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Molly

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Question for the experts
Jan 15^th, 2009 at 12:28pm

Hi I am a supporter and have a couple quick questions. The attacks are peaking. Almost all are at night 3-4 per night. We are considering trying Melatonin. Can you let me know if anyone has had any success with that and what the correct dosage is.
Also-does anyone use a CPAP machine for apnea and if so does it help with night attacks?

Thanks for your help!
Molly

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E-Double

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Re: Question for the experts
Reply #1 - Jan 15^th, 2009 at 12:46pm

My magic number was always 9mg taken 30-40 minutes prior to bed. It totally wiped out my night attacks for about a year.

read through this...
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

and google todd rozen mhni for some further research regarding ch treatments including melatonin.

Previous research suggested 9-12 mg.
his recent studies suggest people can go upwards of 18+mg.

good luck and take back the night!

Eric

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I can't believe that I have to bang my Head against this wall again. But the blows they have just a little more Space in-between them. Gonna take a breath and try again.

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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Question for the experts Reply #2 - Jan 15^th, 2009 at 12:47pm Hi Molly, Lots of folks here swear by Melatonin to keep the night-time hits down. Start off at one,maybe two 3mg. tablets and work up. I've 9mg. works best for me. I suppose someone who is 6'4" and 300 pounds would want to take more than that. Take it about 1/2 before your're going to go to bed. Linda
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DennisM1045

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Re: Question for the experts
Reply #3 - Jan 15^th, 2009 at 12:52pm

Hi Molly,

Molly wrote on Jan 15^th, 2009 at 12:28pm:

Hi I am a supporter and have a couple quick questions.

First off, thanks for being there and reaching out like this. You supporter's rock!!!

Quote:

We are considering trying Melatonin. Can you let me know if anyone has had any success with that and what the correct dosage is.

Some have reported success with it. Though like everything else nothing works for everyone. I started with 6mg and went up 3mg every other night till I hit 12mg. 9-15mg seems to be the range folks settle in.

It seemed to help but made my snoring way worse so in the interest of marital bliss (and less bruising in my ribs) I don't use it anymore.

Be patient and don't rush it. This stuff can take a week or more before you see results.

[quote]Also-does anyone use a CPAP machine for apnea and if so does it help with night attacks? [quote]
Lots of people with CH also have Sleep Apnea so there are lots around here that use a CPAP machine. I've never heard one say the machine helped with the attacks.

-Dennis-

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Where there is life, there is hope.
Where there is Oxygen, you must use proper caution.
So be safe, don't smoke while using O2. Kill the pain and not yourself.

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DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: Question for the experts Reply #4 - Jan 15^th, 2009 at 12:54pm Linda_Howell wrote on Jan 15^th, 2009 at 12:47pm: I suppose someone who is 6'4" and 300 pounds would want to take more than that. Would that make three or four of you -Dennis-
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Question for the experts Reply #5 - Jan 15^th, 2009 at 1:02pm Your math sucks Dennis...that would be at least SIX Linda's!!! Joe (running and ducking)
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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Question for the experts Reply #6 - Jan 15^th, 2009 at 1:12pm AHEM....could we get back to Molly now?
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E-Double

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Re: Question for the experts
Reply #7 - Jan 15^th, 2009 at 1:23pm

3mg is recommended for an average sized adult to use as a sleep aide. If you are like our dear Luinda then one should be taking micrograms.

As far as using it as a preventative you would need to go higher than 1 or 3 most likely.

The only downside initially was that until it did start preventing attacks I was drowsy and would still wake up with a hit which wasnt fun but once it did work I was PF during the nights and well rested to cope better with the day time atttacks.

Eric the average sized male ( that's referring to my hieght you pervs)

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I can't believe that I have to bang my Head against this wall again. But the blows they have just a little more Space in-between them. Gonna take a breath and try again.

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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Question for the experts Reply #8 - Jan 15^th, 2009 at 2:15pm My, my...how quickly threads degenerate around here sometimes. LOL Molly we're all just teasing each other. Honest.
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Molly CH.com Newbie Offline I Love CH.com! Posts: 21	Re: Question for the experts Reply #9 - Jan 15^th, 2009 at 5:22pm No worries, I got a good chuckle. -lol.
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