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My simple cure (Read 9298 times)

Andy H

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My simple cure
Nov 14^th, 2008 at 6:29pm

Dear fellow cluster headache sufferers, PLEASE READ MY STORY, it changed my life & hopefully it will do the same for you…
Hi my name is Andy, I am a female, 45 years old residing in NJ & I am a recovering cluster headache sufferer. Thank God I found a cure On my own cause after 17 years of suffering with the debilitating, suicidal pain & seeing every kind of doctor you can imagine & taking all kinds of prescribed drugs, I found my cure & low & behold I found my cure On this site 8 years ago & decided to visit back here to tell my story in hopes of helping others. It all started back in the early 80's, I was in a terrible car accident & my head went through the windshield causing severe trauma to my head... if that wasn't bad enough, after I recovered from the hospital, one day out of the clear blue sky I started getting what felt like a cramp over my left eye & I knew immediately something was wrong. Slowly the cramp became more intense & within minutes it felt like a knife had jabbed into the side of my head. I never felt such unbearable pain before in my life. I had no idea what was happening to me as I'm sure most cluster sufferers know & ran the gambit with doctors... MRI's, cat scans, ect. My biggest fear at the time was cancer, blood clot, stroke, ect. Then as quickly as it came, it went leaving me wiped out not knowing what had happened, thought everything was fine then 4 hours later it came back. My first bout of cluster headaches was approximately 4-8 attacks daily & lasted for a month or so per cycle. When they went away & all the doctors conclusions came with no severe ailments, I was relieved.. then like clockwork exactly 1 year later they came back with the same process. Once again reaching for doctors help for any kind of cure & believe me I've tried them all.. I was one of the first trial members to use Imitrex & Sta-dol & numerous other medication for typical migraine headaches because there was very little information on cluster headaches. Most of the doctors just thought I was trying to get some quick pain killers & never believed me. I suffered annually for 17 years until one day I stumbled across this website 8 years ago. I was relieved to be able to network with other sufferers who truly understood the pain & when I was reading the section on possible treatments, everyone was giving their friendly advice & one gentleman was very adament that when I suffered the initial cramp to drink a can of Pepsi as fast as I could… he swore up & down that this was the cure… he said & I quote “If the cluster headache was a werewolf, the can of Pepsi was the silver bullet” I personally thought it was a joke at first but I figured what the heck it couldn’t hurt. So we stocked Pepsi in our house & when I started getting the cramp, I did exactly what he said & IT WORKED, honestly within minutes the pain started dissipating & was gone with no repercussions. At first I thought it might have been a fluke because sometimes the cramp starts & goes away on it’s own & never manifest to the full head pain. I was excited & relieved but still not 100% sure. The next time the cramp came, once again I did the Pepsi trick & again gone in minutes. For the entire month I was able to battle the attacks with a simple can of Pepsi… I was never so relieved in my life so I please urge all that read this to at least try it, the Pepsi trick. Other soda’s may work as well but I never took the chance. It may not work for everyone but I’m here to say that it has now been 8 years since my last cluster attack & there’s always Pepsi in my fridge in case the beast comes back. I truly hope this works for the fellow sufferers & the family members. Take very good care & God Bless.

Andy

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Potter

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Re: My simple cure
Reply #1 - Nov 14^th, 2008 at 6:37pm

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Never never ever call a Pepsi a cure. Maybe abortive would have been a better title. Cure leads me to believe one Pepsi no more ch forever.

Potter

« Last Edit: Nov 16^th, 2008 at 9:34am by Potter »

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Guiseppi

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Re: My simple cure
Reply #2 - Nov 14^th, 2008 at 6:40pm

We're really gun shy around the word "cure" here, it rankles many on the board! Wink

Glad to hear you've found a "treatment" that aborts your attacks. If the pepsi by itself ever begins to lose its effectiveness, your next step is an energy drink containing both caffeine and taurine. The caffeine in the pepsi has a vaso constricting effect on you which is what halts the progression of the attack. The taurine in energy drinks actually speeds the delivery of the caffeine, kind of a one two punch!

Hoping you never have to escalate the treatment, do stick around as you can never have too much knowledge against the beast!!

Guiseppi

"Somebody had to say it" is usually a piss poor excuse to be mean.

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Jonny Ex Member	Re: My simple cure Reply #3 - Nov 14^th, 2008 at 6:56pm I take it you just started working for Pepsi, why else would it take you 8 years to come back and tell us? Cure my ass!
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BMoneeTheMoneeMan CH.com Alumnus Offline In remembrance of KingCazman. RIP Posts: 2674 Portland, OR	Re: My simple cure Reply #4 - Nov 14^th, 2008 at 7:12pm Ohhh Chuck?!?! Jonny needs his ass cured. And you thought he would never ask!!!
Back to top	"Fool me once, shame on, shame on you. Fool - can't get fooled again"&&&&&&Think of how stupid the average person is, and then realize half the population is stupider than that.&&&& IP Logged

CH-HELL Ex Member	Re: My simple cure Reply #5 - Nov 14^th, 2008 at 7:29pm BMoneeTheMoneeMan wrote on Nov 14^th, 2008 at 7:12pm: Ohhh Chuck?!?! Jonny needs his ass cured. And you thought he would never ask!!! Pepsi do I use that IV or as a suppository inserting the whole can at once or gradually? Please draw a diagram using this.
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ClusterChuck CH.com Alumnus Offline The BEAST rises again, and again, and again, and . Posts: 5394 Greenville, North Carolina Gender:	Re: My simple cure Reply #6 - Nov 14^th, 2008 at 8:00pm Quote: Cure my ass! I'm here for you, baby! Mama will make your boo-boo all better ...
Back to top	CAUTION: Do NOT smoke when using or around oxygen. Oxygen can permeate your clothing or bedding. Wait, before lighting cigarette or flame. Keep fire extinguisher available, and charged. IP Logged

ClusterChuck CH.com Alumnus Offline The BEAST rises again, and again, and again, and . Posts: 5394 Greenville, North Carolina Gender:	Re: My simple cure Reply #7 - Nov 14^th, 2008 at 8:03pm I had to remove what I said here. It was too cruel and flat out WRONG! I am sorry, Andy. Chuck
Back to top	« Last Edit: Nov 16^th, 2008 at 7:51am by ClusterChuck » CAUTION: Do NOT smoke when using or around oxygen. Oxygen can permeate your clothing or bedding. Wait, before lighting cigarette or flame. Keep fire extinguisher available, and charged. IP Logged

-johnny- CH.com Sponsor Offline theres no smoking on the dock Posts: 1642 fayette county ohio Gender:	Re: My simple cure Reply #8 - Nov 14^th, 2008 at 8:25pm pepsi isn't so far fetched. i've heard of people snorting cat urine. it must be fresh and body temperature though.
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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: My simple cure Reply #9 - Nov 14^th, 2008 at 10:24pm Good grief....like anyone could even read all that without their eyes going crazy. So I didn't. Paragraphs are our friends. There is no cure for CH. Period! Only ways to deal with it. Don't know what you're pushing but since my friends here say it's Pepsi, all I can do is laugh.
Back to top	Hurt people.....hurt people. Think about it. IP Logged

Andy H

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Re: My simple cure
Reply #10 - Nov 14^th, 2008 at 10:49pm

Excuse me for trying to help... I didn't know I was going to be insulted.

No I don't have any connections to the particular soda company in question, it just WORKED for me & I had that remedy work for 3 years until they finally stopped but who knows if they will ever come back.

I haven't had a drink of alcohol in 8 years in fear of them returning. Does anybody know if alcohol is connected?

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Guiseppi

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Re: My simple cure
Reply #11 - Nov 14^th, 2008 at 11:40pm

When I am on cycle, (and true for most) alcohol is poison! For many it'll bring on a hit within minutes, although there are a few who can get away with drinking. Off cycle I enjoy my blended whiskeys, micro brew beers and merlots with no fear of the beast. Alcohol has never started a cycle for me, but is avoided while on cycle!

Please try not to be sensitive about the responses. We get a lot of quacks who come through here offering to cure us with berry drinks from Africa, vitamins from the east, all exotic cures which they can get us a deal on. (you haven't seen rude responses until you've seen how we dispatch those trolls!!!) And there are many on the board who just have a sarcastic sense of humor to how they respond. Wink

If you suffer from CH, stick around and expand your knowledge. If it's truly CH, it will morph, and what works now, won't work later. One of the more annoying traits of the beast. Wishing you pain free days.

Guiseppi

"Somebody had to say it" is usually a piss poor excuse to be mean.

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-johnny- CH.com Sponsor Offline theres no smoking on the dock Posts: 1642 fayette county ohio Gender:	Re: My simple cure Reply #12 - Nov 14^th, 2008 at 11:41pm andy when you come on here with your 7000 word paragraph for a first post feeding us your bullshit it's an insult to us because it's like saying that we're dumb enough to believe it. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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ClusterChuck CH.com Alumnus Offline The BEAST rises again, and again, and again, and . Posts: 5394 Greenville, North Carolina Gender:	Re: My simple cure Reply #13 - Nov 15^th, 2008 at 12:32am I had to remove what I said here. It was too cruel and flat out WRONG! I am sorry, Andy. Chuck
Back to top	« Last Edit: Nov 16^th, 2008 at 7:52am by ClusterChuck » CAUTION: Do NOT smoke when using or around oxygen. Oxygen can permeate your clothing or bedding. Wait, before lighting cigarette or flame. Keep fire extinguisher available, and charged. IP Logged

BlueMeanie Ex Member	Re: My simple cure Reply #14 - Nov 15^th, 2008 at 1:08am I've been drinking that stuff my whole life. Love it. Too bad I still get Clusters.
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wildhaus

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Re: My simple cure
Reply #15 - Nov 15^th, 2008 at 6:33am

Hi

So if I understand it right, and the cure to our malady is as simple as the one this thread is all about.

I wonder if the (little) founds for research for CH should be diverted to improving the mentioned product above.

And I wonder why did I waste my time with with ONS, and O2, and ONB and other methods, and
running around trying to promote research.

I just simply had to go to the next gas station / store and get some cans and, MIRICLE I am cured....
how stupid was I ?

Tks. For this enlightening post! BTW can it be mixed with Rum..... like that every time I have a mix
drink using the miracle product ..... I add to the cure process..... I am a lucky man...... I am happy......
I can get drunk.... and know that I will never have a CH episode again......

Michael

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MPMIII CH.com Veteran Offline Posts: 112 Alabama Gender:	Re: My simple cure Reply #16 - Nov 15^th, 2008 at 8:20am DJ, No need to keep the site up and running, just redirect everyone to Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or . Think of all the free time you will have!
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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: My simple cure Reply #17 - Nov 15^th, 2008 at 11:04am Quote: DJ, No need to keep the site up and running, just redirect everyone to Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or . Think of all the free time you will have! Now THAT is funny.
Back to top	Hurt people.....hurt people. Think about it. IP Logged

BMoneeTheMoneeMan CH.com Alumnus Offline In remembrance of KingCazman. RIP Posts: 2674 Portland, OR	Re: My simple cure Reply #18 - Nov 15^th, 2008 at 1:18pm Pepsi isn't covered under most insurance plans though. That's why most people go to Canada to get it. They gotta wait 3 months to get it though, due to the socialized medicine.
Back to top	"Fool me once, shame on, shame on you. Fool - can't get fooled again"&&&&&&Think of how stupid the average person is, and then realize half the population is stupider than that.&&&& IP Logged

Lenny CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 642 Los Angeles,CA Gender:	Re: My simple cure Reply #19 - Nov 15^th, 2008 at 4:55pm I was wondering.....Does the diet version work aswell.....If not could you tell me the differance
Back to top	yes a newbie,unfortunately not to the beast!!!Chronic - Clusterhead IP Logged

-johnny- CH.com Sponsor Offline theres no smoking on the dock Posts: 1642 fayette county ohio Gender:	Re: My simple cure Reply #20 - Nov 15^th, 2008 at 7:08pm Lenny wrote on Nov 15^th, 2008 at 4:55pm: I was wondering.....Does the diet version work aswell.....If not could you tell me the differance no. the Aspertine cancels out all the good stuff.
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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: My simple cure Reply #21 - Nov 15^th, 2008 at 8:48pm What about about Coke? Will it work as well as Pepsi? I don't like Pepsi. Jeannie Edit to add.... I am going to go take a Tylenol. I got a HA from reading that paragraph.
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Pinkfloyd

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Re: My simple cure
Reply #22 - Nov 16^th, 2008 at 2:52am

ClusterChuck wrote on Nov 15^th, 2008 at 12:32am:

[quote author=0E212B36283A3D234F0 link=1226705369/10#10 date=1226720998]

Honey, you don't know what real insults are!

Isn't this just special. We're going to get lessons o how to insult properly.

Just like you don't know what real cluster headaches are!

Are you so dumb that you think you are the first person on this site to drink Pepsi?

If you read her post, you'll see that she isn't the first. That she actually learned the tip HERE, from someone else. She didn't say she was the first. Want to take back, or own, the "dumb" part?

Maybe you can fool yourself into thinking that you actually had clusters, and that Pepsi cured it. Go right ahead, just don't try and push that bullshit story here, OK?

So you're going to diagnose her based upon what helps her? You of all people are going to question someone that says they have clusters?

I guess we WERE due to get another snake oil quack in here ...

Snake oil? This post has nothing in common with snake oil salesman posts. Were you just digging deep into your bag of insults? If so, you pulled out an inappropriate one.

[/size]

ClusterChuck wrote on Nov 14^th, 2008 at 8:03pm:

Andy, try to learn what a paragraph is.

People ending their sentences with the word is, should not be correcting other people's grammer.

Enjoy your life.

Enjoy your Pepsi.

Bobw
This place just never changes....or grows up.

"those who torment us for our own good will torment us without end, for they do so with the approval of their own conscience."
- C.S. Lewis
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wildhaus

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Re: My simple cure
Reply #23 - Nov 16^th, 2008 at 4:36am

Bob
I do respect you and your work, your dedication, and I even share some of your believes about CB, I just do not use them for practical reasons, and I do mention the alternative way at every chance I get, for the individuals who are interested to know more about CH.

But, I did not like your last comment, and I quote “This place just never changes....or grows up.”

Pinkfloyd wrote on Nov 16^th, 2008 at 2:52am:

Bobw
This place just never changes....or grows up.

….you are very much right, we do react at times harshly towards statements like the one we are discussing “My simple cure“, Bob even you don’t have the magic bullet, and I don’t recall seeing you go around and claim you have the cure, so it is natural that some of us jump when we see the word “cure”.
I have done my share of experimental treatments, some did work to a certain extent, some failed, some have laid the ground work for further R & D but I have never dared to even think to use the word cure, it is as if one has it all, and I am some what sceptical with posts that have the word cure…… posts that have it all.
Not only that the word cure has been abused, in this post it came some what at a very “interesting” time….. after, what was it 8 years, some what very odd to wait so long to proclaim the salvation.
Secondly Cure for CH, for all, you must be joking, by its nature the word cure intales no need for dependency of any further use of any substance be it main stream meds, or alternative substances, or be it normal commercial products.
But if the person that posted this thread needs to still store the magic product for a re occurrence of the Ch episodes then its not a cure; its is just another substance, just another tool and not a CURE!
So the Individual posting the initial thread should be careful at how he / she words their threads, proclaiming salvation / cure is a remainder of prefatory acts, and that is at any time questionable….. and does stir the “pot”.
I understand that the apparently the info was initially on one of the boards, I could not find it, and I wondered that it never found a follow up, like the one with the energy drinks……

Bob this time around I think you have hurt your integrity some what in my eyes, and yet, I still find you, your work, and dedication extraordinary, and you have my full respect!

Michael

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LeLimey

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Re: My simple cure
Reply #24 - Nov 16^th, 2008 at 4:44am

Sometimes people here sicken me.

Pepsi contains caffeine doesn't it? Aren't we always preaching coffee and red bull? Peoples tolerances to caffeine vary y'know. I find just plain pepsi or coke used to help with shadows and in case all have you have forgotten - caffeine exacerbates "normal" headaches.

There is no need for the degree of ugliness displayed here.

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