i had 2 more attacs last night and one this morning
i tryed the red bull i think it helped a bit
i had 2 red bull it hold for a few hours but befor i went to sleep i took rezalt and it let me sleep till 11 i got up with a bad head and had some oxygent for 40 min
now im ok
waiting for the next one
it will happen soon

what is k2 and k3 ?
i dident understand

i had a good read last night from what bob sent it was very helpfull
ill copy this and give to my doctor

i still wonder if i should start again with the meds now after i finished a month ago with prednisone

or is it just rebound the last 3 days have been hell

oops sorry i didnt read you earlier post.
well it sounds like everything gave some relief. be careful drinking two red bulls.
i hope you have realized you are not alone and thousands of us deal with this and some of us are chronic and deal with it most everyday.
you will survive it won't kill you.
the term k2 and more refers to the kip scale, you can read it to the left. we use it to tell each other and our supporters how bad the pain is, please read it you will find it very accurate.

i cant imagine having it every day
one month is hard as hell every day is a nightneare
im happy that i found this site
and that i found all of you
i was climbing the walls alone
now i know we are all together
everyone have been so helpfull
good to know there are some good people in the world

i hope that all the drugs you all were talking about could be found in israel

ill be looking for verapamil ,treximet . and litium
topomax i read about it it scares me i dont want to forget things
im a theatre actor so i need to remember text

Hello David,

I took Prednisolon for a long while, and after I stopped I had a very difficult period of some weeks. Constant headaches and the CH pain was also worse than otherwise.

I also took topiramate and I swear my IQ dropped at least 50 points. I was completely doped up. Plus it didn't help with the pain.

Nowadays I'm med-free and also a chronic, so I deal with this several times every day. The neurologist would want to prescribe me several drugs (which haven't helped) at once to have a sort of synergy effect. I'm going to refuse that. Nothing else has helped me than the steroids, including oxygen and triptans.

Considering the above, I think it's very important to have the right attitude towards the headaches. After all, it's only pain...and it goes away. Life is still very much possible outside it. Of course all this depends on how bad your individual headaches are and how often you get them, but still - take them as they come and live life to the fullest during the other time. Just yesterday, my boss was telling me how much more clearheaded I seem now and how he feels like he has to worry about me far less. He can depend on me more now that I don't take meds.

I wish all the best to you. You might not be able to beat the beast, but you sure as hell can avoid letting it drag you down.

- Best regards and PFDAN to everyone,
Rosa

i took all your advice and copyed for my doctor info about ch
(thanks bob )
he read it on the weekend and yesterday we had a long talk
and he said that because the special doctor wont help that he will
and together we will fight it
so we are trying
prednisone 80mg going down to 0 in 10 days
and verapamil 80mg 3 times a day for 3 days
then 120mg 3 times a day till the cycle ends
i wanted to try the lithium but he said he had to learn more about it so that will happen next cycle
i hope that what we are doing is good
please comment if we are wrong i dont want to do something bad to my body
this is the worse cycle i ever had and the longest
so thanks again to all of you for you kind words and help
it makes it eazy when im not alone
and now im not alone anymore