Hi Chris... you don't know me and I don't know you. If CH is all we will ever have in common then I would say that in itself goes a very long way in building a bridge for understanding.
That being said, as a chronic cluster headache sufferer, I understand and empathize with the pain that you feel with regard to CH.
Like you, I found this place in an attempt to accomplish one thing. To STOP the nightmare of pain. What I found here was not a cure but something vastly more valuable to me.
Humans being human who understood what I was experiencing... (everyone else minimized my suffering because they could not imagine my pain, and because they couldn't relate... they just couldn't believe it was possible... they believed I was exaggerating.)
When I first came to this site Potter was one of the very first people here to contact me. I can't say that he wrote flowery prose welcoming me... but in his on manner he made a big difference in my life and I will always have a special place for him in my heart.
He was a little tough on me, well actually he was more than a little tough on me. One might say that he was what could appear to be mean. But... underneath the style which is pointedly Potter's... the underlying message was that of care and concern.
You can ask any of the folks here about what it was like to get me on Oxygen... I was a stubborn, pigheaded, a$$hole. I was in very high cycle and was getting slammed around the clock. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

is a video I posted of myself on youtube from that time. All I had to abort was frozen peas.
Potter was relentless and unyeilding in trying to bring me to see the errors of my ways. One would say "They don't use a kitten to make a tattoo" in other words... Potter in his infinite wisdom and unique way tortured me for my own good... THANK YOU POTTER"
Chris... you can do as you please concerning your health and treatment. You are certainly welcome to stay and allow us to help you... but remember... we are all humans sharing a common thread, Cluster headaches... and just as the many variables of our cluster experience may differ.. so does our styles for helping each other.
so... stop being a baby and let us help.

with warm regards,
Tony