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Okay - moving forward. (Read 10121 times)
DonnaH_again
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Re: Okay - moving forward.
Reply #50 - Nov 22nd, 2008 at 9:24am
 
And I'll raise you 2 cents more.

I vote to leave it as it is.  I'm going to make my own "ignore" button, similar to the o2 pushers button.  Maybe that'll catch on and people will get the message. Cheesy

Maybe we've finally learned a lesson here and will "chill" a little when we feel our temperatures rising.  I hope so.  

We've done a really great job with one newby here lately and I've watched to see when the hammer was going to hit him on the head.  Instead, our great people took him under their wing and really pulled this guy out of dispair, put up with a lot of nonsence and steared him in the right direction.  This certainly isn't the first time I've seen this, it's just the most recent.

When I made my first post, I was shocked with the hurtful first few answers I got. Then I just lurked for a while and felt out the personalities before I posted again. There was just too much good news for this searching newbie to walk away.  

We have a wonderful thing going here, especially with the catagories we have.  I've seen so much more good done than bad.  There's always someone who will help the newbie out when they're being ruffed up...until the newbie proves to be something they're not.

I do agree with the suggestion that DJ or Steph give an offending person time off rather than punishing the whole board, tho.

A time or two lately I've seen a newbie lambast an old timer for just asking a simple question.  It has bothered me because it wasn't deserved and I thought "wow, if they'd just  look at the number of posts a person has scored they'd know that the old timer must have done something right to be here so long and deserves a little respect".  We have a few old timers, well actually several, who have invested a lot of time and money in our brothers and sisters.  They have hearts of gold and are very protective, but if you push the wrong button.....run for the hills.

I've noticed that those who help out most in the "specialties rooms" are showing a great deal of patience with the newbies.  This is very encouraging and heart warming.

We have a good place here and as it's been said before, the mix of personalities and circumstances are bound to clash from time to time.  We/I need to practice a little more control and walk away form stickey situations.

If we stop adding fuel, the fire will go out.
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Re: Okay - moving forward.
Reply #51 - Nov 22nd, 2008 at 9:38am
 
I'm in. Not like it matter much anyways. It's simple people! If you don't like what others are saying, ignor them! They have to go away eventually. Isn't that what all of you tell your kids when they're dealing with a bully at school? The bullying needs to stop yes but if it can't then we have to deal with it respectively. What do I know though? I'm just a 16 year old supporter. Tongue If we really need to fight then maybe DJ and Steph should start up a Boxing Ring Section. Go in there and you're sure for a fight! Shocked (NOT my favorite option but one that's out there.) I like what Cathi_Pierce said. We're not the judge and jury. So lets stop acting like it. Again, just the opinion of a "kid" but still thought I'd throw it out there.

Broken

P.S. Good to know you're back mum. Kiss
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Re: Okay - moving forward.
Reply #52 - Nov 22nd, 2008 at 10:04am
 
I agree in principle, if not in fact, but have been sickened to see so many screaming newbies come here seeking help and advice, only to be driven away because they've yet to learn 'our' language and 'our' protocols.

For the record, the word 'cure' has many meanings and only one of them refers to a permanent cessation of symptoms. It's perfectly OK to use words here like magic-bullet, universally acclaimed treatment and don't-leave-home-without-it, but that four-letter C-word (cure) guarantees your marching orders.

Witness what happened to Andy H, who only wanted to help.

'Chronic' is another perfect example. In medicine it means simply long-term (often given as three months or more) and it's only here at ch.com we insist it be an exact year with less than exactly a month off.  

Besides that, and in common speech, 'chronic' has taken on the meaning of 'severe' so newbies may well describe their headaches as 'chronic for three weeks' and need not be driven off the boards as a result. (You've only to read a newspaper to see, "Last week's cyclone resulted in chronic food shortages...").

As to the suggestion, "If a newbie can't handle a roughing up, they shouldn't be here", it sickens me to my gut.

I salute Lelimey for her intentions, along with those who brought up the subject of common sense, but I really think the answer lies in common courtesy.

And remembering what ch.com is all about.

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Re: Okay - moving forward.
Reply #53 - Nov 22nd, 2008 at 10:20am
 
BarbaraD wrote on Nov 22nd, 2008 at 7:56am:
A "polite" PM about board "protocol" to an "offensive" (the word "cure" seems to be the latest "offense")  post might be a better solution that setting up a bunch of rules that will stiffle everyone.



I guess I really still don't get it.  What exactly is the difference between setting up a standard of conduct and "protocol"?  I mean realistically people are over-thinking this.

Protocol, rules, standard of conduct, forum code, terms and conditions...... aren't they all the same?  Don't ALL MBs have them (it has been a long time since I signed up here, but I assume I agreed to terms and conditions here when I signed up.

The key to any of these things is the way it is enforced.  Who here doesn't trust DJ, Steph and/or whoever they appoint to moderate/admin the MB fairly? 

I don't think this new proposal will change much nor do I want people's true personality to be stifled.  Why don't we all make suggestions as to what this will entail before we pass judgment.
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Re: Okay - moving forward.
Reply #54 - Nov 22nd, 2008 at 10:46am
 
I try to treat others with the same courtesy and respect in the same way as I would expect to be treated, whether as a newbie or a veteran. I was welcomed a little over two years ago with open arms and that was a very nice feeling. Since then I have tried to do my best to help others to help deal with this life altering pain called CH's.

If a protocol is in order to help with the newbies and to stop the veterans from leaving then I am 100% for it.

CH.com saved my life, and it must remain here for others trying to find some sort of sanity with their pain associated with CH's. That is my take on this matter.

    Barry Smiley
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Re: Okay - moving forward.
Reply #55 - Nov 22nd, 2008 at 12:46pm
 
FramCire wrote on Nov 21st, 2008 at 4:27pm:
I am trying to reply here with the utmost respect BUT I don't understand what your issue is with this.

It was more meant as a question to your objection.



I honestly have no „issue“, not that I know off….

I simply disagree with the need for a new set of rules, but that dose not makes me have an “issue”
all we need is, as Oliver puts it:

Quote:
gizmo wrote on Yesterday at 2:28pm:
Common sense would do ...
Oliver


and purpleydog (and often I disagree with her posts, and yet respect her point of view)  posted:

Quote:
purpleydog wrote on Yesterday at 4:36pm:
If all members of this board can't treat each other with respect, then having rules or codes of conduct or agreements won't mean much.


with the term “artificial rules” I simply meant; rules that are added being “quick on the trigger” to specific situations, situations that some find disturbing, but not all! I am very happy with the job Steph and DJ are doing (moderating the boards) I find there judgment more then satisfactory, and do not see the need to question their judgment, by trying to impose new set of rules by some, on us all, again rules I don’t see a need for!
I am going to stay!, “little” issues as this will not make me rethink my interest and respect to every single one of “us”, I do not resort to threats of “divorcing” the boards just because my point of view is deferent or I disagree with situations or other point of view, I will continue to post and voice my opinion, the way I did until today, with the utmost respect, at times sarcastic, but with respect, trying to avoid crossing the fine line between proper language, and vulgarity,
something I believe I have done in the past, and intend to continue doing!


Michael
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Re: Okay - moving forward.
Reply #56 - Nov 22nd, 2008 at 1:07pm
 
AussieBrian wrote on Nov 22nd, 2008 at 10:04am:
I agree in principle, if not in fact, but have been sickened to see so many screaming newbies come here seeking help and advice, only to be driven away because they've yet to learn 'our' language and 'our' protocols.

For the record, the word 'cure' has many meanings and only one of them refers to a permanent cessation of symptoms. It's perfectly OK to use words here like magic-bullet, universally acclaimed treatment and don't-leave-home-without-it, but that four-letter C-word (cure) guarantees your marching orders.

Witness what happened to Andy H, who only wanted to help.

'Chronic' is another perfect example. In medicine it means simply long-term (often given as three months or more) and it's only here at ch.com we insist it be an exact year with less than exactly a month off.  

Besides that, and in common speech, 'chronic' has taken on the meaning of 'severe' so newbies may well describe their headaches as 'chronic for three weeks' and need not be driven off the boards as a result. (You've only to read a newspaper to see, "Last week's cyclone resulted in chronic food shortages...").

As to the suggestion, "If a newbie can't handle a roughing up, they shouldn't be here", it sickens me to my gut.

I salute Lelimey for her intentions, along with those who brought up the subject of common sense, but I really think the answer lies in common courtesy.
And remembering what ch.com is all about.



Paul98 wrote on Nov 21st, 2008 at 8:54pm:
I guess if you post to folks, treat them as you would like to be treated.  It has worked for me on here.

Once again, people should not take things so personal all the time.  I don't see how some people can make it through a day in life sometimes.  Sorry, life isn't about you ALL the time.  In fact it seldom is!

The garbage I just ignore.  Delete button?  I don't need no stinkin delete button Grin

-P.


Agreed!

-P.

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Re: Okay - moving forward.
Reply #57 - Nov 22nd, 2008 at 3:05pm
 
ok got to drop a quick note then run brothers getting married.  i just wanted to tell all that I have been an a^^ to not relialize sorry can't spell.... I have been to condime all for the heartlessness of one.  Please forgive this newbie and please don't change how you post to one another there is freedom and healing in how all of you communitcate with oneanother and if that was changed just wouldn't be what it is.  Hope I made sense.  My brain hurts and my mind is spinning no ever thought they would tie the knot and only my husband and i are invited  long story..    and way please accept my words and I will check back in when I can if yall want me to.  ppattya
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Re: Okay - moving forward.
Reply #58 - Nov 22nd, 2008 at 3:36pm
 
I must say I have been disgusted recently at the excessive disregard for common courtesy and basic lack of respect shown towards people, both new and old.

Not one of you fully understood this board the first day you arrived, yet you expect every single newbie that finds this place to know exactly which words to use to describe their pain.  If they don't speak exactly as you think they should, they are ridiculed and called a "TROLL".

Obviously, I'm not insinuating that every single person that shows up on this board sufferers from cluster headaches, but I do know that ALL people deserve more respect than some of the people in this group have been showing them, which reflects on the attitude of the entire board.

I've read all of your posts, and I'm not sure how I'm going to handle this just yet.  Obviously, self-policing doesn't work.  As for now, here are the changes that will be made:

1)  I will invite several people on this board to be Global Moderators.  Global Moderators will have limited privileges but will have the ability to lock and/or hide threads that get out of hand or to stop any personal attacks.  They will not have the ability to edit or delete profiles, but I will expect them to notify me if someone has crossed the line.  I will share my instructions to GM's with the board when I complete the list.

2)  NO ONE will call someone a "TROLL" unless I have so deemed their profile to "troll status".

Simple enough?

That is all for now...

DJ
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Re: Okay - moving forward.
Reply #59 - Nov 22nd, 2008 at 4:15pm
 
All we would have to do is mind our manners and show a bit of compassion.....common courtesy if you will.  Blatant rudeness is simply ignorant on our part.  Cut people a little slack before we tear their butts off.  For some reason we don't seem to be able to do this.  Kinda pitiful really.

Jacks Cool

Oh......the excuse of we're in pain so we're mean is a bunch of crap......



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Re: Okay - moving forward.
Reply #60 - Nov 22nd, 2008 at 4:18pm
 
Hi DJ,

WHATEVER you decide works for me...I am just a guest here and honored to be so...

Several years ago I privately expressed my opinion of another members posts...the reply I got was "that's your opinion, others don't think so..if you dont like it don't read 'em". EXCELLENT advice and I took it and didn't read those...

"take what you need and leave the rest" is the best advice I have ever seen...

Jon
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Re: Okay - moving forward.
Reply #61 - Nov 22nd, 2008 at 6:14pm
 
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Re: Okay - moving forward.
Reply #62 - Nov 22nd, 2008 at 6:17pm
 
Jackie wrote on Nov 22nd, 2008 at 4:15pm:
Oh......the excuse of we're in pain so we're mean is a bunch of crap......



Amen.
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Re: Okay - moving forward.
Reply #63 - Nov 22nd, 2008 at 6:18pm
 
DJ wrote on Nov 22nd, 2008 at 3:36pm:
2)  NO ONE will call someone a "TROLL" unless I have so deemed their profile to "troll status".

Simple enough?

That is all for now...

DJ



Umm Steph?

Permission to hug your husband please? LOL

Helen
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Re: Okay - moving forward.
Reply #64 - Nov 22nd, 2008 at 6:37pm
 
Thank you DJ and Steph.
A society without rules is chaos.

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Re: Okay - moving forward.
Reply #65 - Nov 22nd, 2008 at 6:54pm
 
Heartfelt thanks as always DJ

W the B
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Re: Okay - moving forward.
Reply #66 - Nov 22nd, 2008 at 8:12pm
 
Tanyana wrote on Nov 22nd, 2008 at 3:05pm:
ok got to drop a quick note then run brothers getting married.  i just wanted to tell all that I have been an a^^ to not relialize sorry can't spell.... I have been to condime all for the heartlessness of one.  Please forgive this newbie and please don't change how you post to one another there is freedom and healing in how all of you communitcate with oneanother and if that was changed just wouldn't be what it is.  Hope I made sense.  My brain hurts and my mind is spinning no ever thought they would tie the knot and only my husband and i are invited  long story..    and way please accept my words and I will check back in when I can if yall want me to.  ppattya


Not to worry.    Smiley

In some fashion or another, our differences will be settled--they always are. 

I regret that you had a negative early experience, but stick around.  I think it's very possible that after you get to know some people, you'll wonder why you ever thought you were unwelcome.

I favor keeping discussion as free and open as possible.  I've been on some heavily-moderated forums, and elaborate, draconian rules can smother the life out of discussion--which requires some back-and forth, not to mention some disagreement.  Sometimes disagreement has to get a little warm. 

On the other hand, I don't think it's unreasonable that people be advised that there are a few clear, simple lines that ought not to be crossed.  Not because anyone is trying to create a sort of Sunnybrook Farm where only happy thoughts are allowed--but because we know that certain (very specific) things that have been said here have created endless reams of crap.

I'm not very comfortable with some of the nastier things that get said--but more than anything, I get tired of the endless post-mortems about who killed who, and what constitutes being nasty.  Frankly, the autopsy is even worse than the murder.

If locking a thread or hiding it will cut all that short and put an end to it--good.

It's DJ and Steph's place.  If they want to perform that function themselves, or if they prefer to put mods in place, it's all good with me.

Besides--if the guidelines of any forum get too onerous for me, I'm free to go or stay, just as anyone else is.

All the best to all of you,

George
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Re: Okay - moving forward.
Reply #67 - Nov 22nd, 2008 at 11:30pm
 
Quote:
Permission to hug your husband please? LOL


Permission granted!!    Wink

All we want is a "safe" place for sufferers to come, they (yourselves too at one time) have been misunderstood for so long, it would be a shame if they weren't understood or atleast heard out here!   Undecided
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Re: Okay - moving forward.
Reply #68 - Nov 23rd, 2008 at 12:43am
 
Mrs Deej wrote on Nov 22nd, 2008 at 11:30pm:
Quote:
Permission to hug your husband please? LOL


Permission granted!!  


Ummmmm .... Can I hug him too?  
(And maybe a grope or two ...)


- - - - - - - - - - - - - - - - - - - - - - - -

I hate to see the site being forced to be moderated more than it is, but I understand the reasoning, and especially your frustration and disappointment.  But, whatever your decisions are, I fully support them.  After all, it IS your sandbox, and we are just visitors here.  Squatter's rights don't apply.

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Re: Okay - moving forward.
Reply #69 - Nov 23rd, 2008 at 3:32am
 
jon019 wrote on Nov 22nd, 2008 at 4:18pm:
"take what you need and leave the rest" is the best advice I have ever seen...

Jon


Not directed toward you Jon, just my opinion of the the concept.

Sounds good on the surface but IMHO, is the worst advice given here and has been the cause for people allowing others to be abused and board members turning a blind eye.

Many people are now, and have always, turned this advice into, take what you need, and leave the board.

If you're at a dinner party and someone is being verbally abused to the point of tears, do you just turn away and look for a more friendly conversation to join in upon?

Are we a family, or a club? In a family, new people come in through childbirth or marriage, etc, and everyone welcomes them, gets to know them and shows them some respect. In a club, new people often have to pass some sort of initiation. They may need to pay some dues before getting some respect. Is this a family, or a club? I know what many people call it. I also know how many people treat it.

Bobw
Disrespecting and abusing a member, no matter how long they've been here, disrespects not only the site itself and it's purpose, but also the owner of the site.
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Re: Okay - moving forward.
Reply #70 - Nov 23rd, 2008 at 4:03am
 
Very succinctly put BobW!

Thanks DJ.

I have stayed away from the "getting to know ya" and Meds boards to much lately because I have not felt well enough to be patient with newbies and/or uninformed ones.  Therein I have become a part of the problem, and I'm sorry for that.  i guess we just tend to become a little self=centered at such times and don't reach out to others as we were reached out to  when we were the newbie/uninformed ones.  I know I asked some dumb questions and didn't know when to be quiet and listen.  (still don't)

Jerry
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Re: Okay - moving forward.
Reply #71 - Nov 23rd, 2008 at 4:17am
 
DJ wrote on Nov 22nd, 2008 at 3:36pm:
1)  I will invite several people on this board to be Global Moderators.


I Accept the postion with pride, thank you!  Cool
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Re: Okay - moving forward.
Reply #72 - Nov 23rd, 2008 at 6:41am
 
Nice post Bob.

Perhsps the phase "take what you need and..." should be modified to read: "take what you need and then help someone else".  Those are the "dues" many, many here have paid over the years.  Seems pretty simple to me.  It dosn't have to cost $ and I have found that in helping others I have usually learned something in the process.

-P.
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Re: Okay - moving forward.
Reply #73 - Nov 23rd, 2008 at 1:17pm
 
DJ,

works for me. I'm for anything which makes this a great place to be for all of us. Smiley

PF days to us all,
Sanna
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Re: Okay - moving forward.
Reply #74 - Nov 23rd, 2008 at 5:53pm
 
You know.. I guess I'm going to say something, for what it's worth.. which may or may not be much, depending on who I am to you..

I've thought about this suggestion Helen.  I understand why its up here very well.

Haven't been around much lately, but its been a long time coming, for many reasons.  Never was a groupie, regardless of what people said to me, once upon a time.  Nonetheless, a recent decision of mine as it was important to my kid's education.  

Mainly, I have seen here and there, the posts where newbies are run off because they said the wrong thing at first, where they used the word cure, and didn't know that that's a bad word here.. later all being vindicated in some way or another.  Mostly, I never felt I had the right to jump in and say give someone a chance, even though I've been here for years now.  I bite my tongue 2,3 or 4 times, for fear of getting into it.  I recently fell prey to my own feelings on certain topics, not relevant in this sense, but still..let's just say, politics and religion are sensitive subjects (that's a no brainer).  

I first came here because someone I knew was afraid to really become a part of this community.. and needed some help getting info.  Since I'm not really shy..  Cool.. I tried to do what I thought was a good thing.  I won't tell you what that led to but, here I still am.  Unfortunately, that person was never able to feel comfortable enough to chime in, here, and sadly, resorted to a terrible and self-destructive way to handle his CH.  I did what I could, in the end its up to the individual.  

I always wonder, what happens to all those people who come here, read, and say to themselves, are you kidding, I'm never becoming 'visible' as a member here.  They take the info they can use, and wing it, maybe never ever meeting another clusterhead.  The one thing I can say I know for sure, is that this website, has brought clusterheads together, in good ways, that has changed people's life, and made their quality of life so much better, and liveable, tolerable, and maybe changed their whole perspectives of doom around.  And its the people on here that have done that, by reaching out to one another, whomever they are, clusterheads, supporters, friends, from all over the world.  

I am a cynic, by nature, but I don't believe that people could really forget what it was like the first they day got here.  Or maybe they can?  The tears of joy to know they are not alone...ever again, that there were some alternatives to banging your head against the wall, or wishing for the end.  I think the cynicism slowly creeps in as you realize that its not all a feel-good forum, because there are those creeps who intend on trolling or destroying the good things they come across.  

Remember what it was like before you came here, before you as a supporter were able to obtain help for your loved one, before you as a clusterhead knew that you were not alone.  If you tapped into that every time you logged in, it might be a good way to temper your response to someone who could really be sitting on the edge.  

Patty
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