

After being in a horrific accident and after a month on  Morphine, my youngest son was released with an addiction to Morphine which escalated to Heroin.  I have watched my 22 year old, bright-eyed, always smiling, upbeat and  talented son degenerate into something I wouldn't have imagined.  He is still fighting this.

I always feel like I MUST say something....just as Svenn has said something....if only one person can be helped by our stories...


You can do this person a great service Pascal.   Please, at least try.


Linda

Batch wrote on Nov 18^th, 2008 at 10:48pm:


Hi Batch.
I've been through our area's yellow pages but can't find a restaurant called D'r Mol or something similar. If you could provide me with some more information, for example was it along the river De Maas, or around Het Vrijthof, or if you remember the street's name.
I'm sorry I haven't been of help, wish I could've.

Pascal.