I had one once in my nuero's waiting room.

It got me in to my appointment early and finally convinced him to rx the O2. Prior to actually witnessing a hit, he was denying the possibility that i was suffering from CH. "It's gotta be something else, you're not male. Women don't get CH"

As much as it was embarrassing to have a hit in public and scaring the receptionist and other patients, i am glad it happened since it finally got me the right DX and the right meds to help.

I've had my neurologist, GP, and hematologist witness me during hits. All at different times.

The neurologist heard me screaming down the hall, and came to see what was going on after 3 nurses came to see. After he saw I was in a hit he understood why I was screaming. He tried to touch me as little as possible, but I knew he had to some with it being a neurological exam... so I was prepared for it.

The GP had seen this before in several of his patients. So he wasn't too shocked. My hematologist was probably the only one who was shocked about it.

I don't get embarassed anymore when I have one in public, at a doctor's office or no... I think about it in the same way I think of other illnesses. If a person is having a seizure, they don't need to be embarassed of losing control of their bodily functions... So why should we be embarassed at how we deal with our clusters? It's not something we can honestly control.

Mystina

thought i was the only one who felt like a turd in the punchbowl? lol! Yeah i still try to hide every time. People freak out when they see something like that. They just can't comprehend the pain.You don't know how many times my ch's have been compaired to the pain of kidney stones. While kidney stones are painful, they are a walk in the park to these things.

Never got hit at my docs or neuro's office, but that's because my hits come at night (as long as I don't screw with my preventative, which last cycle was Kudzu).  I did get hit in Walmart once, lower on the kip scale, but painful nonetheless.  I held my composure as best I could until just before I paid for my things.  The guy cashiering asked me "Are you ok?", and I uttered "In about 20 more minutes", and then grabbed my crap and hightailed it out of there.  Ran to my car, and then broke down crying, rocking and moaning until it left.

Needless to say, I steer clear of stores in the evening if I'm in cycle, lol.  But I do wholeheartedly agree that if I could get hit and my docs see it, I'd feel like I've helped to educate them all the more on my condition.

mel

I actually got hit really badly a couple miles from my neuro (at the time) office. I was floating around Kip7 or above and made it to the parking lot and went inside asking for help. Told the girl at reception that I was having a cluster headache and did not have anything to treat it with, and asked if they could they help me.

"What kind of insurance do you have?"

I responded "Blue Cross" and she said, I'm sorry.

I said I'll pay cash, check, credit card, I don't care.

"I'm sorry" was the last thing I listened to. And spent the next 15 minutes with my face against my Ford air conditioner vent crying.

Very interesting topic.  I don't get the high Kip clusters that often other than the peak of my cycle, however I did get one low kip at the GP before while waiting for the 3 month long neuro visit.  Yeah, it takes that long to get an appointment.  I needed to come in for the Imitrex refill.  I guess after so many refills, they want you to come in for evaluation.  My GP was the first one to fiqure it (CH) out before she sent me to a neuro some years ago.  She saw the dripping and redness in my right eye and saw my ear swelling with her scope.  Fortunately it was a low level hit, almost a strong shadow that I didn't have a scene at the office, but was in pain.  I can control my pain well even while at work, however without Trex at work, I usually go out to my car to duke it out with the beast.  I just started my rc seed treatment 1 month before my next expected cycle (Jan.-Feb.) so i'm crossing my fingers. 

I'm kind of pissed at my neuro though because when i said about talking to folks on this site, he said you got to "watch out" for those chat rooms and what they say.  I literally told him about shrooms years ago and how my cycle suddenly stopped after the trip and he just rolled his eyes at me since he is a pharmacuetical nut.  More money in his pocket.  I think it pisses him off to know that natural things can actually prevent or abort clusters.  Yeah well, this site is better than my neuro.  I've found another neuro locally that is listed on the OUCH site.  I may visit him next if he is within my insurance network.

Back to the original subject, I think it's good for doctors to see what we go through so they can know the intensity of our pain.

I hope you all have PF days during this holiday season.

Seaons Greetings to all!!!

Chad

A doc with CH?  Wow, Kuno, you are the luckiest SOB on the planet!!