goddamn just read some post about people who dont get imitrex from their insurance compagny and they have to pay themselve....200 dollar .... i CANNOT understand this
..this is the most stupid and craziest shit i ever heard.... i live in holland my insurance comp pays everything ...if they dont i will kill the manager off the compagny ....i feel so sorry for u guys who have to pay for this crap ...or worst cant afford it ....dammnit

I honestly don't think there isn an answer at all to it.
If it was we wouldn't have problems getting O2 or finding a good neuro (yes I have the same problems here in Germany which is supposed to have socialized medicine).

Oliver

They don't get it because they don't fight for it. I fought and I won. They would rather be told no once and complain about it rather than get mad and do something about it.

maalstroom wrote on Nov 18^th, 2008 at 7:00pm:


Matt means that you do not have to take NO for an answer when you are paying for insurance, you can bitch and scream at them because you are paying them.

Im sure Matt will correct me if im wrong, but I doubt it!  

I would like to suggest to all of you who have issues getting insurance to pay for anything to make a call and keep asking "What can be done?" over and over again.  Tell them you can get a doctor's letter and/or information supporting your need for meds that might be either off label or a 2ndary use.  It wont always work, but go as far up the ladder as you can, yell if it is your style and listen for the loopholes.  I always listen for words like "There's ALMOST nothing I can do" or "Sorry but there isn't MUCH I can do".  Always find out what the little they can do is.

It was thanks to people who came before me that Oxygen was even covered by my insurance company (before I bought my own regulator) because they laid the groundwork.  I also had to fight for 6 months for Migranol (because my headache specialist told me it would work).

Anyway.....fight the fight.  It may not work very often but it may be worth it in the long run.

How To Get Around Insurance Company Restrictions

As Cluster Headache suffers many of us depend on triptans as a lifeline to sanity. Imitrex (sumatriptan),Frova (frovatriptan), Zomig (zolmitriptan), Amerge (naratriptan), Axert (almotriptan), and Maxalt(rizatriptan). As abortives, triptans have saved us from many hours of excruciating pain.

One fact about Triptans is that they are expensive. Another fact is that insurance companies do not like them and limit the quantity that they will pay for. The company that I worked for had changed insurance companies not too long ago and I had gone from a company that I had to fight just to get them to approve a prescription for 5 vials every 30 days to a
company that would allow 1 vial every 30 days. I was furious to say the least. At the time I was having five attacks a day. Each attack lasts up to 90 minutes. My cycles generally last for 3 months. That is 675
hours each cycle of some pretty serious pain, and I am one of the lucky ones.

Something was not right. I could not understand how insurance companies could deny us a treatment that our doctors prescribed to us to relieve us of this horror called clusters, even for just awhile. I began
researching the subject and came across a couple of articles written by Teri Roberts on exactly the same subject. She described her crusade against the insurance companies and outlined her arguments the
insurance companies “right” to deny patients the relief they deserved.
With a few changes and adaptation to my own plight I argued with the insurance companies using Teri’s logic. I won the argument and was allowed the needed amount of drugs I needed. I am now allowed 5
vials every 10 days and that covers my needs, I am no longer forced to sufferer needlessly.

I believe the same could happen for most suffers if they remember that they are their own best advocates and stand up to the insurance companies. Following are some things to remember when talking to your insurance companies. I plagiarized Teri on some of this, Thanks Teri!

1. Record your conversation with them. Be upfront with them that they are being recorded. Be sure to have your policy in front of you, and know it. They may quote clauses in it that do not exist. If they quote from it let them know it is in front of you and ask exactly where they are quoting from.

2. Ask for names when talking to representatives, both first and last. The insurance companies will make statements that turn out not true to deny you your triptans. In my opinion this is their Achilles’ heel. In my experience they do not want to give their full names out, if they don’t give you their name ask for their supervisor, or in my case their supervisor’s, supervisor’s, supervisor.

3. One of the first statements that they will make is that FDA regulations prohibit the amount of Triptans insurance companies are allowed to cover. Teri had talked to Ms. Brenda Stodart at the FDA who confirmed that the FDA has no jurisdiction over any insurance company. The FDA regulates the pharmaceutical industry, not the insurance industry, and no FDA regulations would have any effect on payment for prescription medications.

4. Another untrue statement is that FDA restricts the amount of Triptans that you can use in a 24-hour period. The only limitation is from the manufacture is the maximum dosage in a 24-hour period. The FDA has no jurisdiction to do so, and they don’t.

5. They may also tell you that it’s in the FDA legend. The FDA Legend is the FDA’s approved prescribing recommendations as outlined on the package insert. This is set by the manufacturer and is only the suggested limitation for a 24-hour period. This has nothing to do with you insurance company. When they quote from the FDA Legend they are making the implication that limiting Triptans it is a federal regulation. This is not the case; this is where asking for the representative’s name is important.
Would you want to be on the record quoting non existing federal regulations to deny someone a lawfully prescribed medication?

6. Yet another untrue statement they may use is that Triptans are addictive. The 5-HT 1B/1D agonists, as a class, have not been associated with drug abuse, at least according to the FDA Legend. Use their
own resources against them. Ask for any reference material that they have stating that it is, including the name and the credentials of the person that says they are addictive.

7. Have your policy/plan booklet in front of you when you call. If they tell you the limits are in your policy, tell them you have it in front of you, and ask them exactly where it is.

8. By changing your attending physician's orders as expressed in the prescription he/she wrote, they are practicing medicine without a license. When they tell you they have a review panel that includes a physician, the physician on their panel is committing malpractice since he's changing your attending physician's orders as expressed in the prescription when he's never examined you. Ask for that physicians name and credentials, and request to speak to him directly.

9. Another common mistake made by the insurance companies is that they are treating you as a migraineur. You may have to point out several times that you do not have migraines but cluster headaches. Treating them as one and the same is a medical mistake.

10. Remember that you are your own best advocate. Be assertive yet polite. When given an untrue statement, tell them that it is untrue and ask from whom they are quoting and ask to speak to that person
directly. Ask them if they are sure they want to be on the record quoting that statement. Remind them of the cost of an ER visit, mention to them that you would have no choice but to go to the ER for the
attacks.

Some links for further reading, and again Thank you Teri.
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WOW! Awesome post mat, thanks.

Guiseppi

Nice post Matt



-P.