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Marc

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Re: Oxygen pusher's!!
Reply #100 - Dec 9^th, 2008 at 7:09pm

Steve,

If you have an M tank, you have a CGA540 regulator. Check the pictures to be sure.

If you want to use smaller medical tanks for portability, I can mail you a CGA870 to CGA540 adaptor. It's a spare that I don't need anymore. You've got my phone number..........

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Marc

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AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: Oxygen pusher's!! Reply #101 - Dec 10^th, 2008 at 1:15am Hey Marc. If Steve doesn't need that thing, it's going to make a great nut-cracker over Christmas.
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Skyhawk5

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Re: Oxygen pusher's!!
Reply #102 - Dec 10^th, 2008 at 3:16am

Steve, I'm glad to see you at least are taking comand of your condition. I hate seeing Doctors using there "books" that have nothing to do with our rare problem. It sounds like she is not concerned with modern treatments for us.

To give you some good insite please go to the Medications & Therapy page and at the top click on "Help with getting Oxygen prescribed" and scroll down to the post by 'BATCH'. This man is CH.com's O2 expert. I know that post gave my Neuro some understanding to high flow O2 use for CH.

It would be nice if you could make your Doctor understand that her book does not cover CH. Good Luck, Don

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666ouch

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Re: Oxygen pusher's!!
Reply #103 - Dec 10^th, 2008 at 8:01am

Quote:

Steve, I'm glad to see you at least are taking comand of your condition. I hate seeing Doctors using there "books" that have nothing to do with our rare problem. It sounds like she is not concerned with modern treatments for us.

To give you some good insite please go to the Medications & Therapy page and at the top click on "Help with getting Oxygen prescribed" and scroll down to the post by 'BATCH'. This man is CH.com's O2 expert. I know that post gave my Neuro some understanding to high flow O2 use for CH.

It would be nice if you could make your Doctor understand that her book does not cover CH. Good Luck, Don

Thanks Don that was the biggest part of what I left her. I just hope that she has the humility to read it. Otherwise I am operating on the 3 appointment rule. I will wait and see if she strikes out.
Wink

Steve

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Rolomatic

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Re: Oxygen pusher's!!
Reply #104 - Dec 10^th, 2008 at 8:46am

Peppermint wrote on Dec 9^th, 2008 at 2:54pm:

Do you have a bubbler? That can really help ease the dryness situation.

I think its VERY proactive to go into your doctor's office, especially a neuro (a.k.a. know-it-all-god-not-willing-to-listen-to-a-patient-prescribe-their-own-treatment
-in-general-just-because-you-asked) prepared with literature that is convincing. At least, that's what I've seen many times here in the past.

You may have a good neuro or gp that may listen to you off the bat, but for those who don't, why suffer needlessly when a little printed material will do the trick?

Pep

Hi Peppermint, I have never tried a bubbler. It’s usually not a problem until I hit a M a day. I may make one to try it if I deem it necessary but I like dry air so I have not made it a priority. It’s not a problem until I get 8 hits per day or a few intractable ones.

I was very lucky to find good neurologists right off the bat. Other than the idiots at the TMJ clinic I went to first, which was of my doing early in the onset.

LY, Roland. Kiss

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Peppermint

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Re: Oxygen pusher's!!
Reply #105 - Dec 10^th, 2008 at 10:39pm

Quote:

Peppermint wrote on Dec 9^th, 2008 at 2:54pm:

Do you have a bubbler? That can really help ease the dryness situation.

I think its VERY proactive to go into your doctor's office, especially a neuro (a.k.a. know-it-all-god-not-willing-to-listen-to-a-patient-prescribe-their-own-treatment
-in-general-just-because-you-asked) prepared with literature that is convincing. At least, that's what I've seen many times here in the past.

You may have a good neuro or gp that may listen to you off the bat, but for those who don't, why suffer needlessly when a little printed material will do the trick?

Pep

Hi Peppermint, I have never tried a bubbler. It’s usually not a problem until I hit a M a day. I may make one to try it if I deem it necessary but I like dry air so I have not made it a priority. It’s not a problem until I get 8 hits per day or a few intractable ones.

I was very lucky to find good neurologists right off the bat. Other than the idiots at the TMJ clinic I went to first, which was of my doing early in the onset.

LY, Roland. Kiss

Well lucky you! That's great. You might want to give the bubbler a try, using the bubbler is not exactly "wet" air, but you may find its a lot more comfortable. Huffing 02 often enough might add to your "discomfort" (mildlly speaking Roll Eyes

) so it might be worth a try. Some of my friends have said it makes a world of difference.

Pepp Cool

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Rolomatic Ex Member	Re: Oxygen pusher's!! Reply #106 - Dec 10^th, 2008 at 11:15pm Gee now that you mentioned it Pep, I was on the horn with Apria and my nero today and forgot to ask for one. I knew I missed something…Rolo…
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ClusterChuck CH.com Alumnus Offline The BEAST rises again, and again, and again, and . Posts: 5394 Greenville, North Carolina Gender:	Re: Oxygen pusher's!! Reply #107 - Dec 12^th, 2008 at 11:03pm Quote: Gee now that you mentioned it Pep, I was on the horn with Apria and my nero today and forgot to ask for one. I knew I missed something…Rolo… GEEZE!!! Now you are sounding like a senile old goat! LOL! If you feel you need one, let me know. I happen to have spares ... Chuck
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Rolomatic

Ex Member

Re: Oxygen pusher's!!
Reply #108 - Dec 12^th, 2008 at 11:17pm

Thanks Chuck, Apria screwed up and sent crappy masks and 5 tank stands for the M’s. What a bunch of chiggers! I wrote bubbler on the invoice so I will remember to ask on Monday.

It’s that dam sinillity creeping up on me or the lithium making me forgetfull. It cannot be that I’m just a dumas, can it? HA HA!!!

LY Chuckie!

Roland. Kiss

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Garys_Girl CH.com Hall of Famer Offline Making biscuits Posts: 821 Planet Cat, NJ Gender:	Re: Oxygen pusher's!! Reply #109 - Dec 13^th, 2008 at 11:04pm I'm hoping all of this means you got it worked out with the insurance company? fingers crossed Laurie
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laura

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Re: Oxygen pusher's!!
Reply #110 - Dec 15^th, 2008 at 2:16pm

Roland,

I hope you get the oxygen situation cleared up. I've had problems with my insurance for oxygen. Of course, my insurance has denied about 75% of my claims. After about six months of beating the insurance company down and appealing the denials, they always pay. It's frustrating, I know. Maybe the place you get oxygen from will no longer be under your plan in 2009?

Good luck to you and let us know what happens!!!!!

Laura

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Rolomatic

Ex Member

Re: Oxygen pusher's!!
Reply #111 - Dec 15^th, 2008 at 9:10pm

So I called Apria O2 today and complained about the following:

Cheep masks; they said they are ordering the one I requested so I will have to wait to see.

Tank stands; they said I have to secure the tanks with a chain and verify to them I did.

They said they would not charge me for O2 this month so as not to conflict with the ins billing cycle. It may take a few bumps to work it all out to my satisfaction, they are not used to dealing with the intended user obviously so time will tell? Oh yes Peppermint, I ordered a bubbler, it is really dry now that the temp is subzero… I just did not want to mess with cleaning one and spilling it in the dark… Roland…

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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Oxygen pusher's!! Reply #112 - Dec 15^th, 2008 at 9:38pm If anyone needs a bubbler let me know in a PM and I will send one off to you ASAP...I have a boat-load of them. Linda
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