After using several Zomig this week and last to abort my daily 10:30 pm cluster headache, I finally had a nasty reaction and spent the best part of Tuesday in the ER getting checked for heart problems as well as most of today getting other heart stuff done at my GP's office as well as visiting the Neuro to get the meds changed up, got started on prednisone, got him to up the verapamil, and finally got me a prescription for some Oxygen. The Neuro told me the O2 prescription would take weeks to get done, but after talking to the nice lady at TLC Medical Supply in Franklin TN on the phone just before they closed this evening, I'm told this isn't so.....

So I'm happy I have the Oxygen prescription, confused about how to get the damn stuff tomorrow, and upset about facing my 10:30 tonight with nothing to abort it.

As it turns out, my heart looks fine in all respects ( BP 120/80 resting and 150/72 at full exercise during the stress test, resting heart rate 62 beats per minute, etc)...just too much damn Zomig.

hey jason, bill from Cleveland here. cluster suffer for a long time, i used to use zomig too, ate it like it was candy during a hit and it worked like a champ THEN. But all of a sudden one day the golden calf stopped giving me milk, i never worried about the 2000 pound rihno on chest, blowing up my heart seemed like a small price to pay at the time. I used to tell my doctor when he would ask me to try a different meds " no way your taking my zomig "  Untill i threw the empty box at him, he gave me imetrex, preds and 02. then i found clusterbusters.com and all i need now is the 02 sometimes, and even my tank is getting dusty. Good luck friend, Be Well. coach bill

Gonna go on down to the store and get me some energy drinks forthwith as well as brew some coffee to have ready.

Yeah, I thought it was kind of odd also about the neuro....the lady I talked to at our local hospital supply place sure didn't seem to think it was a big deal but who knows really.....guess I'll find out in the morning....believe me when I say it's the first thing on the list.

Thanks to all and wish me luck for later. It's about two hours to waking time for the beast.

Good luck Jason and please keep us informed.


    Remember this o.k.?   the squeeky wheel gets the most oil.  Being informed puts you in a position of power.   Keep at em.


Linda

Yes sir, and yes ma'am, I sure will.

I don't think I have heart issues.....none of the many tests I've had these past couple days would indicate that, including the stress test I had today. What I think I've had is way, way too much Zomig. But thanks just the same for your concern.

I'm a big fellow....5'10" and about 215 lbs, but I also have a big frame and not a lot of extra fat...some, but not a lot. It's hard to be completely out of shape when one farms for a living.

Jason, Hope yur doing better. Oxygen works great for at least 70% of us aborting up to 90% of the attacks, which means you won't need the Zomig so often. It must be prescribed and used prperly though. At minimum 10-15lpm though a NON-REBREATHER mask, the nose canula are worthless for CH and many Dr's are not aware of this.

Did the Neuro give a script already? What does it say? You should print the info from this site to educate them if it shows different than what I've stated above. This is very important to the successful use of oxygen (O2) to abort CH attacks.

Nice picture of you and the Mrs.   Best, Don         This size thing here is me trying to make my post text larger. Please forgive me if any misunderstandings  have occured.  Sincereley, Don  Edited: 11/2/08 size[size=14][/size]