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Has anyone tried powdered lidocaine? (Read 14377 times)
AlienSpaceGuy
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Re: Has anyone tried powdered lidocaine?
Reply #25 - Jan 3rd, 2009 at 2:04pm
 
Why in hell should anyone consider an anesthetic used for any kind of surgery also to be useful against CH, vasoconstrictor or not  Questioning Questioning Questioning

                 Smiley


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Melissa
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Re: Has anyone tried powdered lidocaine?
Reply #26 - Jan 4th, 2009 at 10:48am
 
But Linda, it's on SALE!!! Tongue
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Re: Has anyone tried powdered lidocaine?
Reply #27 - Jan 4th, 2009 at 7:20pm
 
Lidocaine spray is prescribed sometimes to abort CH attacks.  Last visit to the neuro's office Gary had an attack, and Doc shoved huge Q-tip thingies up his nose with a bunch of lidocaine goop on them.  Didn't do anything except freeze his teeth and part of the upper palate of his mouth.  ....and of course made him really uncomfortable as he had to lie there instead of being able to get up and move around.

This is from the Medical Info button on the left:

*****************************

Lidocaine

Kittrelle et al (1985)A showed that the intranasal instillation of 1 ml 4 percent topical lidocaine was effective in terminating attacks in four of five patients.  The patients were instructed to lie supine, with their heads extended backward 45 degrees and rotated 30 to 40 degrees toward the side of the headache.   One ml lidocaine was slowly dropped into the nostril ipsilateral to the pain, and the patient's position was maintained for several minutes.  If nasal congestion mad it impossible to deliver the anesthetic solution to it target, the patient was initially treated with a few drops of intranasal 0.5 percent phenylephrine.  These investigators believed that the lidocaine reached the sphenopalatine fossa and anesthetized the sphenopalatine ganglion.  That is certainly possible but, and addition, local blockade of terminals of the trigeminal and glossopharyngeal nerves intranansally could also decrease afferent activity to the spinal trigeminal nucleus, stopping the pain because of convergence of the sensory elements of cranial nerves V, VII, IX, and X.  The beneficial effect of topical lidocaine surely does not implicate the sphenopalatine ganglion in the mechanism of cluster headache.  I find lidocaine to be an extremely useful therapeutic adjunct.  The 1 ml dose may need to be repeated once or twice.  For may patients, the application of lidocaine via the continuous pumping of a plastic nasal spray bottle is superior.  In my experience, lidocaine is useful for about 60 percent of patients.

****************************************

If Lydia and her CH sufferer want to party, I recommend shrooms.   Roll Eyes

Laurie
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thebbz
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Re: Has anyone tried powdered lidocaine?
Reply #28 - Jan 4th, 2009 at 8:24pm
 
Quote:
If Lydia and her CH sufferer want to party, I recommend shrooms.   


I dont use mushrooms to party, I use them because I suffer from the worst pain known to man. This is medicine in my opinion and I dont want to take them any more than I want to inject with imitrex.
Please don't think I party to get rid of my CH. It sucks and it aint no party here. Angry
the bb
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Potter
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Re: Has anyone tried powdered lidocaine?
Reply #29 - Jan 4th, 2009 at 8:30pm
 
Garys_Girl wrote on Jan 4th, 2009 at 7:20pm:
If Lydia and her CH sufferer want to party, I recommend shrooms.   Roll Eyes

Laurie


Now that there is some bad brained thinkin goin on.  What were you thinking when you made that comment?

           Kinder gentler Potter
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Garys_Girl
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Re: Has anyone tried powdered lidocaine?
Reply #30 - Jan 5th, 2009 at 4:42pm
 
Potter wrote on Jan 4th, 2009 at 8:30pm:
Garys_Girl wrote on Jan 4th, 2009 at 7:20pm:
If Lydia and her CH sufferer want to party, I recommend shrooms.   Roll Eyes

Laurie


Now that there is some bad brained thinkin goin on.  What were you thinking when you made that comment?

           Kinder gentler Potter


You are SO right, and the bbz, I am SO sorry.  I obviously wasn't thinking, and is totally thoughtless.  I'd jump down the throat of anyone posting something like that because so many have worked for so long to remove just that kind of stigmatism to the use of psilocybin (or LSD or LSA) for therapeutic medical reasons, and thank you for calling me on it.

Please accept my apologies. 

Laurie
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Re: Has anyone tried powdered lidocaine?
Reply #31 - Jan 5th, 2009 at 5:15pm
 
You are SO right, and the bbz, I am SO sorry.  I obviously wasn't thinking, and is totally thoughtless.  I'd jump down the throat of anyone posting something like that because so many have worked for so long to remove just that kind of stigmatism to the use of psilocybin (or LSD or LSA) for therapeutic medical reasons, and thank you for calling me on it.

Please accept my apologies. 

Laurie


Kudo's to you Laurie, you're a class act! Wink

And be careful everyone, a supporter came here and asked a question. My neuro told me 30 years ago that cocaine had a positive effect on CH, that's why he initially gave me the lidocaine drops to try as an abortive. It didn't work for me. She may honestly be trying to help someone. Many of us have considered chopping our heads off during a KIP 10.  Smiley Asking about cocaine is mild by comparison!

I'm hoping we haven't scared away a supporter by jumping down her throat. Let's try and remember a lot of scared people come here looking for answers, letr's not scare them away. While I agree wholeheartedly that street drugs are no answer to CH, you can tell someone it's a bad idea, without comparing them to a mouth breathing moron!

Joe's humble opinion.
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"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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thebbz
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Re: Has anyone tried powdered lidocaine?
Reply #32 - Jan 5th, 2009 at 5:49pm
 
Apparently the stigma remains. Apology accepted and thank you.
all the best
the bb
There is a fine line between use and abuse.
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Re: Has anyone tried powdered lidocaine?
Reply #33 - Jan 5th, 2009 at 8:30pm
 
Guiseppi wrote on Jan 5th, 2009 at 5:15pm:
[i]

Asking about cocaine is mild by comparison!

I'm hoping we haven't scared away a supporter by jumping down her throat. Let's try and remember a lot of scared people come here looking for answers, letr's not scare them away. While I agree wholeheartedly that street drugs are no answer to CH, you can tell someone it's a bad idea, without comparing them to a mouth breathing moron!

Joe's humble opinion.


She was pretty clear: "I have been doing extensive research and it seems that smoking crack can abort."

That's bullsh&t.

Whatever response she received was appropriate. If she's embarrassed - she should be. There's no extensive research to tell anyone that smoking crack is an abortive.

I'm not going to get all analytical and self-questioning over someone that would consider giving crack as an abortive to their sufferer. The answer is f-No.

Scott
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Scott
 
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Potter
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Re: Has anyone tried powdered lidocaine?
Reply #34 - Jan 5th, 2009 at 8:51pm
 
She's a one and done. Why do some folks want to kiss these crazies ass.

      Kinder gentler Potter
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Guiseppi
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Re: Has anyone tried powdered lidocaine?
Reply #35 - Jan 5th, 2009 at 10:30pm
 
One and done because she's crazy? Or because her first question was met with such abuse? Like I said, a medical doctor, a neuro, told me 30 years ago that cocaine had a positive effect on CH. Either he made it up...not likely...or some research existed...way back then....to back it up.

You can tell someone an idea is not good, and back it up with research. Or you can tell them their idea is stupid, ridicule them, chase them away, and make danged sure they never come to us looking for advice again. Which do you suppose DJ set up this site for?

Joe
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seasonalboomer
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Re: Has anyone tried powdered lidocaine?
Reply #36 - Jan 6th, 2009 at 5:27am
 
Guiseppi wrote on Jan 5th, 2009 at 10:30pm:
Like I said, a medical doctor, a neuro, told me 30 years ago that cocaine had a positive effect on CH. Either he made it up...not likely...or some research existed...way back then....to back it up.

Joe


30 years ago, Joe, many doctors were doing coke and still disputing tobacco research. If we were sitting here 30 years ago on the internet then the conversation would have probably been different. But since then we've had Nancy Reagan, "Just Say No", massive educational programs regarding cocaine, the crack epidemic, meth, what have you, and well, it's not 30 years ago.

As for what DJ set this site up for...a support group that has been self-identified as a community develops its own mores and codes organically.

Scott
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« Last Edit: Jan 6th, 2009 at 5:28am by seasonalboomer »  

Scott
 
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Chad
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Re: Has anyone tried powdered lidocaine?
Reply #37 - Jan 6th, 2009 at 8:12am
 
Potter wrote on Jan 2nd, 2009 at 12:36pm:
coach_bill wrote on Jan 1st, 2009 at 8:46pm:
Smoking Crack to abort a cluster... HMMM Why didnt i think of that. Where the Hell is Potter when you need him... Coach Bill


I been trying to avoid these bad brained posts.  Get some gawddamned oxygen and forget cola in any form.  Been there and done that, it don't work.

Again try the oxygen.

            Kinder gentler Potter
Gosh Potter, you were really kind on this one  Grin
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Potter
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Re: Has anyone tried powdered lidocaine?
Reply #38 - Jan 6th, 2009 at 11:03am
 
Chad wrote on Jan 6th, 2009 at 8:12am:
Potter wrote on Jan 2nd, 2009 at 12:36pm:
coach_bill wrote on Jan 1st, 2009 at 8:46pm:
Smoking Crack to abort a cluster... HMMM Why didnt i think of that. Where the Hell is Potter when you need him... Coach Bill


I been trying to avoid these bad brained posts.  Get some gawddamned oxygen and forget cola in any form.  Been there and done that, it don't work.

Again try the oxygen.

            Kinder gentler Potter
Gosh Potter, you were really kind on this one  Grin

Kind, gentle and to the point.

     Kinder gentler Potter
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Re: Has anyone tried powdered lidocaine?
Reply #39 - Jan 6th, 2009 at 2:55pm
 
Guiseppi wrote on Jan 5th, 2009 at 5:15pm:
And be careful everyone, a supporter came here and asked a question. My neuro told me 30 years ago that cocaine had a positive effect on CH, that's why he initially gave me the lidocaine drops to try as an abortive. It didn't work for me. She may honestly be trying to help someone. Many of us have considered chopping our heads off during a KIP 10.  Smiley Asking about cocaine is mild by comparison!
Joe's humble opinion.


In the mid to late 90s, when my CHs started, I was a heavy cocaine user.  For many years, I thought my CHs were sinus issues brought on by the cocaine.  I do recall during that time, cocaine would abort an attack.  At the same time my cycles would last about 3 weeks longer than they do now.  I haven't used cocaine in almost 10 years, but if the attack was bad enough and it was put in front of me, I would do it.  
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Re: Has anyone tried powdered lidocaine?
Reply #40 - Jan 6th, 2009 at 5:33pm
 
I think we're getting a little off-topic; this poster didn't ask about the effectiveness of cocaine; she specifically asked about smoking crack.

Now, I searched, and I couldn't find a reference to crack-smoking for CH anywhere.  The scary thing is that this person is not only picking up on that as the one abortive they want to ask about, but also that she is looking for a crack "substitute" to smoke...somehow she has gotten it into her head that "smoking something = CH abortive".  So despite her extensive research she doesn't get it at all.

I think as much as we have a right to voice our opinions and ideas on treatments and medicines, as the web's premiere CH discussion site (ONLY site? hehe) I feel we also have a duty to be careful what ideas we present...
not only for the fact that yes, many of us are openly flaunting the law in our use of hallucinogens as a treatment and thus we don't need any extra attention in the realm of illegal drugs;
but also for the fact that there are some very desperate people out there, and in doing searches on the web they may come across a post like that woman's and see "extensive research...smoking crack...aborts clusters..." and get the bright idea to try it.  And it's already happened; I mean, this girl picked up the idea from somewhere, right?  So now this makes two websites where crack smoking is mentioned...I can just smell trouble.

I hate to chase anyone off, but I'm very protective of what this site stands for, and what it means to each of the sufferers who have found what they needed here to carry on and fight the good fight...

so, I think while we do need to show compassion, SOME things should still be black and white.  For web surfers who don't sift through hundreds of our posts, if we don't respond strongly to outrageous ideas like this one, it might seem to them as if it's worth a shot.
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thebbz
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Re: Has anyone tried powdered lidocaine?
Reply #41 - Jan 6th, 2009 at 7:19pm
 
Quote:
many of us are openly flaunting the law in our use of hallucinogens as a treatment


Pronunciation:*fl*nt, *fl*nt
Function:verb
Etymology:perhaps of Scandinavian origin; akin to Old Norse flana to rush around more at  PLANET
Date:1566

intransitive senses 
1 : to display or obtrude oneself to public notice
2 : to wave or flutter showily *the flag flaunts in the breeze*
transitive senses 
1 : to display ostentatiously or impudently : PARADE *flaunting his superiority*
2 : to treat contemptuously *flaunted the rules Louis Untermeyer*
synonyms see SHOW
  –flaunt noun 
  –flauntingly \*fl*n-ti*-l*, *fl*n-\  adverb 
  –flaunty \-t*\  adjective 

Funny I don't feel like I am flaunting anything by treating my CH with mushrooms. More like pushed in a corner. Sad
Social stigma with these things there is.....Yoda voice
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Re: Has anyone tried powdered lidocaine?
Reply #42 - Jan 6th, 2009 at 10:16pm
 
Lydia64 wrote on Jan 1st, 2009 at 4:17pm:
Hi.  I just registered for this site and love someone who has been suffering horribly with CH for about 4 years now.  I apologize in advance if I've pklaced this post in the wrong section.

They've become chronic and he doesn't have many PF days. He's seen many doctors, including a research doctor at UVA Neurology Center. They've tried him on this and that, and the only thing that seems to help is Imitrex. Of course the month's supply that insurance will cover only lasts 4 days if he's lucky and only uses part of the injection per CH.

I have been doing extensive research and it seems that smoking crack can abort. Of course that's not an option. However you can buy powdered lidocaine.

Have any of you tried smoking powdered lidocaine? He's had no luck with putting it up his nose.

Thanks for any advice anyone can offer.


Posted by: UnderTheRadar      Posted on: Today at 2:33pm
"I think we're getting a little off-topic; this poster didn't ask about the effectiveness of cocaine; she specifically asked about smoking crack."

Where is she specifically asking about smoking crack?  She even states it is not an option...  Are we all reading the same thing here?
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purpleydog
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Re: Has anyone tried powdered lidocaine?
Reply #43 - Jan 6th, 2009 at 10:40pm
 
No, we are not all reading the same thing. Funny how some will not read an entire post, and grab onto a few words, and then try to proceed to shove them down someone's throat, when all they are asking is a simple question. And a newbie, no less.

Thank you for posting, sorry you were driven off the board. I hope the people who had helpful suggestions, were indeed helpful to you. And to answer your question about smoking lidocaine.... don't do it. There are other forms of it available to use for the treatment of CH that are much safer.
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Re: Has anyone tried powdered lidocaine?
Reply #44 - Jan 6th, 2009 at 10:44pm
 
Quote:
Thank you for posting, sorry you were driven off the board. I hope the people who had helpful suggestions, were indeed helpful to you. And to answer your question about smoking lidocaine.... don't do it. There are other forms of it available to use for the treatment of CH that are much safer. 
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Re: Has anyone tried powdered lidocaine?
Reply #45 - Jan 7th, 2009 at 7:58am
 
purpleydog wrote on Jan 6th, 2009 at 10:40pm:
No, we are not all reading the same thing. Funny how some will not read an entire post, and grab onto a few words, and then try to proceed to shove them down someone's throat, when all they are asking is a simple question. And a newbie, no less.

Thank you for posting, sorry you were driven off the board. I hope the people who had helpful suggestions, were indeed helpful to you. And to answer your question about smoking lidocaine.... don't do it. There are other forms of it available to use for the treatment of CH that are much safer.


I read it, and she asked about smoking crack. Crack is not a good idea.
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Re: Has anyone tried powdered lidocaine?
Reply #46 - Jan 7th, 2009 at 8:23am
 
seasonalboomer wrote on Jan 7th, 2009 at 7:58am:
I read it, and she asked about smoking crack. Crack is not a good idea.

No, she said that smoking crack isn't an option.
Quote:
I have been doing extensive research and it seems that smoking crack can abort. Of course that's not an option.


Oliver
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seasonalboomer
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Re: Has anyone tried powdered lidocaine?
Reply #47 - Jan 7th, 2009 at 9:31am
 
gizmo wrote on Jan 7th, 2009 at 8:23am:
seasonalboomer wrote on Jan 7th, 2009 at 7:58am:
I read it, and she asked about smoking crack. Crack is not a good idea.

No, she said that smoking crack isn't an option.
Quote:
I have been doing extensive research and it seems that smoking crack can abort. Of course that's not an option.


Oliver


She asked about smoking "crack". Whether she thought it was an option or not, she asked about smoking "crack". WTF? What part of "it seems that smoking crack can abort" doesn't sound as though she is talking about "crack"? This is idiotic.  No one ran her off. She was one and done and gone.
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Re: Has anyone tried powdered lidocaine?
Reply #48 - Jan 7th, 2009 at 9:53am
 
seasonalboomer wrote on Jan 7th, 2009 at 9:31am:
gizmo wrote on Jan 7th, 2009 at 8:23am:
seasonalboomer wrote on Jan 7th, 2009 at 7:58am:
I read it, and she asked about smoking crack. Crack is not a good idea.

No, she said that smoking crack isn't an option.
Quote:
I have been doing extensive research and it seems that smoking crack can abort. Of course that's not an option.


Oliver


She asked about smoking "crack". Whether she thought it was an option or not, she asked about smoking "crack". WTF? What part of "it seems that smoking crack can abort" doesn't sound as though she is talking about "crack"? This is idiotic.  No one ran her off. She was one and done and gone.


    Exactly
    The End.

         Kinder gentler Potter
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gizmo
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Re: Has anyone tried powdered lidocaine?
Reply #49 - Jan 7th, 2009 at 10:57am
 
Some ask about crack, some ask about mushrooms, some ask about LSD, some ask about seeds, ...
Except for the level of danger I can't see a difference there, especially from a newbies point!!!.
I suppose we all were in the situation that we would try anything to get rid of CH.

It is ok to tell a newbie that smoking crack or any other possible treatment is not the way to go but do we really need to chase them off?

Oliver
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