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gus411

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Thanks!!!

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x0|stony point|USA||0|0|NY,New_York
Gender: male

Understanding
Dec 3^rd, 2008 at 5:36pm

Understanding some people (all that I know) just dont understand what we go through. Hi my name is Chris I've been dealing with CH's since I was in 9th grade I'm now 26 and they were dormant for a year. Before now I was eposodic getting them for a few weeks then off for a few months. People thought I was crazy and my family especially. I could type here and tell you about my war stories against the beast but thats not why I'm hear. since this cycle started my close friends and family I guess for got what they were like and being recently married and just moving into my new house with my wife I dont think she got the full jist of what she was getting into LOL. Everyone seems to have an answer and what I should do ad how they or soeone they know get bad "headaches." I almost knocked my boss out today as I was asking him to just lay off for a little while and he was saying "you just have a headache and I' sitting there my eyye tearing and my nose running. Well I guess just wanted to see if anyone else has or had these problems and maybe some guidance. I beieve I posted before a while back I'm kinda like a ghost here scimming threw the wealth of knowledge on this board. Just a little more about me I have been on relpax, imitrex (pills, nasal spray, shotsYAY!! Also prednisone which was a waste O2 YAY maxatl and I forget the O2 and shots are awsome trying now to get the O2 back. Well thats enough about me and hope to get to know some of you as I feel very alone right now. Have a great day

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Garys_Girl

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Making biscuits

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Planet Cat, NJ
Gender: female

Re: Understanding
Reply #1 - Dec 3^rd, 2008 at 6:14pm

I am not a sufferer but a supporter - but Gary and I are partners in work as well as in life, so he had the benefit of me there to explain.

Many people here have experienced what you have!

We found this letter written by a CH sufferer really helped: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

There's a thread in the "stickied" section up above dedicated to this.

Stick around - you're not alone here. And there's a lot to learn.

Wishing you PFDAN,

Laurie

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This is enough already

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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Understanding Reply #2 - Dec 3^rd, 2008 at 6:23pm Understanding is certainly what you'll get here..and a whole lot more. Stick around and read the links here as well as at OUCH (button to the left) Welcome Linda
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gus411 CH.com Newbie Offline Thanks!!! Posts: 23 x0\|stony point\|USA\|\|0\|0\|NY,New_York Gender:	Re: Understanding Reply #3 - Dec 3^rd, 2008 at 6:36pm Thankyou thats comforting to know I hope to be an active part on this website now even (hopefully) if remission comes. Cant wait to have a bud light LOL
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Just Plain Carl CH.com Old Timer Offline IT IS WHAT IT IS Posts: 449 Royal Oak, Michigan Gender:	Re: Understanding Reply #4 - Dec 3^rd, 2008 at 9:11pm Welcome to Clusterville Gus, Check out the Letter to employers at the "OUCH" site (link is to the left) It really explains things to bosses and coworkers. As you have already seen, there is lots of good infor here and we all know what you are going through. Hope you are not too far away from that Bud Light. PFD's On Ya JPC
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Understanding Reply #5 - Dec 3^rd, 2008 at 10:41pm Welcome to the nut house. Dang glad you found us, here's hoping the next remission is just around the corner! Guiseppi
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George CH.com Moderator CH.com Alumnus Offline Black-Billed Magpie Posts: 8126 Boise, Idaho USA Gender:	Re: Understanding Reply #6 - Dec 4^th, 2008 at 1:26am gus411 wrote on Dec 3^rd, 2008 at 5:36pm: and hope to get to know some of you as I feel very alone right now. Well, you're not alone with it anymore. And not to worry--you'll get to know us pretty darn soon. Looking forward to your posts in the future. Welcome to CH.com. Best wishes, George
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gus411 CH.com Newbie Offline Thanks!!! Posts: 23 x0\|stony point\|USA\|\|0\|0\|NY,New_York Gender:	Re: Understanding Reply #7 - Dec 4^th, 2008 at 9:43am Thanks again everyone!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
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Mosaicwench

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Posts: 3507
Near Milwaukee WI, USA
Gender: female

Re: Understanding
Reply #8 - Dec 4^th, 2008 at 4:57pm

My DH's CH was diagnosed just after I found out I was pregnant. I was SURE my child would grow up without a father because how can anyone survive and function with pain like what I'd been witnessing?

Well, it's 17 years later and he's still around, in a wonderful remission and we're still married.

Let your wife get used to what you do and ask her for her help, if that's what you need. There's nothing wrong with saying "I don't want you around when I get hit" - if you say it nicely and explain why. My DH doesn't want me around and so I go away. I used to spend a lot of time crying on the patio or in the car or wherever. But now I know this is a part of our lives together and I just let him handle it. if he needs me, he asks.

I've taken him to the ER twice - but only at his request. I know better than to suggest that if it's a "regular" hit.

I do keep the energy drink supply up, coffee always ready to go, and don't even mind his M tank in the living room anymore! Whatever he wants, he gets during a hit. But if he doesn't want me around, that's fine, too.

We share the good things with our spouses, why not try sharing the "not-so-good" things? It brought us much closer together in the long run.

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“Be regular and orderly in your life, so that you may be violent and original in your work.”
~Flaubert

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gus411 CH.com Newbie Offline Thanks!!! Posts: 23 x0\|stony point\|USA\|\|0\|0\|NY,New_York Gender:	Re: Understanding Reply #9 - Dec 4^th, 2008 at 5:47pm Thankyou Mosaicwench I think I'm gonna introduce my wife to this site I tried once and I dont think she searched it at all. I may have to sit her down and show her all your replies and maybe she will see shes nt the only one who has to deal with somone with CH
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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Understanding Reply #10 - Dec 4^th, 2008 at 6:04pm Your avitar cracks me up Pat. Yes please show your wife how to manuever around here Gus. Besides Pat, there are lots of supporters here who will take her under their wings and help her with questions and teach her how to help you as well as herself. Linda
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on my knees Ex Member	Re: Understanding Reply #11 - Dec 4^th, 2008 at 6:51pm first welcome and you are not alone anymore. a supporter that trys to understand and assist you in various ways is so important. i hope your wife finds in her heart to join in with us, there is alot to offer here in this family and it is all yours for the asking.
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Garys_Girl

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Making biscuits

Posts: 821
Planet Cat, NJ
Gender: female

Re: Understanding
Reply #12 - Dec 4^th, 2008 at 9:34pm

gus411 wrote on Dec 4^th, 2008 at 5:47pm:

Thankyou Mosaicwench I think I'm gonna introduce my wife to this site I tried once and I dont think she searched it at all. I may have to sit her down and show her all your replies and maybe she will see shes nt the only one who has to deal with somone with CH

Oh please do! There's so much info it can be intimidating, but there is a forum just for supporters, and there's lots of us here who want to help! We all had to start somewhere, even if it is just saying "hi I don't know what to make of all this suffering!"

Laurie - a supporter

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AnnaH CH.com Newbie Offline I Love CH.com! Posts: 18 Neosho Gender:	Re: Understanding Reply #13 - Dec 4^th, 2008 at 9:38pm Sweety no one understands these but those of us that have them and those that live with someone who does day in and day out. I hide them to the best of my ability when i can and give the shortest explanation possible when I cant. Anna
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