Dear Helen,

There is room for all as far as I’m concerned, hell even I came back from discouragement on this site. I was mainly to blame but so be it. It is and will be just what we the members make of it.

I find myself gravitating to close to the oven and end up well done too often to count (not looking for examples ether).

I’m going to stay with the crowd that thinks (alumni) that this kind of stuff belongs on that board because the ones posting to it are almost all able to see it there and it serves no purpose for the rest of the users here. All it is doing is sending bad vibes to the newbie’s.

PF to all and to all a good night

Roland.

gizmo wrote on Nov 16^th, 2008 at 4:14pm:


Just my 2 cents!

Edit to add all ya got to do is drop that plastic Bro.  

I was thinking more about the replies than the original post itself.

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You think?

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I think it has more to do with people reading the whole thing that was written and not jumping all over everyone's case.  There have been quite a few posts to newbies that have been downright mean for no reason, and posts to non-newbies that have been downright mean. 

There's been a general lack of compassion from a lot of people here.  I myself have had multiple, numerous times that I've wanted to not come here anymore.  The only reason I've stayed is because there are a few great friends I've come to know here.  I find myself not wanting to read or post anything because it does seem there is that attack mode and rudeness all the time. 

As to Andy lying....why does it have to be about her lying?  Why does it have to be such a big deal that Pepsi helped her when we all know how energy drinks help tons here.  If you actually read what was written, you'd have seen that her husband said in 1990 he met her, 9 years later (making it 1999), he found this site and she tried the Pepsi.  Another 8 years later (making it 2007 [so they were a year off!]) she has been having success with it still and decided to post. 

I understand people have things going on in their lives so they get a little pissy at times, but I think we all need to step back and turn off the attack buttons and be a lot more considerate.  What is that saying?  "You attract more bees with honey".

"I have been with Andy since 1990 and YES she had the beast! When I first met her she had told me about these killer headaches and how they last about a month or so with multiple attacks daily!

At first I thought it was just a headache…but when I witnessed the extreme agony she was going through!… I felt helpless and could only hold her and rub her temples…she would scream and cry and bang her head against the wall virtually on the brink of suicide!

We went to doctors to specialist’s etc…just as she said and NOTHING WORKED!…not even slightly subsiding the pain! I watched the beast come and go year after year like clock work for 8 years! Then when the 9th year came around I swore that I was going to find some kind of help on the internet and I discovered this site."

My darling Mum, what ever it is that you decide to do, know that I am here for you. Life has been hard on both of us lately and I know you personally are some one I have countless times come to lean on. Both Brother and I are always here for you and will support you in whatever you do. As for the other issues that were brought up in this post, I will not comment on because it's really not my place. I hope to see you and my sweet little sister soon. Strength be given to you, my mother. I love you and I will miss you if you go.

Broken

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You leaving us permanently? Aw Gee.


I've tried calling someone out for their rudeness and downright cruelty, and got chastised for it by one of the mods! And got told that I shouldn't have done that to this person especially!

Good luck folks, it's every person for themselves. I too miss the members who no longer post, and since I've been here there have been many "regulars' that no longer post, or have deleted their profiles. I miss the friendly threads, with the banter between family, but we can't have that anymore without some people butting in, and being rude and despicable.

The CH specific and Meds boards AND the newby board have NEW people on there, trying to COMMUNICATE with US!! And a few end up beating these people up, when they need us most! When they need our help, and we actually have a chance to make a difference in someone's life, and they are driven away.

Geez, I guess that is too hard to do, it's much easier to slam someone and the treatment they use for themselves, if it works for them, then halle-fucking-lulla! Our pain is ours and ours alone. No one has pain like us, so why not get into the "my pain is worse than yours" game?

Let's treat anyone who has any other pain like outcasts. Lets do the same to anyone having a different kind of headache. Hell, let's just do it because we are superior.

I haven't been around that much lately, not that it matters, because of the meanness and hate that is expressed here. This placed has changed over the last several years, and especially over the last several months.

Pretty soon, there will only be a select few here. The ones who think they own the place (and you know who you are), and new people needing help. And they will be ridiculed and chased off the board.

I agree with you Helen, and you too Bill. Too bad, I think we are in the minority.

I've said it before and I'll say it again. If you can't say something nice about someone, then STFU. I can't believe anyone was raised to speak to people the way they do here. Have a little respect.

purpleydog wrote on Nov 16^th, 2008 at 5:59pm:


Man, if you aint full of your self.....LMMFAO  

H e L L e n nn...........we need you!

Just straighten this board out and stay right here for all of us.  What would we do without your messages?

We love you and want you right here.

Helen, please check your pm's.

Helen, I hope you don't go (maybe a little break would do a lot of good and then come back).

As to the other stuff. I've said my say on some other threads, but...

New people come here every day asking for help. Some have CH and some don't - but think they might. Some don't know the difference between CH and migraines because doctors don't know the difference a lot of times. But we still should be polite and not bash them.

If they use the wrong terminology so what? That's no reason to go off on them. As Charlie said, we've all had our cycle "cured" at one time or another.

My words have been turned around by people over the years and I've been blasted for things that were written, taken out of context and weren't what I meant at all.

We need to remember that none of us own this board (DJ does). DJ has shut it down a couple of times because of shit like the stuff that's going on right now - we DO remember that don't we?

So, I'd just like for everyone to think about (the next time you start to post a bash to someone) what would it be like for all of us without this place to come to every day? Maybe we all need to start showing a little more compassion and giving people the benefit of the doubt rather than picking their words apart and looking for things wrong.

Hugs BD

Check your pms.

love,
me