Hi, been lurking for a while, reading posts.
I'm from the UK and have had ECH for about 8 yrs and Migraine for 25.
Have tried a variety of stuff, and currently taking:
Verapamil
O2 and Imigran.
I am currently 'enjoying' nightly visits from the Beast.
After 8 yrs saw a specialist nurse last week (referred by my neuro) who did and Occipital Nerve block injection (first time it's been offered).
Doesn't seem to have done anything yet, anyone had any successes?
Fingers crossed.
take care
Vince

Suggest that you contact an excellent support group in GB:
    Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or
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Suggest that you print both of these lists and use as a discussion tool with your health provider.

HERE ARE TWO MAJOR DOCUMENTS WITH RECOMMENDED TREATMENTS FOR CLUSTER HEADACHE, ONE FROM A U.S. PHYSICIAN, THE SECOND FROM EUROPE.
_________________________________________
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or
Here is a link to read and print and take to your doctor.  It describes preventive, transitional, abortive and surgical treatments for CH. Written by one of the better headache docs in the U.S.  (2002. Rozen)
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Treatment guidelines from Europe

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A. May, M. Leone, J. Áfra, M. Linde, P. S. Sándor, S. Evers, P. J. Goadsby:
EFNS guidelines on the treatment of cluster headache and other
trigeminalautonomic cephalalgias.
European Journal of Neurology. 2006; 13: 1066–1077.

Download free full text:
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(Thanks to "cluster" for link.)
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See also,

 
Cluster headache.
From: Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or (Orphanet Journal of Rare Diseases)
[Easy to read; one of the better overview articles I've seen. Suggest printing the full length article if you are serious about keeping a good medical library on the subject.]

Leroux E, Ducros A.

ABSTRACT: Cluster headache (CH) is a primary headache disease characterized by recurrent short-lasting attacks (15 to 180 minutes) of excruciating unilateral periorbital pain accompanied by ipsilateral autonomic signs (lacrimation, nasal congestion, ptosis, miosis, lid edema, redness of the eye). It affects young adults, predominantly males. Prevalence is estimated at 0.5-1.0/1,000. CH has a circannual and circadian periodicity, attacks being clustered (hence the name) in bouts that can occur during specific months of the year. ALCOHOL IS THE ONLY DIETARY TRIGGER OF CH, STRONG ODORS (MAINLY SOLVENTS AND CIGARETTE SMOKE) AND NAPPING MAY ALSO TRIGGER CH ATTACKS. During bouts, attacks may happen at precise hours, especially during the night. During the attacks, patients tend to be restless. CH may be episodic or chronic, depending on the presence of remission periods. CH IS ASSOCIATED WITH TRIGEMINOVASCULAR ACTIVATION AND NEUROENDOCRINE AND VEGETATIVE DISTURBANCES, HOWEVER, THE PRECISE CAUSATIVE MECHANISMS REMAIN UNKNOWN. Involvement of the hypothalamus (a structure regulating endocrine function and sleep-wake rhythms) has been confirmed, explaining, at least in part, the cyclic aspects of CH. The disease is familial in about 10% of cases. Genetic factors play a role in CH susceptibility, and a causative role has been suggested for the hypocretin receptor gene. Diagnosis is clinical. Differential diagnoses include other primary headache diseases such as migraine, paroxysmal hemicrania and SUNCT syndrome. At present, there is no curative treatment. There are efficient treatments to shorten the painful attacks (acute treatments) and to reduce the number of daily attacks (prophylactic treatments). Acute treatment is based on subcutaneous administration of sumatriptan and high-flow oxygen. Verapamil, lithium, methysergide, prednisone, greater occipital nerve blocks and topiramate may be used for prophylaxis. In refractory cases, deep-brain stimulation of the hypothalamus and greater occipital nerve stimulators have been tried in experimental settings.THE DISEASE COURSE OVER A LIFETIME IS UNPREDICTABLE. Some patients have only one period of attacks, while in others the disease evolves from episodic to chronic form.

PMID: 18651939 [PubMed]

Thanks for the welcome. Will read the details.
Have had Oxygen for my last three episodes and it is better than not having, it doesn't always work (probably delay in starting). Wish I could take it everywhere with me!
Reading the list of drugs I have been on:
Topiramate (prescribed for migraine,very bad reactions memory loss, dizziness etc)
Prednisone (at onset of episode, tapering dose)
Methysergide (prescribed for migraine, no great effect)
and loads of stuff for migraine (pizotofen, amytriptline, propanalol, epilim, etc.)
Nasal sprays
Zomig.

Read loads of similar experiences.
My wife read some posts and said 'That sounds like you', she and the kids are really supportive but I think there must have always been some doubt.
The kids are great, my daughter gives me three kisses on the head every night to 'make my head safe', she's 4.

Ta
Vince

Welcome home, man...it's your new second family here! 

What have you found to be effective (if anything) for the migraines?  (I'm in the same boat.)  And does your migraine change while in cycle?

-Paige