Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Pages: 1 2 
Send Topic Print
Wierd Statistic (Read 8235 times)
Izzy
CH.com Junior
**
Offline


Choose life.


Posts: 70
Red Deer, AB, Canada
Gender: female
Wierd Statistic
Oct 9th, 2008 at 2:36pm
 
Hi; I have a question:

Is it true that 45% of people with cluster die in thier sleep & that this is linked to sleep apnea? If there are any links or anything; please post regarding. Thanks...
Back to top
  

"There are no monuments dedicated to me, and my name will soon be forgotten, but I have loved someone with all my heart and soul, and to me, this has always been enough.”
 
IP Logged
 
midwestbeth
Ex Member



Re: Wierd Statistic
Reply #1 - Oct 9th, 2008 at 2:39pm
 
Izzy,

Can you post a link to where you read this?  I have never heard of this.

Back to top
  
 
IP Logged
 
Potter
CH.com Alumnus
***
Offline


Team MOOSE DROOL Stinky
Stuff on a Hook Prostaff


Posts: 3600
Blgs.Mt.
Gender: male
Re: Wierd Statistic
Reply #2 - Oct 9th, 2008 at 3:09pm
 
Izzy wrote on Oct 9th, 2008 at 2:36pm:
Hi; I have a question:

Is it true that 45% of people with cluster die in thier sleep & that this is linked to sleep apnea? If there are any links or anything; please post regarding. Thanks...


  Yer shittin me..................right?

            Potter
Back to top
  
 
IP Logged
 
Just Plain Carl
CH.com Old Timer
****
Offline


IT IS WHAT IT IS


Posts: 449
Royal Oak, Michigan
Gender: male
Re: Wierd Statistic
Reply #3 - Oct 9th, 2008 at 3:32pm
 
Holy Crap !!!!!!!
Just when ya think ya got a  handle on things !!
Back to top
  
 
IP Logged
 
monty
CH.com Hall of Famer
*****
Offline




Posts: 1056
The Swamp, Florida
Re: Wierd Statistic
Reply #4 - Oct 9th, 2008 at 3:34pm
 
I have seen statistics that 50% to 80% of clusterheads have sleep apnea. I have not seen any numbers on how many have heart attacks in their sleep from the apnea.  Even if a person doesn't die immediately in their sleep, apnea can weaken the heart and make a person susceptible to heart problems.
Back to top
  

The outer boundary of what we currently believe is feasible is far short of what we actually must do.
 
IP Logged
 
kevmd
CH.com Hall of Famer
*****
Offline


Who needs a hypothalamus
anyway?


Posts: 524
x0|philadelphia|USA||0|0|PA,Pennsylvania
Gender: male
Re: Wierd Statistic
Reply #5 - Oct 9th, 2008 at 3:34pm
 
if its true, that is good news!!!
Back to top
  

PHILADELPHIA PHILLIES 2008 WORLD CHAMPS
 
IP Logged
 
Izzy
CH.com Junior
**
Offline


Choose life.


Posts: 70
Red Deer, AB, Canada
Gender: female
Re: Wierd Statistic
Reply #6 - Oct 9th, 2008 at 3:47pm
 
Hey guys;

Sorry if I caused a freak. I just finished calling the person who emailed me that because quite frankly I was like "WHAT???". They got an ear full when I went to the link (which they didn't post in the email, they gave over the phone). They totally misread it & made thier own conclusion; because I couldn't find that stat anywhere. I should have fleshed it before I posted but I have so much going on right now! To be clear: THE STAT IS FALSE; as far as I can find. The links are here & say nothing other than sleep apnea occurs in some people with CH. I hope this clears up? Sorry again.

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
Back to top
« Last Edit: Oct 9th, 2008 at 3:48pm by Izzy »  

"There are no monuments dedicated to me, and my name will soon be forgotten, but I have loved someone with all my heart and soul, and to me, this has always been enough.”
 
IP Logged
 
monty
CH.com Hall of Famer
*****
Offline




Posts: 1056
The Swamp, Florida
Re: Wierd Statistic
Reply #7 - Oct 9th, 2008 at 3:58pm
 
Quote:
Headache. 2004 Jun;44(6):607-10.

   Obstructive sleep apnea and cluster headache.
   Graff-Radford SB, Newman A.

   The Pain Center, Cedars Sinai Medical Center and UCLA School of Dentistry, Los Angeles, CA 90048, USA.

   A patient with cluster headache often wakes from sleep. The relationship to sleep apnea has been described. This study sought to confirm the relationship cluster may have with sleep apnea. METHODS: Thirty-nine consecutive patients diagnosed with episodic cluster headache according to the International Headache Society (IHS) criteria were sent for polysomnographic studies. All patients were in an active phase when they were in the study. Patients were told of the proposed relationship and were allowed to choose a sleep laboratory close to their home. RESULTS: Thirty-one patients with episodic cluster headache completed an overnight polysomnographic study. Twenty-three were male and eight female. The average age was 51 years (range 33 to 78 years). The average weight was 173 pounds (range 117 to 260 pounds). A total of 80.64% had sleep apnea (25/31). Average respiratory depression index (RDI) was 19.0 (SD 14.6) with 6 patients having no apnea, 10 having mild, 11 having moderate, and 4 having severe apnea (RDI < 5 = none; RDI 5 to 20 mild; RDI 20 to 40 moderate; RDI > 40 severe). Oxygen saturation decreased on average to 88.4% SD 4.5. Sleep efficiency was 76.2% (SD 13.4). CONCLUSIONS: The data closely approximate those of Chervin et al, where 80% had RDI > 5. The relationship sleep apnea has in the perpetuation or precipitation of cluster headache is still to be determined. There are some reports that treatment stops the cluster but there is no prospective study. The high incidence (80.64%) seen in this population suggests the cluster patient should receive a sleep evaluation and perhaps intervention with continuous positive airway pressure (CPAP) or an appropriate dental device.


Worth getting a sleep study, IMO.
Back to top
« Last Edit: Oct 9th, 2008 at 3:59pm by monty »  

The outer boundary of what we currently believe is feasible is far short of what we actually must do.
 
IP Logged
 
Izzy
CH.com Junior
**
Offline


Choose life.


Posts: 70
Red Deer, AB, Canada
Gender: female
Re: Wierd Statistic
Reply #8 - Oct 9th, 2008 at 4:01pm
 
monty wrote on Oct 9th, 2008 at 3:58pm:
[quote]

Worth getting a sleep study, IMO.



It totally is worth! Um..what's Imo? Thanks.
Back to top
  

"There are no monuments dedicated to me, and my name will soon be forgotten, but I have loved someone with all my heart and soul, and to me, this has always been enough.”
 
IP Logged
 
MPMIII
CH.com Veteran
***
Offline




Posts: 112
Alabama
Gender: male
Re: Wierd Statistic
Reply #9 - Oct 9th, 2008 at 4:04pm
 
It's no wonder we don't want to sleep...
Back to top
  
 
IP Logged
 
Izzy
CH.com Junior
**
Offline


Choose life.


Posts: 70
Red Deer, AB, Canada
Gender: female
Re: Wierd Statistic
Reply #10 - Oct 9th, 2008 at 4:06pm
 
I completely agree with you. It sucks. I hate sleeping & I don't even have it! I just know he's going to wake up crying. And we already go to sleep crying. BLARGH!!!
Back to top
  

"There are no monuments dedicated to me, and my name will soon be forgotten, but I have loved someone with all my heart and soul, and to me, this has always been enough.”
 
IP Logged
 
Jeannie
CH.com Sponsor
***
Offline


Live, Laugh, Love....


Posts: 2333
St Louis, Missouri
Gender: female
Re: Wierd Statistic
Reply #11 - Oct 9th, 2008 at 4:13pm
 
Izzy wrote on Oct 9th, 2008 at 4:01pm:
monty wrote on Oct 9th, 2008 at 3:58pm:
[quote]

Worth getting a sleep study, IMO.



It totally is worth! Um..what's Imo? Thanks.



In My Opinion...

IMHO....  In My Humble Opinion...
Back to top
  

"It's all a grand illusion when you think you're in control." ~ Kenny Chesney
 
IP Logged
 
Izzy
CH.com Junior
**
Offline


Choose life.


Posts: 70
Red Deer, AB, Canada
Gender: female
Re: Wierd Statistic
Reply #12 - Oct 9th, 2008 at 4:19pm
 
Jeannie wrote on Oct 9th, 2008 at 4:13pm:
Izzy wrote on Oct 9th, 2008 at 4:01pm:
[quote author=292B2A303D440 link=1223577408/0#7 date=1223582291] [quote]



It totally is worth! Um..what's Imo? Thanks.



In My Opinion...

IMHO....  In My Humble Opinion...


Thanks!
Back to top
  

"There are no monuments dedicated to me, and my name will soon be forgotten, but I have loved someone with all my heart and soul, and to me, this has always been enough.”
 
IP Logged
 
Potter
CH.com Alumnus
***
Offline


Team MOOSE DROOL Stinky
Stuff on a Hook Prostaff


Posts: 3600
Blgs.Mt.
Gender: male
Re: Wierd Statistic
Reply #13 - Oct 9th, 2008 at 4:26pm
 
I was so lookin forward to dying in my sleep.

        Potter
Back to top
  
 
IP Logged
 
Kit
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 17
Montreal, Quebec
Gender: female
Re: Wierd Statistic
Reply #14 - Oct 9th, 2008 at 5:54pm
 
Hi, Kit here (wife/ supporter of Chris) -
Chris had sleep apnea but this year has lost 50lbs (go weight watchers) and has since had no signs of apnea (snoring, waking up because he can't breathe, etc...) and then CH appeared. Coincidence? Who knows. It really sucks that he has lost all this weight and still gets hit with something as nasty as CH... isn't weight loss supposed to make you healthier? Well, now he has quit drinking (at least during the cycle) and smoking is the next thing to go. The link you posted mentioned that many sufferers of CH abuse alcohol...from eeverything I had read before that is the first time I heard that. Is that a common thread? Let's use the term "abuse" loosely, Chris is NOT an alcoholic but he does like his beer...just curious.
Back to top
  
 
IP Logged
 
mezza
CH.com Alumnus
***
Offline


I love YaBB 1G - SP1!


Posts: 415
north carolina
Gender: female
Re: Wierd Statistic
Reply #15 - Oct 9th, 2008 at 9:55pm
 
Kit wrote on Oct 9th, 2008 at 5:54pm:
. The link you posted mentioned that many sufferers of CH abuse alcohol...from eeverything I had read before that is the first time I heard that. Is that a common thread? Let's use the term "abuse" loosely, .


Lots of links say common thread is heavy drinkers, heavy smokers, very rare in females and that we all have lion shaped faces.   I rarely drink,  not a heavy smoker,  I am a female  and I don't have a lion shaped face.  What seems to be the case is that for every similarity in CH you will find many differences too.    Undecided

What we all do have in common is a screwed up hypothalmus. 


Back to top
  
 
IP Logged
 
Kit
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 17
Montreal, Quebec
Gender: female
Re: Wierd Statistic
Reply #16 - Oct 9th, 2008 at 9:59pm
 
Got it - I think that's what I am figuring out  Sad
Back to top
  
 
IP Logged
 
Pixie-elf
CH.com Hall of Famer
*****
Offline


I've tried the rest, and
busting is the best!


Posts: 517
Beaumont,Tx
Gender: female
Re: Wierd Statistic
Reply #17 - Oct 9th, 2008 at 10:14pm
 
mezza wrote on Oct 9th, 2008 at 9:55pm:
Kit wrote on Oct 9th, 2008 at 5:54pm:
. The link you posted mentioned that many sufferers of CH abuse alcohol...from eeverything I had read before that is the first time I heard that. Is that a common thread? Let's use the term "abuse" loosely, .


Lots of links say common thread is heavy drinkers, heavy smokers, very rare in females and that we all have lion shaped faces.   I rarely drink,  not a heavy smoker,  I am a female  and I don't have a lion shaped face.  What seems to be the case is that for every similarity in CH you will find many differences too.    Undecided

What we all do have in common is a screwed up hypothalmus.  




Lion shaped face? I've never heard that term, could you explain please? :3
Back to top
  

As far as I'm concerned, cluster busting has been the best treatment I've tried. No migraines since I started it, and my hits have gotten so much better. Wanna know more?
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

It's saved my life.
 
IP Logged
 
Kilowatt3
CH.com Old Timer
****
Offline


1952 Jag


Posts: 300
Lake Charles, Louisiana - USA
Gender: male
Re: Wierd Statistic
Reply #18 - Oct 10th, 2008 at 9:45am
 
mezza wrote on Oct 9th, 2008 at 9:55pm:
Lots of links say common thread is heavy drinkers, heavy smokers, very rare in females and that we all have lion shaped faces...


Don't forget that we'll all supposed to be tall, too!  Huh

Regards,
Jim  (6'3")
Back to top
  

Regards,
Jim
SW Louisiana

If "that which does not kill me, makes me stronger", then how come I always feel like $hit after every near-death experience?
WWW kilowatt3  
IP Logged
 
LeeS
CH.com Alumnus
***
Offline


I love C12 H16 N2O!


Posts: 639
West London, UK, Europe
Gender: male
Re: Wierd Statistic
Reply #19 - Oct 10th, 2008 at 10:21am
 
I believe it was a chap called Dr Graham who first suggested the "leonine facial appearance" in CH in the late 1960s, amongst many other weird observations.  I also believe that this has subsequently been labelled a myth; see:

Quote:
Journal Current Pain and Headache Reports
Publisher Current Medicine Group LLC
ISSN 1531-3433 (Print) 1534-3081 (Online)
Issue Volume 10, Number 2 / April, 2006
DOI 10.1007/s11916-006-0025-z
Pages 137-141

Cluster headache: Myths and the evidence

Herbert G. Markley1  and Dawn C. Buse1

(1)  New England Regional Headache Center, Inc., 85 Prescott Street, 01605 Worcester, MA, USA

Abstract  Although cluster headache (CH) has been the focus of a great deal of research, it also has been the focus of a great deal of speculations that have been repeated commonly as fact. The authors conducted a thorough review of the literature and an informal poll of several noted headache experts to investigate the truth behind common myths and hypotheses regarding CH. They then present an overview of some of these more common hypotheses, observations, and myths, and offer a brief review of the existing evidence supporting or negating the theories. These include gender, genetics, suicidality, homicidality, physical appearance, personality, and psychologic features of the patient with CH.

-Lee
Back to top
  
 
IP Logged
 
Balanchine
CH.com Alumnus
***
Offline




Posts: 238
x0|Los Angeles|USA||0|0|CA,Cal
Gender: male
Re: Wierd Statistic
Reply #20 - Oct 10th, 2008 at 2:13pm
 
I have more of a paramecium-shaped face.
Back to top
  
 
IP Logged
 
Izzy
CH.com Junior
**
Offline


Choose life.


Posts: 70
Red Deer, AB, Canada
Gender: female
Re: Wierd Statistic
Reply #21 - Oct 10th, 2008 at 9:33pm
 
Kit wrote on Oct 9th, 2008 at 5:54pm:
The link you posted mentioned that many sufferers of CH abuse alcohol...from eeverything I had read before that is the first time I heard that. Is that a common thread? Let's use the term "abuse" loosely, Chris is NOT an alcoholic but he does like his beer...just curious.


I know I read that & thought it was strange that they would use such a strong word! Sorry if it offended; but just so you know I don't use that word. Just because people drink doesn't mean AT ALL that they "abuse." I hate that word. I'm a social drinker...I just like my vodka. My husband doesn't drink at all but that's because it makes him sick, not because he doesn't enjoy it. So to answer your question; NO it's not a common thread. I think some people misunderstand a trigger as something we overuse  & therefore they use that word but it's not...it's just something that could possibly cause a hit is all.

Bless;
Iz
Back to top
  

"There are no monuments dedicated to me, and my name will soon be forgotten, but I have loved someone with all my heart and soul, and to me, this has always been enough.”
 
IP Logged
 
Pixie-elf
CH.com Hall of Famer
*****
Offline


I've tried the rest, and
busting is the best!


Posts: 517
Beaumont,Tx
Gender: female
Re: Wierd Statistic
Reply #22 - Oct 10th, 2008 at 9:50pm
 
Kilowatt3 wrote on Oct 10th, 2008 at 9:45am:
mezza wrote on Oct 9th, 2008 at 9:55pm:
Lots of links say common thread is heavy drinkers, heavy smokers, very rare in females and that we all have lion shaped faces...


Don't forget that we'll all supposed to be tall, too!  Huh

Regards,
Jim  (6'3")


My face is heart shaped and I'm 5'7" XD I still have no idea what a lion shaped face would look like, though...
Back to top
  

As far as I'm concerned, cluster busting has been the best treatment I've tried. No migraines since I started it, and my hits have gotten so much better. Wanna know more?
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

It's saved my life.
 
IP Logged
 
Brew
Ex Member



Re: Wierd Statistic
Reply #23 - Oct 10th, 2008 at 9:53pm
 
My face is shaped like an ass.

This shit must be all in my head. Which is also my ass. Which is also my face.
Back to top
  
 
IP Logged
 
Izzy
CH.com Junior
**
Offline


Choose life.


Posts: 70
Red Deer, AB, Canada
Gender: female
Re: Wierd Statistic
Reply #24 - Oct 10th, 2008 at 9:53pm
 
Pixie-elf wrote on Oct 10th, 2008 at 9:50pm:
[quote author=002227243C2A3F3F784B0 link=1223577408/0#18 date=1223646353][quote author=49415E5E45240 link=1223577408/0#15 date=1223603722]


I still have no idea what a lion shaped face would look like, though...


Jon & I can't figure it out either...but at any rate it would be interesting. He has a Roman-esque face. I don't think faces have anything to with it; there are so many things that vary from person to person it seems...but I enjoy the laugh I get trying to picture a lion face. All I can think of is Beauty & The Beast...which makes us laugh MORE. (If anyone has ever seen the TV special that was on a few years ago with real actors?)
Back to top
  

"There are no monuments dedicated to me, and my name will soon be forgotten, but I have loved someone with all my heart and soul, and to me, this has always been enough.”
 
IP Logged
 
Pages: 1 2 
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!