What is so different about Potter's comments and those I've seen made by members here in reference to *meegrainers*?  You know, those comments that denigrate meegrainers pain because it CANNOT be as bad as ch?  There have been numerous times that I've almost deleted my account because of the nasty and uncaring comments regarding people with migraines.  Yes, I realize this is a board for ch. sufferers, but there are those here that have both and then there are others here that don't have ch, but suffer from migraines (as in supporters).  As it has been so eloquently put on more than one occasion, pain is relevant to the individual.  If you've ever made a comment like that, then don't attack Potter for his comments.

I keep reminding myself that what others say/do don't have power over me (I taught classes on this very thing to others), but it is how I choose to react that makes the difference.

BarbaraD wrote on Dec 6^th, 2008 at 7:35am:


Barbara, Gary doesn't respond to 02.  In my post to people new to the board, if they don't mention using 02, I always mention it as the first, best, line of defense.

I don't see anyone here who doesn't respond to 02 discouraging anyone from trying it!  We all WISH it worked and HOPE it works for those who haven't tried it!  It's just that for those for whom it does work, they should remember that there are people out there for whom it doesn't work.  Our "panties are in a wad" because that does not mean they do not suffer clusters, and that they and their supporters belong here just as much as anyone else.

Laurie

Just Plain Carl wrote on Dec 6^th, 2008 at 12:01pm:


I have been using a preverbal crap load of it almost every 2 hours Carl. The throat is a bit dry but the head hasn’t imploded yet! I’m doing my best to leave the DHE stockpile alone… Roland

deltadarlin wrote on Dec 6^th, 2008 at 11:44am:


...wow...EVERYONE PLEASE RE-READ THIS QUOTE!!!

....and back to the original post:

Rolo, is it just that they're no longer working with that supplier?  We had that happen with Gary's insurance.  They dropped the place we were using, and we had to get set up with a different supplier.

I hope that's all this is!

Wishing you PFDAN!

Laurie

666ouch wrote on Dec 7^th, 2008 at 9:39am:


Try the O2 info tab on the left. Print out the pertinent info and take it with you to the nero. ANY questions? Don’t hesitate to ask. There are several O2 threads on the board chalked full of great O2 tips and methods.

Best to ya,

Roland.

666ouch wrote on Dec 7^th, 2008 at 9:39am:

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

Try this one - Chuck posted it under medications.

Hugs BD

Thanks to all that have given me suggestions. I have copied a lot of helpful information. For anyone looking for something similar I found a post by Rob Johnson in Medications and Treatment... that will also be very useful.

Quote:


This may not get me a script for the volumes talked about by most here, but it is a much better starting place than the 6lit. that the Neuro. was writing for. I think Doctors are a lot like Court Room Judges. They need to get a rectal infusion of information before they can understand something.

Quote:


Thanks Again,
Steve

Quote:


I would add to this by saying that if you used 25 LPM, 60% would be a low estimate.

Pete or Chuck can help you out there. I don't know beans from shinola. PM one of them. They're our ghurus here on O2 and all the stuff that goes with it. I just breathe the stuff.

Damn know it all docs...   Bet she'd change her tune if she got hit with about a Kip 8-9. We'd see how the 1-2 liters worked for HER!!! What ever happened to "science" majors keeping an "open mind?" I swear I heard a science teacher say that was "important".

Hugs BD

666ouch wrote on Dec 8^th, 2008 at 5:14pm:


I recently bought this one in a CGA540 style that only fits BIG medical O2 tanks and ALL welding O2 tanks.

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or .

If you plan to only use it on smaller tanks (E size and smaller) you can order the same regulator with a CGA870 fitting instead.

I went with the CGA540 because I can use it on welding tanks, large medical O2 tanks and smaller medical tanks with the adapter shown at the bottom of this page:
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or
See the other pages for more info too.

This is my travel setup, I can use standard CGA870 tanks or CGA540 tanks. Welding tanks are evrywhere once you start looking!

One more thing to be aware of: You are going to go through a lot of O2 assuming that it works for you. Be sure that you have multiple tanks on hand. What size did you get?


Marc

Quote:


I called flow tech and got Dave, a sales rep, on the phone. Not very knowledgeable about ch, but very empathetic and interested as well as helpful. He asked for documentation so I gave him the links to this site and others that I have found useful. He has a 0-25 lpm for $50.00 that he said they would priority ship.

Apria brought me an M tank. The delivery guy also suffers migraines or clusters (not sure which). He worked with me and gave me the biggest regulator he had on his truck, a 0-15 lpm. The mask they gave me is a piece of sh... oops poop. The valves don't seem to work right and the little plastic bag is too small. One of the masks referenced here will be my first purchase. Then I will see how I do at 15 lpm before I spend the money for the 25 lpm. Even though these are very important purchases I have been hit real hard in the markets lately, and now I am operating at a very substantial monthly deficit. I am also very aware that these expenditures can be made up for by reducing the amount of medicine that I might need and the copay's.
Steve