Ungweliante
CH.com Veteran
 
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Happiness comes from personal choice \o/
Posts: 169
Helsinki, Finland
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Hello everyone!
Several times before I've said that I don't get any respite from anything else than steroids. Not oxygen, not triptans, not RC seeds, not magnesium and so on. I've also been suffering from these headaches for a year now, so there's the official chronic status.
Last weekend I had a ongoing headache for two days, so I finally decided to try a NSAID to cure it, 600mg of ibuprofen. It sure took the pain away but also morphed the CH. I've been getting two hits per day for weeks now, one in around midnight and one in midday. That evening or the night I didn't get hit at all, but rather got an early morning hit, what I haven't had for weeks. Nevertheless, I wrote it off as a coincidence.
What followed that day at work was a very bad hit, one that had me scraping the surface on the chair with my nails, hyperventilating and wailing. Somewhat scared of that experience, I had to gather several days of courage to try the NSAID again. The CH had indeed morphed, and now I got three times, once just before bed, the next day in the night at 3 am and so on. It was as if the beast was annoyed and confused.
Yesterday I hadn't had an attack before it was definitely bedtime. If that happens, I'm basically sure to get hit a couple of hours after falling asleep. I decided it was a good time to try the NSAID again and took one. No attack as of yet.
Of course this could all be a coincidence, but I don't think it is. A bit less than year ago I was eating indomethacin, another NSAID, for months and that was a very easy period for me. Afterwards it stopped working and I also stopped taking to get rid of the medication overuse headaches, which the daily use of NSAIDs sadly leads to.
Also I think it's clinically very interesting. I've tried opiates for the pain and they haven't helped - the pain is so intensive. Yet a simple NSAID makes the attack not come! There has to be some other mechanism than reducing pain at work here - the steroids and NSAIDs both reduce inflammation, for example. That's something that the opiates won't do.
Does this mean that I don't have CH? Maybe. I don't know. Chronic paroxysmal hemicrania perhaps? Statistically, I get far too few attacks and they don't last long enough. But we all know how at least CH defies falling into any sort of easily definable parameters.
- Best regards and PFDAN for everyone, Rosa
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