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Batch

CH.com Alumnus

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Control The Beast With
O2 & D3 You Must

Posts: 3708
Bremerton, WA
Gender: male

Cluster Headache Survey - 1134 Completed - Wow!
Dec 8^th, 2008 at 10:15am

Hey All,

Many thanks to all of you who took the time to participate in this important survey with special thanks to DJ and Gator for getting the word out from CH.com and OUCH.

We also owe Royce Fishman and the leadership at Linde LifeGas a debt of gratitude for coming up with the funding to make this study possible. Royce has been working with one of the top neurologists in the Nation specializing in our cluster headache disorder to make sure an expert in the field will analyze the results of this survey and get the widest dissemination possible. This is the kind of team effort that benefits all of us.

The process of analyzing the results of this survey will take a month or two at a minimum, and there will be more quick look results as they become available, but there are a few things that can be said at this point.

There were 1134 completed surveys. This brings the statistical confidence level of the results to 99% giving it the potential to be the most authoritative survey on cluster headaches ever conducted.

In the first 34 hours the survey became available on line, the response was outstanding. There were 498 completed surveys with a chronic to episodic split of 99 to 399. The original goal was to have 100 chronic and 400 episodic surveys completed at the end of the survey so we were off to a fantastic start.

There were also some important figures on the average time in years to correctly diagnose the cluster headache disorder as well as the average number of incorrect diagnoses. Results like this from a survey of this magnitude will shake the pillars of neurology and that will help bring a much greater level of awareness to our cluster headache disorder.

This survey is also part of an overall plan and we are moving forward. Please hang in there. We're making progress and there will be more to say about this soon.

Thanks again and take care.

V/R, Batch

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« Last Edit: Dec 16^th, 2008 at 12:01am by Batch »

You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there

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Batch CH.com Alumnus Offline Control The Beast With O2 & D3 You Must Posts: 3708 Bremerton, WA Gender:	Re: Cluster Headache Survey Ends This Friday at 08:00 Reply #1 - Dec 10^th, 2008 at 5:48pm bump
Back to top	You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Cluster Headache Survey Ends This Friday at 08:00 Reply #2 - Dec 10^th, 2008 at 5:51pm B UMP BUMP BUMP!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! C'mon people...this is BIG!!!!! Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

Batch CH.com Alumnus Offline Control The Beast With O2 & D3 You Must Posts: 3708 Bremerton, WA Gender:	Re: Cluster Headache Survey Ends Tomorrow at 08:00 Reply #3 - Dec 12^th, 2008 at 12:10am Final Bump
Back to top	You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there IP Logged

debOUCH CH.com Old Timer Offline ..&^%%$(&^&^%.. Posts: 481 x0\|Holbrook\|USA\|\|0\|0\|NY,New_York Gender:	Re: Cluster Headache Survey Complete - Many Thanks Reply #4 - Dec 13^th, 2008 at 12:47pm You are very welcome, Batch. It was the least I could do for all this board has done for me over the past 9 months! debs
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icedragon Ex Member	Re: Cluster Headache Survey Complete - Many Thanks Reply #5 - Dec 13^th, 2008 at 12:58pm Thanks for the update Batch. Has there been any type of timeline set for when the results might be ready to view here in Clusterville? Thomas
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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: Cluster Headache Survey Complete - Many Thanks Reply #6 - Dec 13^th, 2008 at 1:05pm You're most welcome, Batch. Much appreciate the efforts of those involve. Let's hope it's a huge success!
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BarbaraD CH.com Alumnus Offline Hugs to ya Posts: 8333 Douglasville, TX Gender:	Re: Cluster Headache Survey Complete - Many Thanks Reply #7 - Dec 14^th, 2008 at 7:19am Yeah - are the results in yet? You know how much patience Chuck has -- Chuckles is just chomping at the bits and really bugging me about what it showed! He's such a pest! Again thanks for putting the time and effort into this one. Hopefully it will give some insight into our plight. Hugs BD
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ClusterChuck CH.com Alumnus Offline The BEAST rises again, and again, and again, and . Posts: 5394 Greenville, North Carolina Gender:	Re: Cluster Headache Survey Complete - Many Thanks Reply #8 - Dec 14^th, 2008 at 7:51am BarbaraD wrote on Dec 14^th, 2008 at 7:19am: He's such a pest! Bless your heart ... Only to you, dear, ONLY to you!
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Batch CH.com Alumnus Offline Control The Beast With O2 & D3 You Must Posts: 3708 Bremerton, WA Gender:	Re: Cluster Headache Survey - 1134 Completed - Wow! Reply #9 - Dec 16^th, 2008 at 12:03am Final bump... thanks again to all. V/R, Batch
Back to top	You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there IP Logged

Skyhawk5 CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 1320 Ypsilanti, Mi. USA Gender:	Re: Cluster Headache Survey - 1134 Completed - Wow! Reply #10 - Dec 16^th, 2008 at 12:54am Can't wait to see the results. And I wish to express my heart felt appreciation to all those involved in this very important step in understanding Cluster Headaches. Sincerely, Don (Skyhawk5)
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Garys_Girl CH.com Hall of Famer Offline Making biscuits Posts: 821 Planet Cat, NJ Gender:	Re: Cluster Headache Survey - 1134 Completed - Wow! Reply #11 - Dec 16^th, 2008 at 1:05am Batch, you are truly amazing. Thank you. !! Laurie
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Rolomatic Ex Member	Re: Cluster Headache Survey - 1134 Completed - Wow! Reply #12 - Dec 16^th, 2008 at 1:13am Pete is the guy who helped me get the HF O2 down right… Thanks Pete for your compassion and understanding. YOU are a great person for what you’ve done for all of us cracker heads in need. Roland... BTW, it's just awesome what you did for Svenn!!!
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BarbaraD CH.com Alumnus Offline Hugs to ya Posts: 8333 Douglasville, TX Gender:	Re: Cluster Headache Survey - 1134 Completed - Wow! Reply #13 - Dec 16^th, 2008 at 6:24am Bump
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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: Cluster Headache Survey - 1134 Completed - Wow! Reply #14 - Dec 16^th, 2008 at 7:14am I stickied it for you Peter.
Back to top	Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

Ray CH.com Alumnus Offline Ray Posts: 1996 Columbus, Ohio Gender:	Re: Cluster Headache Survey - 1134 Completed - Wow! Reply #15 - Dec 16^th, 2008 at 12:14pm I am anxious to learn the statistical results! Thanks, Ray
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