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Question for you clusterheads. (Read 2747 times)
mezza
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Re: Question for you clusterheads.
Reply #25 - Oct 6th, 2008 at 9:59pm
 
Mine just started one day at age 24 or 25 ( can't remember which) which was 14 years ago.  Was driving down the road, rainy day and bam... got worst pain , and I remember being blinded by the pain.  pulled over etc.  Remember thinking I had a brain tumor or something.  Got myself quickly to a doctor!
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purpleydog
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Re: Question for you clusterheads.
Reply #26 - Oct 6th, 2008 at 10:25pm
 
My left eye, inside part, turned bright red for weeks before my first hit. Went to the opthamologist, who gave me some drops to kill the red. My eye hurt to touch it. Then, when I was at work one day, WHAM, I got hit, and it lasted about 45 min. I was waiting on a guy at the counter, and couldn't wait for him to leave, so I could get the hell out of there. I couldn't speak very well due to the pain.  He finally left, my boss walked in, I walked out, and it was gone before I reached my truck.

I've had migraines all my life, but this just came out of no where. The eye getting red has turned out to be a warning sign for me... I know they are coming.

If she can take an ibuprofen, and go back to bed, maybe she is getting migraines? I've never been able to go back to bed after waking up with a hit.
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Pixie-elf
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I've tried the rest, and
busting is the best!


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Re: Question for you clusterheads.
Reply #27 - Oct 7th, 2008 at 3:02am
 
Well, there are a lot of things that it could be... (I should know, they've tested me for every one of 'em XD ) there are a few things CT scans and MRI's don't show though.

For me, I had dealt with sinus headaches. intracranial hypertension/ intracranial pressure headaches, migraines, tension, etc...

Well, I kept having what I thought were sinus headaches. I'd just had a nasty infection that we had proof of on an X-ray, I went to a ENT 2 weeks later and was clear by then but my sinuses were still hurting... He said it sounded like I was having cluster headaches. I kinda ignored it, because hey, they checked me for that when I was 9. I figured they would have found it then, right? But they just found complicated migraines so... I convinced myself it was probably just allergies making my sinuses hurt so badly.

The next day, May 28th of this year, I could not ignore it.

I thought I was having a stroke.  I knew it was a possibility because I have small vessel disease of the brain... I knew it felt like I was having a migraine (which I was) but I was also having sharp stabbing pain in my left eye, and kept wanting to kill myself to end it. We wound up at the ER and they did a CT, it came back clear... So they sent me home. My Mom wound up looking up cluster headaches, because I was in too much agony to, and was refusing to come out of my room much. She found I had all of the symptoms and we went to the neurologist from there and they diagnosed it.

I'm not sure how many of what I thought were just mild migraines, were actually shadows in the months before the first 'real' one hit me.
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« Last Edit: Oct 7th, 2008 at 3:03am by Pixie-elf »  

As far as I'm concerned, cluster busting has been the best treatment I've tried. No migraines since I started it, and my hits have gotten so much better. Wanna know more?
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It's saved my life.
 
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Langa
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Re: Question for you clusterheads.
Reply #28 - Oct 7th, 2008 at 11:19am
 
My first cluster came out of nowhere - I was 10 yo.  Thought I was dying and was screaming my head off - by the time my mom got me to the hospital the ha was gone...they had no idea what it could be.  They were even more stumped by a nornal cat scan.
My mom does remember me crying and holding my head at the age of 3 or 4.  My first cycle was when I was 16. 

Hugs,
Langa
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When you saw only one set of footprints, it was then that I carried you.
 
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Tiannia
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Re: Question for you clusterheads.
Reply #29 - Oct 7th, 2008 at 4:37pm
 
Damn hun I worry about my daughter too.

Me, well I got hit with a bad migraine - take whatever the hell I could to do to sleep for a day and then they would go away, about 2 times a year from about 13 on.  Then at 32, I got a hit at work. It floored me, I thought I was insane.  It last one hour and then I was fine.  Except for looking like I had gone 5 mins in the UFC.  That night I got hit again right as I was getting ready for bed. After the 1st day I could set my watch by them. After a week and thinking that I was dying, I finally went to the doctor.  (That is another mind screw all together to get the actual diagnosis) So I cant say that I build up they just attacked my life without warning.

I hope that she does not have them.  That it is simply the fact that she is growing up and all of the crap that is going on with her body is causing headaches.

Blessed Be,\Tia
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southwalessunshine
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Re: Question for you clusterheads.
Reply #30 - Oct 9th, 2008 at 7:14pm
 
I just remember days spent in bed, in the dark with headaches that were sometimes killers and then would wear off, then wham!  Then would ease off again.  My parents always said they were migraines but when I would be out for maybe a day, maybe a few days,they started to think I was making it up as they didn't know anyone who had a migraine for that long.  I even got admitted to hospital and was given 3 lumbar punctures!  It's the worst thing in the world to think your nearest and dearest think you're making this up so tread steady approaching this with her as if she has CH she has a long road ahead of her getting the world to understand, she'll need you to believe in her.  And you've made good steps so far, this site is amazingly helpful.  Wothout it I wouldn't even have been diagnosed.
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keep your face to the sunshine and you will never see the shadow.&&Alone we can do so little, together we can do so much.&&Walking with a friend in the dark is better than walking alone in the light.&&Helen keller
 
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