Click this link to read a post I like on the clusterheadaches.com message board...

thebbz

Ex Member

Lucky man
Oct 6^th, 2008 at 4:59pm

Friggin hot head and fire eyes. The occaisional sharp jab behind the eye. I am lucky, nothing above a 2 or 3 on the Kip scale. I have a tool box full of demon beating weapons. Just refilled the Etanks. Coffee pot at the ready. Shrooms,seeds, a battery of herbal stuff on the way to try. Of course the tried and true, prednisone, imitrex, lithium combo.
A treatment plan from the neuro that includes, 02, a battery of prevents, and a local GP with a script pad and is not afraid to use it.
The ER staff all know me as the headache guy.(I tore up their waiting room once so they know to get me in quick.)
It's early this year the demon bastard. The alternatives are still holding their own. NO full blown CH episode yet. I have to say if it weren't for the alternatives,02, and caffeine I would be in alot more pain. So all things considered, I am a lucky man.
The CH is a bit different. I am on new ice here though. I haven't had to fight shadows like this before. I would be in a full blown episode for sure if not for the tools I have.He's back and he wants to make up for lost time. So sorry Demon from Hell, your in for a fight. I will win one way or the other.
all the best
the bb

Back to top

IP Logged

Click Here to visit the CH.com Facebook page!

Em CH.com Alumnus Offline I wanna go... Posts: 830 St Peter Port, Guernsey. Gender:	Re: Lucky man Reply #1 - Oct 6^th, 2008 at 5:02pm Quote: I will win one way or the other Too damn right you will! Keep battling. Sounds like you've got all the ammo you need there. Sending vibes for the beast to leave you the hell alone sharpish. Em x
Back to top	Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or IP Logged

worst pain ever CH.com Newbie Offline I Love CH.com! Posts: 15	Re: Lucky man Reply #2 - Oct 6^th, 2008 at 5:09pm Great Sounds like you got the twelve gauge loaded with slugs and at the ready Hope you get the relief you are seeking. Wishing you PF days and nights
Back to top	IP Logged

on my knees Ex Member	Re: Lucky man Reply #3 - Oct 6^th, 2008 at 5:14pm i know i am lucky too not just cause i am prepared but all the great people that write me and encourage me to hang on. John i am with you man whatever you need you can count on me. prayers and vibes going your way.
Back to top	IP Logged

DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: Lucky man Reply #4 - Oct 6^th, 2008 at 8:14pm Now kick his demon ass to the curb! We're all behind you if it gets "interesting". Sounds like you have your ducks in order though. Good luck... -Dennis-
Back to top	Where there is life, there is hope. Where there is Oxygen, you must use proper caution. So be safe, don't smoke while using O2. Kill the pain and not yourself. IP Logged

Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Lucky man Reply #5 - Oct 6^th, 2008 at 8:45pm Nope. . You're a lucky man because you have Joan. Glad you have what you need. We're here for you just as you've been here for others John. Kick a$$ !!!!!!!!!
Back to top	Hurt people.....hurt people. Think about it. IP Logged

MJ CH.com Hall of Famer Offline Posts: 1205 x1\|\|USA\|usa\|299\|85\|MN Gender:	Re: Lucky man Reply #6 - Oct 6^th, 2008 at 10:12pm Never get in the way of a man with tools. Good luck BBz, I'm sure you can fix it..
Back to top	« Last Edit: Oct 6^th, 2008 at 10:12pm by MJ » MJ IP Logged

E-Double CH.com Alumnus Offline Are we ourselves? Posts: 6948 Commack,New_York Gender:	Re: Lucky man Reply #7 - Oct 6^th, 2008 at 10:19pm kick a$$ john!
Back to top	I can't believe that I have to bang my Head against this wall again. But the blows they have just a little more Space in-between them. Gonna take a breath and try again. IP Logged

Kilowatt3

CH.com Old Timer

Offline

1952 Jag

Posts: 300
Lake Charles, Louisiana - USA
Gender: male

Re: Lucky man
Reply #8 - Oct 6^th, 2008 at 10:32pm

Quote:

Friggin hot head and fire eyes. The occaisional sharp jab behind the eye. I am lucky, nothing above a 2 or 3 on the Kip scale. I have a tool box full of demon beating weapons. Just refilled the Etanks. Coffee pot at the ready. Shrooms,seeds, a battery of herbal stuff on the way to try...
It's early this year the demon bastard. The alternatives are still holding their own. NO full blown CH episode yet. I have to say if it weren't for the alternatives,02, and caffeine I would be in alot more pain. So all things considered, I am a lucky man...
The CH is a bit different. I am on new ice here though. I haven't had to fight shadows like this before. I would be in a full blown episode for sure if not for the tools I have. He's back and he wants to make up for lost time...

all the best
the bb

Uh-oh!!!

Well John, looks like we'll have a chance (maybe) to make a believer of you! Hope so... I think I'm a day or so behind you on the "Aw $hit" schedule - had my worst jab yet this morning, but not a genuine hit just yet. I'm VERY confident I'll beat it, though! Cool

Good luck, and see you on the other side Wink

Regards,
Jim

Back to top

Regards,
Jim
SW Louisiana

If "that which does not kill me, makes me stronger", then how come I always feel like $hit after every near-death experience?

IP Logged

Click Here to visit the CH.com Facebook page!

George CH.com Moderator CH.com Alumnus Offline Black-Billed Magpie Posts: 8126 Boise, Idaho USA Gender:	Re: Lucky man Reply #9 - Oct 6^th, 2008 at 10:44pm Well, that's just rotten, John. Sorry to hear that the Black Dog has come sniffing around. Hope your arsenal proves effective once again, and that this one is short, mild, and uneventful. Stay frosty, and stay strong. I know you will. All the best, George
Back to top	"Whoever loveth me, loveth my hound." (Thomas More, author of "Utopia", and Chancellor of England. 1477-1535) IP Logged

barry_sword CH.com Alumnus Offline Mountain Biking Keeps Me Sane Posts: 3947 Bracebridge, Canada Gender:	Re: Lucky man Reply #10 - Oct 7^th, 2008 at 6:42am John, sounds like you are well prepared to stand up and do battle once again with the beast. We are all here for you. Strength in numbers!
Back to top	QUIT SMOKING SEPT. 03 2005 Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or IP Logged

pattik CH.com Alumnus Offline Posts: 2631 Wisconsin, USA Gender:	Re: Lucky man Reply #11 - Oct 7^th, 2008 at 12:49pm Hang in there John. I know you'll give it your all.
Back to top	IP Logged

thebbz

Ex Member

Re: Lucky man
Reply #12 - Oct 7^th, 2008 at 1:48pm

You guys are so COOL. I hate this condition with a passion. You can be relatively PF for as long as it lasts....you still have CH. I am so relieved to have to have the support only you guys can give. Of course Joan is #1 supporter. But if I told anyone else I was battling CH, I would get that deer in the headlights look and, Oh I get migraines. There is no one else that could even relate. Kilowatt, I have your ingredients on the way...hope I dont need to use'em.
Bend over Demon I got a little somethin, somethin for ya.!!! Smiley

all the best
thebb
Good to see ya posting again Edub.

Back to top

IP Logged

andrewjb CH.com Hall of Famer Offline when the love of power becomes the power of love ! Posts: 1612 x1\|london\|England\|europe\|185\|238\| Gender:	Re: Lucky man Reply #13 - Oct 7^th, 2008 at 2:49pm stay on top of it ' thebb ', good times are coming. andrew.
Back to top	IP Logged

jon019

CH.com Alumnus

Offline

"Ya gotta believe!"

Posts: 1656
USA
Gender: male

Re: Lucky man
Reply #14 - Oct 7^th, 2008 at 8:16pm

Quote:

You guys are so COOL. I hate this condition with a passion. You can be relatively PF for as long as it lasts....you still have CH. I am so relieved to have to have the support only you guys can give. Of course Joan is #1 supporter. But if I told anyone else I was battling CH, I would get that deer in the headlights look and, Oh I get migraines. There is no one else that could even relate. Kilowatt, I have your ingredients on the way...hope I dont need to use'em.
Bend over Demon I got a little somethin, somethin for ya.!!! Smiley

all the best
thebb
Good to see ya posting again Edub.

That is one GREAT post on SO many levels...I'm smilin' while looking at my etank...good on ya man, good on ya...

THANK YOU,

Jon

Back to top

The LARGE print giveth....and the small print taketh away. Tom Waits

IP Logged

hurts_so_good

CH.com Junior

Offline

Hate headaches, love Linux

Posts: 41
Lurgan, UK
Gender: male

Re: Lucky man
Reply #15 - Oct 7^th, 2008 at 10:12pm

Keep her goin' there thebbz, I'm with you all the way.

This is my worst time of the year as a rule but, for the first time, I've got meds.

I'd a brute in work last week (had to go outside and cry till it went), but I'm surviving better than I've ever survived before.

Went to the doc today to stock up on the meds to see me through (this babe normally lasts until December).

Loads of shadows, a few KIP 5's (one 7 - above), but nothing on the scale of past clusters. I'm even planning a holiday at a time when I would never have dreamt of doing so in the past.

Yeah, I've still got CH and I know it can still brutalise me but I'm taking comfort from the fact that this time last year my house was littered with damp facecloths - when my face wasn't in the fridge.

Quote:

Bend over Demon I got a little somethin, somethin for ya.!!!

Whatever ya got, stick it up the demon...and stick it well hard up that bag of scum.

Love all you guys.

Back to top

« Last Edit: Oct 7^th, 2008 at 10:14pm by hurts_so_good »

Help defeat cluster headaches - use Linux

IP Logged

MPMIII CH.com Veteran Offline Posts: 112 Alabama Gender:	Re: Lucky man Reply #16 - Oct 7^th, 2008 at 10:24pm Beat his ass. Wishing you luck. Regards, Malcom
Back to top	IP Logged

Click Here to visit the CH.com Facebook page!

thebbz Ex Member	Re: Lucky man Reply #17 - Oct 7^th, 2008 at 10:51pm Quote: Whatever ya got, stick it up the demon...and stick it well hard up that bag of scum. Right now I'm thinking pineapples....big ones. Hee.he..he thebb
Back to top	IP Logged

hurts_so_good CH.com Junior Offline Hate headaches, love Linux Posts: 41 Lurgan, UK Gender:	Re: Lucky man Reply #18 - Oct 7^th, 2008 at 11:12pm Make 'em fresh and make 'em big. Let him know he's the one lying down! Good luck man. Aidh, and don't take those spikey leaves off. They're the bit he'll enjoy least of all.
Back to top	Help defeat cluster headaches - use Linux IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Lucky man Reply #19 - Oct 8^th, 2008 at 8:50am Damn John sorry to hear he found your forwarding. Hugs to you and Joan from Christy and I, miss you guys. Guiseppi
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

Potter CH.com Alumnus Offline Team MOOSE DROOL Stinky Stuff on a Hook Prostaff Posts: 3600 Blgs.Mt. Gender:	Re: Lucky man Reply #20 - Oct 8^th, 2008 at 10:03am Buck up or lay there and bleed. Potter
Back to top	IP Logged

Cathi_Pierce CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 1191 x0\|Oregon City\|USA\|\|0\|0\|OR,Oregon Gender:	Re: Lucky man Reply #21 - Oct 8^th, 2008 at 11:56am Monkeyman,you SOOO have the attitude! Nothing breaks you, does it? I'm sorry you're needing the artillery, John. I hope the cycle is short lived and full of nothing! Hugs to Joan! cathi
Back to top	Life is not measured by the number of breaths we take, but by the moments that take our breath away. IP Logged

thebbz

Ex Member

Re: Lucky man
Reply #22 - Oct 8^th, 2008 at 2:41pm

Aw, the beast broke me many years ago. Now it is just not an option.
Too many ways to stay ahead of it. Like Potter said, Buck up, or lay there and bleed. I prefer fighting hard. Laying down is unbecoming of my character. There is always something that you can do. It should be noted that all the study about this condition and the information garnered here has made it much easier. The support means more that I can say. Smiley

We have a wonderful thing here, Thanks Deej
Oh, I love 02 and seeds, it keeps the expiration date on the trex in the old and getting older aisle.
thebb

Back to top

IP Logged

Izzy

CH.com Junior

Offline

Choose life.

Posts: 70
Red Deer, AB, Canada
Gender: female

Re: Lucky man
Reply #23 - Oct 10^th, 2008 at 10:21pm

[quote author=3E232422250925390931393932560 link=1223326791/0#15 date=1223431948]

Yeah, I've still got CH and I know it can still brutalise me but I'm taking comfort from the fact that this time last year my house was littered with damp facecloths - when my face wasn't in the fridge.
____

Had to *lol*; just because of this morning at 3:30am...there we were, me sitting on the counter & Jonny trying to stuff his whole body in the freezer of the fridge. I'm so glad we found people who "get" it. No, it's not a migraine. I would freaking just dance for absolute relief if he said to me "Don't worry, it's just a migraine." Migraines are bad, I'm not trying to debunk that...but that kind of pain is like...a broken arm being compared to an amputation without anesthetic!

Bless & hope you get releif soon!

Back to top

"There are no monuments dedicated to me, and my name will soon be forgotten, but I have loved someone with all my heart and soul, and to me, this has always been enough.”

IP Logged

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!