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For those taking Taurine supplements... (Read 11578 times)

Garys_Girl CH.com Hall of Famer Offline Making biscuits Posts: 821 Planet Cat, NJ Gender:	Re: For those taking Taurine supplements... Reply #25 - Jan 11^th, 2009 at 8:49pm Got my fingers crossed for you! Hope that's the magic number. !!! Laurie
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Re: For those taking Taurine supplements...
Reply #26 - Jan 12^th, 2009 at 5:19am

Well, got hit again. Only this time I woke with 3. One about 1am, one about 3am and then about 15min ago, which went away quickly. All about a K5-6 again.

It's strange, I usually don't get mulitples until I'm midcycle. Undecided

Undecided

It's almost like my cycle's been speeded up or something. I have NEVER had a sporadic hit and not gotten hit subsequently, like I have at the beginning of this one.

I'm perplexed!

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Re: For those taking Taurine supplements...
Reply #27 - Jan 12^th, 2009 at 5:49am

Melissa wrote on Jan 12^th, 2009 at 5:19am:

Well, got hit again. Only this time I woke with 3. One about 1am, one about 3am and then about 15min ago, which went away quickly. All about a K5-6 again.

It's strange, I usually don't get mulitples until I'm midcycle. Undecided

Undecided

It's almost like my cycle's been speeded up or something. I have NEVER had a sporadic hit and not gotten hit subsequently, like I have at the beginning of this one.

I'm perplexed!

Hon, is there any REASON why you're waiting until it gets too much to bare that you're waiting to start the kudzu?

I'm asking because I would go ahead and pull out the big guns, to keep you from getting to the point that you'd have to 'ride it out'.

Also, adding in new prevents for me, each time has made my cycle weird. It might be that your beast is confused. I mean literally, my cycle goes from being at specific times, to it changing to different times. It's weird.

As far as I'm concerned, cluster busting has been the best treatment I've tried. No migraines since I started it, and my hits have gotten so much better. Wanna know more?
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Melissa

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Re: For those taking Taurine supplements...
Reply #28 - Jan 12^th, 2009 at 5:56am

Pixie- I don't want to add another vitamin that reduces BP on top of one that I'm already taking. I have normal BP out of cycle, but it has gone on the low side sometimes. Right now the Taurine is acting in the same way Kudzu did my cycle before (less severity, duration), so I want to give it a chance before adding in something else.

If I end up getting hit every other night with CH's that don't go beyond a K6 because of the Taurine, I'll take it!!!

As for riding them out, I have to until I get my O2, I have no choice, lol.

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Re: For those taking Taurine supplements...
Reply #29 - Jan 12^th, 2009 at 6:20am

Melissa wrote on Jan 12^th, 2009 at 5:56am:

Pixie- I don't want to add another vitamin that reduces BP on top of one that I'm already taking. I have normal BP out of cycle, but it has gone on the low side sometimes. Right now the Taurine is acting in the same way Kudzu did my cycle before (less severity, duration), so I want to give it a chance before adding in something else.

If I end up getting hit every other night with CH's that don't go beyond a K6 because of the Taurine, I'll take it!!!

As for riding them out, I have to until I get my O2, I have no choice, lol.

Ahh, okay, I didn't know if it was for a medical reason, or if it was just because you were waiting to pull out the big guns for when he really got pissy. Cheesy

Cheesy

As far as I'm concerned, cluster busting has been the best treatment I've tried. No migraines since I started it, and my hits have gotten so much better. Wanna know more?
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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: For those taking Taurine supplements... Reply #30 - Jan 12^th, 2009 at 7:46am After doing some more reading, it seems that instead of upping the Taurine any more, I should try increasing my Magnesium intake instead. I'm going to bump it up from 500mg to 750mg and see how that goes.
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sandie99 CH.com Hall of Famer Offline Wish it, dream it, do it - inspite the pain! Posts: 11975 Finland Gender:	Re: For those taking Taurine supplements... Reply #31 - Jan 12^th, 2009 at 12:39pm Mel, I hope it works! PF days & hugs, Sanna
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Re: For those taking Taurine supplements...
Reply #32 - Jan 12^th, 2009 at 2:53pm

Thanks Sanna, and the same for you my friend!

Well, looks like I'll be able to pick up my O2 tanks either tomorrow or Thursday. My GP wants to see me though for a check-up( Roll Eyes

Roll Eyes

) next week as it's been 1.5yrs since I've seen him. Figures I'd have to pay just to get my tanks! Cripes. Someday I'm going to just break down and buy my old welding O2 tank. Tongue

Tongue

Oh, and the regulator I bought should be here tomorrow.

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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: For those taking Taurine supplements... Reply #33 - Jan 13^th, 2009 at 8:53am Well, I did something that I think is dumb now, and reduced my Taurine by one pill (850mg) to see if a lower dose would work. Wrong. I woke last night with a K8-9 that lasted for an hour. Not fun! I have never forgotten that feeling and will do what it takes not to again from here on out.
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: For those taking Taurine supplements... Reply #34 - Jan 13^th, 2009 at 10:46am Damnit Mel you're due for a break. Joe
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Re: For those taking Taurine supplements...
Reply #35 - Jan 13^th, 2009 at 1:31pm

Joe, you're sweet, but I hope so many others get that break before me because they've been fighting a lot longer than I this cycle. Kiss

Kiss

This morning: due to exhaustion from the night before, took a nap from 10:30am-Noon and woke up with about a K4 CH attack. Decided to start Kudzu regimen so took 1.2g Kudzu root and drink a cup of caffeinated coffee (in cycle is the ONLY time I drink anything with caffeine). CH lasted only 20 minutes!

Since I am a glutton for punishment, I am yet adjusting my meds. Thank goodness my body responds quickly and is sensitive enough to what I injest that I can tell what is or won't work. I'm going to take my Kudzu now (1.5g 3x a day), and reduce the Taurine by one more pill to 1.7g. I am going to also keep taking 650mg of magnesium.

I figure my cycle is so short (40 days) that it would be wasting my time on getting more relief with just the Taurine, so I think it best I go with what I know DOES work for now.

HUGS to all!

mel

« Last Edit: Jan 13^th, 2009 at 1:32pm by Melissa »

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sandie99 CH.com Hall of Famer Offline Wish it, dream it, do it - inspite the pain! Posts: 11975 Finland Gender:	Re: For those taking Taurine supplements... Reply #36 - Jan 13^th, 2009 at 2:31pm Mel... PF days to us all, Sanna
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Re: For those taking Taurine supplements...
Reply #37 - Jan 15^th, 2009 at 11:34am

Dyna wrote on Jan 10^th, 2009 at 7:21am:

Hi,
I'm very new to this game and learning very quickly. First let me say thank you to everyone on this site for your insight and experience. My stupid question is how does one find Taurine suppliments and can I take them along with the maintenance/abortive meds my neuro has me on? I'm on Nortriptylin, Topamax, Imitrex, Reglan & Toradol I was started on some of the standard meds which were very successful but had to be taken off cuz I have low blood pressure and those meds were taking the BP to the danger low point!!!
Thanks

Just wanted to comment on something you wrote:
I could be wrong, but thought I read that nortriptyline only works for migraines, not CH's. Also, it will lower your blood pressure.

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Melissa

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Re: For those taking Taurine supplements...
Reply #38 - Jan 15^th, 2009 at 6:33pm

Ok, I am back up to 3 (850mg each) Taurine tabs every night before bed and 2 Kudzu, 3x a day, plus 650mg of Magnesium as my preventatives. So far my frequency has gone down and I had a 15 min. hit last night (no abortives) and one that lasted 40 min.

The only side effect I am experiencing tho, is vertigo. Could be because my BP is low, so I'm going to have to ease up on the Taurine & Magnesium. I'm going to take one less pill of each tonight and see how that goes. Undecided

Undecided

That would put me at 1.7g of Taurine and 400mg of magnesium.

I also now have my rig set up for O2 to knock them out tonight!

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Melissa

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Re: For those taking Taurine supplements...
Reply #39 - Jan 15^th, 2009 at 6:53pm

Ok, the whole BP thing has me spooked, so I've decided to completely cut out the Taurine. Sad

Sad

Also, now that I have my O2, I'm not as scared of waking up with more hits (which of course I hope doesn't happen).

I do love Taurine though as it helps with my anxiety out of cycle and I think is a great precurser to letting other meds/alternatives kick in.

JMO

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Garys_Girl CH.com Hall of Famer Offline Making biscuits Posts: 821 Planet Cat, NJ Gender:	Re: For those taking Taurine supplements... Reply #40 - Jan 15^th, 2009 at 6:55pm Glad you've got the 02 in the arsenal now. !! Friggin' bummer about the vertigo since that level of taurine really seemed to be helping. Once again, got my fingers crossed. Laurie
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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: For those taking Taurine supplements... Reply #41 - Jan 15^th, 2009 at 7:37pm Thanks Laurie Well, I just got back from my neighbors to get my blood pressure taken. Imagine my surprise when it was HIGH! 132/90. Only other time I had high BP like that was when my neuro took it during my 2003 cycle. Good grief, I don't know what to do anymore! lol
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Garys_Girl CH.com Hall of Famer Offline Making biscuits Posts: 821 Planet Cat, NJ Gender:	Re: For those taking Taurine supplements... Reply #42 - Jan 15^th, 2009 at 8:39pm Mel, invest in a blood pressure cuff! They're not totally accurate, but they give you a real good idea of where things stand. Take it twice a day at the same time every day. (Or, of course, when you feel you need to). Laurie
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Melissa

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Re: For those taking Taurine supplements...
Reply #43 - Jan 16^th, 2009 at 2:45am

I'm an idiot.

I looked back to see when my vertigo began and what I had done to change my regimen. It coincided with when I started the Kudzu! Up until that point I was calm and no vertigo. Figures!

I should have trusted my instincts and stuck with just the Taurine. So now I have to go off the Kudzu and back on the Taurine again. It just didn't make any sense to me WHY something that has anti anxiety properties, that I've been taking for 4+ months now has all of a sudden caused my BP to rise and vertigo??

Ohforpetesake

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Melissa

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Re: For those taking Taurine supplements...
Reply #44 - Jan 16^th, 2009 at 10:31am

I'm updating this morning, but then won't do it again until a few days have passed.

Last night SUCKED. 5 attacks, 4 that needed O2, slowest abort time was 22 min.

I have now forgone all Kudzu and will take 3.4g of Taurine before bedtime this evening.

I am SO wanting to put this craziness behind me and get on some kind of routine.

TTFN

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Re: For those taking Taurine supplements...
Reply #45 - Jan 16^th, 2009 at 10:38am

I'm so sorry Mel! I hear lots of talk about Melatonin at bedtime. Have you tried that? Sorry if I missed it in a previous post.

Sure hope the beast lets up soon, sweetie!

Jeannie

Edit to add: Is this the first cycle you have had since having Ava? Things seemed to change for me after Morgan was born. Just a thought.

« Last Edit: Jan 16^th, 2009 at 10:39am by Jeannie »

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Re: For those taking Taurine supplements...
Reply #46 - Jan 16^th, 2009 at 3:04pm

Melissa wrote on Jan 16^th, 2009 at 2:45am:

I'm an idiot.

I looked back to see when my vertigo began and what I had done to change my regimen. It coincided with when I started the Kudzu! Up until that point I was calm and no vertigo. Figures!

I should have trusted my instincts and stuck with just the Taurine. So now I have to go off the Kudzu and back on the Taurine again. It just didn't make any sense to me WHY something that has anti anxiety properties, that I've been taking for 4+ months now has all of a sudden caused my BP to rise and vertigo??

Ohforpetesake

Vertigo has been described as a side effect of kudzu by some here - it is usually temporary, until a person adjusts.

The blood pressure might be a separate issue. When I am in cycle, my blood pressure is wacked - high, low and normal, all in one day. If your BP is always 130/90, you should do something. One reading of such mild elevation is no reason for alarm.

Both taurine and kudzu have been used for lowering blood pressure, and for lowering anxiety. I doubt that both are equally good for all people, and like you said, changing the routine itself can be disruptive.

The outer boundary of what we currently believe is feasible is far short of what we actually must do.

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Melissa

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Re: For those taking Taurine supplements...
Reply #47 - Jan 16^th, 2009 at 4:09pm

Thanks Monty.

My BP is usually 117/60. It's always been normal except when I'm in cycle.

Jeannie- Melatonin I have tried before and I cannot take it. It makes things worse for me.

So far I am doing good today. The vertigo is decreasing. I am sticking to my original plan as far as the Taurine tonight.

I'll post again in the a.m. the results of tonight.

Thanks all,
~mel

ETA: I had my neighbor take my BP again. First we did my right arm, and it was measuring high again at 142/90, and then we did my left arm, which measured 134/82. Go figure. Undecided

Undecided

« Last Edit: Jan 16^th, 2009 at 7:55pm by Melissa »

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Melissa

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Re: For those taking Taurine supplements...
Reply #48 - Jan 17^th, 2009 at 8:00am

Good morning, uh, to whoever reads this thread, lol.

I am sorta happy to report that I only got woke up twice last night with attacks! The 1st one I aborted with O2 in about 10 min., and the 2nd one I foolishly didn't think would go full blown, which it did, so I ended up riding it out (NOT FUN, thought I had a stroke by the end of it!). HUGE opinion on hitting that O2 as soon as you get your first twinge, DO IT!

Anyway, I can conclude thus far that the Taurine is definately working as a preventative for me. I'll report back again tomorrow.

Oh, and the vertigo is almost gone now from the Kudzu. I know it's a temporary side effect, but I have an anxiety disorder which makes it extremely unlikable.

Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel

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Re: For those taking Taurine supplements...
Reply #49 - Jan 17^th, 2009 at 8:43pm

Melissa wrote on Jan 17^th, 2009 at 8:00am:

Good morning, uh, to whoever reads this thread, lol.

I am sorta happy to report that I only got woke up twice last night with attacks! The 1st one I aborted with O2 in about 10 min., and the 2nd one I foolishly didn't think would go full blown, which it did, so I ended up riding it out (NOT FUN, thought I had a stroke by the end of it!). HUGE opinion on hitting that O2 as soon as you get your first twinge, DO IT!

Anyway, I can conclude thus far that the Taurine is definately working as a preventative for me. I'll report back again tomorrow.

Oh, and the vertigo is almost gone now from the Kudzu. I know it's a temporary side effect, but I have an anxiety disorder which makes it extremely unlikable.

Sounds like your getting somwhere.
I'm real happy for you & hope there's more PF time to come soon.
Kindest Regards
Barry

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