My name is niqui and I found this place by chance. I was actually looking up other potenial treatments for my boyfriend of 4 years. He's been suffering with cluster headaches for 3 years  and I was with him when his first one hit. I was so scared, I didn't even know how to help him. Come to find out his bilogical father has suffered with clusters since his early 20's. What bothers me though is that when he was younger he was diagnosed with some crazy psycological disorder and put him on heavy medications to deal with his "problems." After talking to his neurologist we found out that he was actually suffering from early signs of cluster headaches. He was experiancing extreme rage and anger that would come out of nowhere. I want to know how doctors can miss something that is so plane in their face. They had his family history which his mother clearly stated his father had clusters. It crazy that something so many people have doctors have no clue what they are. Sometimes the clusters have been so bad I've sat on my boyfriend to hold him down so he wouldn't hurt himself. Durning his cycles i find him banging his head against the wall and screaming in pain. I've held his head against me chest so tight I thought I would hurt him but it's what he wanted. He's even been in a car accident due to his clusters. He has tried many meds to help him. Topamx has worked the best but he has horrible nightmares and nightterrors on it. We've slowly realized it's a give and take with these little monsters. Luckly we know his cycles now so we can plan them out and know when the next ones should hit. But we are still searching for something better to help him.

niqui wrote on Dec 28^th, 2008 at 6:07pm:


Hi Niqui & welcome

Oxygen, Oxygen, Oxygen a greater percentage of us get the best results of aborting clusters from Oxygen; read up on the links to the left there’s all the info you need & its safe & cheap.

Thanks for being a great supporter.
Supporters ROCK

Cheers
Barry

Welcome, and THANK GAWD for good people like you who support us!!!

CH is actually very rare, and GP's have to cover so much ground that they must be a "jack of all trades, master of none."  They are only required to have, what, 4 hours of "headache" training, and there are hundreds of different headaches out there to learn about.  Just be glad that you have finally gotten the diagnosis and you can fight the beast.

This is the board for support (for BOTH of you) AND for discussions of the latest treatments and research...read, read, read.

Print out articles and research to give to his doctors, and don't take no for an answer on the treatments everyone recommends, like oxygen for starters.

And also check out clusterbusters.com.  They have the low-down on the alternative treatment that has been a life-saver for many sufferers.

Welcome to the family!